Advocacy for Change

Global ARCH / Advocacy for Change


At Global ARCH, we advocate for equitable access to care, inclusion of patient voices, and policy changes prioritizing childhood-onset heart diseases.

By working with global stakeholders, we strive to ensure every patient and family has the support
and resources they need for a healthier future.

Learn more about our advocacy:

Join Us in advancing this critical work. Together, we can build a future where everyone, everywhere, has access to the care they need to thrive.

Advocacy Resources

Click here to view additional advocacy resources.

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Amy Verstappen, President

Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world.  Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.