Heart Month Campaign Toolkit

Global ARCH / Heart Month Campaign Toolkit

Heart Month Campaign Toolkit

Heart Month 2025 theme: Change Starts with the Community

Every small action makes a big difference. By raising awareness, sharing stories, and advocating for childhood-onset heart disease, we can drive change in our communities and globally. This toolkit empowers you to show how you’re making a difference—and to inspire others to join us in #InvisibleHeartsCollectiveAction for every life.

Share your journey—whether you’re a patient, family member, organization leader, or supporter.

Are you a Global ARCH member? Join our WhatsApp group to share your plans and collaborate in raising awareness for childhood-onset heart disease!

Join the Social Media Campaign

How to Share

  1.  Post a Caption: Use one of the provided captions or write your own.

2.  Add a Visual: Download a graphic (and add your logo) or use your own photo.

3.  Include Hashtags:

      • #InvisibleHeartsCollectiveAction
      • #InvisibleHearts
      • #CollectiveActionForHearts
      • #CHDAwareness
      • #RHDMatters
      • #KawasakiDiseaseAwareness

4.  Tag Global ARCH: So your post can be reshared:

Download Materials in Other Languages

Social Media Posts

Social Media Posts

1 in 100 children is born with congenital heart disease, and millions more live with childhood-onset heart disease, including RHD and Kawasaki disease. Let’s make these Invisible Hearts visible and advocate for the care they deserve. 🌍❤️ #InvisibleHearts #CollectiveActionForHearts #InvisibleHeartsCollectiveAction

Every person, no matter where they live, deserves access to lifesaving care for childhood-onset heart disease. Let’s unite to close the care gap. #InvisibleHearts #COHDAwareness #InvisibleHeartsCollectiveAction

Childhood-onset heart disease is one of the most common and under-recognized global health challenges. Together, we can turn awareness into action. 🌍❤️ #CollectiveActionForHearts #InvisibleHeartsCollectiveAction

Real change begins with small actions in our communities. Together, these actions create a global impact. Be part of the collective movement to make Invisible Hearts visible.

#CollectiveActionForHearts #InvisibleHeartsCollectiveAction

1 in 100 babies is born with CHD, yet too many remain invisible to healthcare systems. Let’s work together to create a healthier future for every child with CHD. ❤️ #CHDAwareness #InvisibleHearts #InvisibleHeartsCollectiveAction

Rheumatic heart disease is preventable yet millions are impacted. I’m raising awareness because [your reason?]. Together, we can stop this disease and ensure a healthier future for every child. 🌍❤️ #RHDMatters #InvisibleHeartsCollectiveAction

Kawasaki disease impacts too many lives. I’m sharing my voice to raise awareness and advocate for early detection and care. [Add a personal story or hope.] ❤️ #KawasakiDiseaseAwareness #InvisibleHeartsCollectiveAction

Kawasaki disease is the leading cause of acquired heart disease in children. Early detection and treatment save lives. Let’s spread the word. ❤️ #KawasakiDiseaseAwareness #InvisibleHearts #InvisibleHeartsCollectiveAction

I make a difference in my community by [local action, e.g., advocating for early CHD screening, raising awareness in schools, supporting families]. Together with others in the Invisible Hearts, Collective Action movement, I’m contributing to a larger global effort to [global impact, e.g., improve access to care, amplify patient voices, raise awareness].

From [city/country], I’m proud to be part of this worldwide community. 🌍❤️ #InvisibleHearts #CollectiveActionForHearts #InvisibleHeartsCollectiveAction

From [city/country], I’m making Invisible Hearts visible
#InvisibleHeartsCollectiveAction

I stand with Invisible Hearts because [why this matters to you]. Together, we can make childhood-onset heart disease visible and ensure every baby, child, and adult has access to care and services. 🌍❤️ #InvisibleHearts #CollectiveActionForHearts #InvisibleHeartsCollectiveAction

As a [parent/sibling/survivor/advocate of someone OR someone] with [CHD/RHD/Kawasaki disease/cardiomyopathy], I know how important care and awareness are. [Add a personal note or wish for change]. Let’s raise our voices  and take action for Invisible Hearts. ❤️ #CHDAwareness #InvisibleHeartsCollectiveAction

We take action for our babies, our children, our families, and our future. 💙

Invisible Hearts deserve visible action—together, we can create change and ensure every child receives the heart care they need.

Who do you take action for? Share your story and join the movement.

#InvisibleHeartsCollectiveAction #CollectiveActionForHearts #CHDAwareness #RHDMatters #KawasakiDiseaseAwareness

I take visible action for Invisible Hearts because every child, every family, and every community deserves access to lifesaving heart care. 💙🌍

Whether it’s raising awareness, advocating for change, or supporting families, every action counts. Join me in making the invisible visible.

#InvisibleHeartsCollectiveAction
#CollectiveActionForHearts #CHDAwareness #RHDMatters #KawasakiDiseaseAwareness

Join Us to Create Visible Change

A special thank you to

  • Paige Brown for the social media images
  • Fundación María for the Spanish translation
  • Amigos do Coração – Goiás for the Portuguese translation
  • Big Heart to a Small Heart for the Croatian translation
  • Sydänlapset ja -aikuiset ry – The Finnish Association for Heart Children and Adults for the Finnish translation
  • Brave Little Hearts South Africa for the Afrikaans translation

 

Please email [email protected] with any questions or to learn more. 

Amy Verstappen, President

Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world.  Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.