Amy Verstappen abụwo onye nkwado ọrịa na onye nkuzi ahụike kemgbe 1996, mgbe ihe ịma aka nke onwe ya bi na nsogbu obi siri ike dugara ya na ọgbakọ okenye ọgbakọ, ebe o jere ozi dịka onye isi ala site na 2001 rue 2013. O jegoro na onye ndụmọdụ nke Lọ Ọrụ Maka Ọrịa Na-achịkwa Obi Obi, Ugbo na Ọbara Institute; na International Society for Adult Congenital Cardiac Disease, ma soro ndị ọrịa na ndị ọkachamara na-arụ ọrụ na USA na ụwa niile rụọ ọrụ. Nwanyị Verstappen natara Nna-ukwu na Mmụta na 1990 na Masters na Global Health na 2019.
Disty Pearson, osote onye isi ala
Disty Pearson bụ nne na nna nke onye ọrịa obi na-arịa ọrịa na onye na-enyere aka dibịa na ọrịa obi congenital congenital (CHD), lara ezumike nká n'oge na-adịbeghị anya. Ya na ndị ọrịa CHD rụkọrọ ọrụ n'ime afọ 40 gara aga, nke mbụ na ịwa ahụ obi yana afọ 20 ikpeazụ ya na Boston Adult Congenital Heart Service (BACH) na Ụlọ Ọgwụ Ụmụaka Boston na Mass General Brigham. Ọ bụ onye guzobere ACHA Medical Advisory Board ma bụrụ onye otu American College of Cardiology. Disty ghọtara n'oge mkpa ọ dị onye ọrịa na olu ezinụlọ na mkpebi niile metụtara nlekọta ndị ọrịa ma raara onwe ya nye iji kwalite ndụ nke ndị ọrịa obi mmalite nwata na-emetụta gburugburu ụwa.
Shelagh Ross, odeakwụkwọ
Shelagh Ross bụ onye nchoputa na onye isi oche nke Canada Congenital Heart Alliance (CCHA), onye na-enweghị ego na-akwado ma na-akwado ndị Canada nwere ọrịa obi na-efe efe (CHD). Ọ bụ onye CHD nwere tetralogy nke Fallot, ma nwee ọtụtụ ịwa ahụ na mmemme. Ọ bụ onye na-ede akwụkwọ ahụike na ahụ ike / onye editọ na njikwa weebụsaịtị, ebe ọ bụ na 2004 abụwo onye na-agbasi mbọ ike na obodo CHD.
David La Fontaine, onye na-echekwa ego
David La Fontaine gụsịrị akwụkwọ na Haverford College dị nso na Philadelphia na 1983. Ọ rụọ ọrụ na mmepe obodo nke obodo mepere emepe, ma ugbu a na-eduga otu nzukọ na-enweghị uru na-emepe ụlọ dị ọnụ ala na ngwakọta ngwakọta na mmekorita ya na ndị isi mpaghara mpaghara na Philadelphia. David kpebisikwara ike ịgwọ ahụike na inyere ndị mmadụ aka na CHD na RHD ohere inweta nlekọta ha chọrọ iji bie ndụ dị mma.
Flavia Kamalembo Batureine
Flavia ebiela na ọrịa obi na-arịa ọrịa ogbu na nkwonkwo (RHD) kemgbe afọ 9, ọ bụkwa onye otu Rheumatic Heart Disease Support group dị na Uganda, n'okpuru Heartlọ Ọrụ Na-ahụ Maka Obi. Site na otu nkwado, ọ na-agakwuru ndị ọrịa ndị ọzọ, ezinụlọ ma ọ bụ ndị mmadụ n'otu n'otu iji nye nkwado mmekọrịta mmadụ na ibe ya, ndụmọdụ, ịkwado na nyocha. Ọ bụkwa nọọsụ na-elekọta nlekọta dị egwu, na-arụ ọrụ na ngalaba kpụ ọkụ n'ọnụ nke obi. A raara ya nye iji mata banyere RHD na CHD ka ndị ọrịa wee nwee ike ịnweta nlekọta kwesịrị ekwesị na oge, yana inye aka na nyocha nke egosipụtara iji melite nlekọta nke ndị mmadụ metụtara CHD na RHD. Flavia bụ onye na-arụsi ọrụ ike na Nzukọ Ọchịchị Obi Ọha nke Mba na Barcelona na 2017, nke dugara n'ike nke Global ARCH.
Belen Blanton Altuve
Site na Venezuela, Belen Blanton Altuve ebiela na US afọ 30+. Amụrụ ya na tricuspid atresia, ọ ` “ịkpụgharị obi / ngụgụ”. Ọ sonyeere ndị okenye Congenital Heart Association ebe ọ mụtarakwu banyere ntụpọ ya, na-ejikọta ya na ndị ọrịa CHD ndị ọzọ, yana ndị ọkà mmụta obi ACHD na ndị nlekọta. Belen na di ya emepụtala Fundacion Estrellita de Belen, onye na-arụsi ọrụ ike na-adịghị akwụ ụgwọ nke na-enye nlekọta obi obi nye ụmụaka ndị na-enweghị ego na Venezuela. Belen na-agbasi mbọ ike inyere ụmụaka ndị a aka inwe otu ohere ịlụ ọgụ nke ọ dabara na ọ nwere n'oge ndụ ya.
Blanca del Valle
Blanca del Valle nọrọ ọtụtụ afọ na-arụ ọrụ na-edu ndú na ngalaba ego, na nso nso a na-ekere òkè na ahụ ike, omenala, na atumatu ịbụ nwa amaala. Na 2008, ọ sonyeere Kardias dị ka onye isi oche onye isi oche ya, na-enyefe onwe ya iji meziwanye ohere maka nlekọta dị mma maka ụmụaka nwere CHD na Mexico. Kemgbe afọ 2017, o nyela ego enyemaka mberede abụọ ruru ihe karịrị nde $5. Ọ bụ isi ugbu a Fondo de Inversión Social Kaluz nke gụnyere Core Ciudades Vivibles y Amables, Fundación Kaluz, na Museo Kaluz. Ọ bụkwa onye nchoputa na onye na-echekwa ego nke "Red de Donantes Ensamble", netwọk nke ụlọ ọrụ inye onyinye kacha mkpa na Mexico. Ọ na-anọdụ na bọọdụ nke ọtụtụ ụlọ ọrụ na-anaghị akwụ ụgwọ na nke na-enweta uru na Mexico na mba ọzọ, dị ka Grupo Financiero Ve por Más, Fundación BBVA México, yana bọọdụ ndụmọdụ nke Centro Mexicano para la Filantropía na David Rockefeller Center nke Harvard. maka ọmụmụ Latin America.
Anu Gomanju
Anu Gomanju bụ onye na-akwado ndị ọrịa na-anaghị ebute ọrịa (NCD) yana onye nwere ọrịa obi rheumatic (RHD) si Nepal. Ọ na-akwado maka ahụike obi maka mmadụ niile yana ntinye aka bara uru nke ndị bi na NCD (PLWNCD). Tinyere aka ya na nke Global ARCH dịka onye otu bọọdụ, ọ jikọtara ya na NCDI Poverty Network dị ka 'Steering Committee Youth Advocate' na 'Voices for PEN-Plus'. Na Nepal, Anu na-arụ ọrụ dị ka onye na-ahụ maka ahụike ọha na eze na netwọk ụlọ ọgwụ ụmụaka na-adịghị akwụ ụgwọ a na-akpọ Kathmandu Institute of Child Health (KIOCH). N'agụmakwụkwọ, a zụrụ ya dịka ọkachamara ahụike zuru ụwa ọnụ na ọha. Anu na-etinyekwa aka na ndị na-eme ahụike zuru ụwa ọnụ dịka WHO, WHF, na njikọ aka nke ndị ọrịa na ezinụlọ na-anọchite anya Nepal na Asia. Ọ bụ olu NCDI Ịda ogbenye Advocacy Fellow Alumna (2021-2022) nke NCDI Poverty Network, USA. Ọ na-achọ ike ndị mmadụ na-ebi na ọnọdụ na-adịghị ala ala site na ịgụ akwụkwọ ahụike, itinye aka na nkwado iwu, na nyocha iji hụ na nlekọta ahụike dị mma na ọnụ ala maka mmadụ niile.
Grace Jerald
Grace bu onye mbu bu obi amuru n'obi na Malaysia ka o gabiga oru mgbanwe maka Transposition of the Great Arteries. Site na Bachelor of Arts (Hons) na Mahadum Malaya na Malaysia, Grace enweela ọtụtụ ọnọdụ na njikwa nchekwa data, atụmatụ mmemme, na inye ike na ịgba ndị ọrụ afọ ofufo. Kemgbe 2020, ọ bụrụla onye otu akpọrọ akpọrọ Global ARCH kọmitii nkwukọrịta. Ọ bụkwa onye ndụ nke ndị enyi nke IJN, ndị otu na-akwado ndị ọrụ afọ ofufo na National Heart Institute Hospital. Ọ na-arụ ọrụ ugbu a na Alaeze, otu ọgbakọ Ndị Kraịst zuru ụwa ọnụ n'ọtụtụ ebe gburugburu ụwa.
Tendai Mayo
Tendai Moyo, onye amuru ma zụlite na Zimbabwe, ghọrọ onye nkwado siri ike maka ndị ọrịa CHD mgbe nwa ya nwanyị nwụnahụrụ ya n'ọrịa ahụ. A mụrụ ọhụụ ya n'ihi iru uju na ọnwụ. Na-enweghị ndabere ma ọ bụ akụrụngwa ime ihe, ọ sonyere Global ARCH maka nkwado na mkpali. Kemgbe ahụ, ọ tọrọ ntọala Brave Little Heart Zimbabwe, na 2021 hiwere ngalaba ngalaba obi na ụlọ ọgwụ Mpilo Central na Bulawayo. Ewubere ngalaba ọhụrụ ahụ iji kwalite ohere ịnweta ọrụ ọkachamara na nlekọta mmezi maka ụmụaka nwere ọnọdụ obi. O nwere olile anya na a ga-emegharị akụkụ ndị ahụ n'ofe mpaghara iri nke Zimbabwe, yana ọrịa obi nwata ka etinyere na atụmatụ ahụike mba.
Lavinia Ndemutila Ndinangooye
Lavinia bụ nọọsụ, onye na-agụ egwu, na onye nnọchi anya RHD na Namibia. Mgbe ọ dị afọ 9, a chọpụtara na ọ na-arịa ọrịa obi na-agba ume ma ọtụtụ afọ furu efu iso. Dịka onye nwere nsogbu ahụike, Lavinia zụlitere nnukwu agụụ na ọchịchọ nke inyere ndị ọzọ aka, ọkachasị ndị nwere nsogbu ahụike. Dị ka onye na-egwu egwu, Lavinia dere abụ mmata RHD "BET KWES YOURR YOUR KWES YOURR YOUR KWES ”R” KWES YOURR ”KWES YOURR” ”BỌR ””BỌR YOUR G”, "nke malitere n'oge mkpọsa RHD mpaghara. Ọ na-arụ ọrụ ugbu a akpọrọ 'RHD B NOTGH NOT ỌD' 'iji mepụta mmata banyere ọrịa mgbochi ọrịa.
Ruth Ngwaro
Site na Kenya ma ugbu a bi na United States, Ruth bụ onye nwere ahụmahụ, onye nwere mmasị na onye na-akwado ahụike ọha na eze na ọkachamara. Dị ka onye ọrịa obi na-arịa ọrịa obi (CHD), Ruth hibere ọgbakọ anaghị akwụ ụgwọ Kenya Mended Hearts Patient Association (KMHPA). Site n'ọchịchị ya mara mma, nzukọ a na-aga n'ihu na-akwado nkwado maka ọrịa obi na-aga n'ihu na ikike RHD, mgbanwe amụma, na ime ka mmata n'ime obodo.
Amaya aza
Amaya Sáez, onye si Madrid, Spain, bụ onye isi njikwa nke Menudos Corazones Foundation, ọgbakọ CHD na-eduga na Spain. Ọ bụkwa onye nchoputa na onye isi oche onye isi oche nke CardioAlianza, nzukọ mbụ na Spain maka ndị nwere ọrịa obi. N'ịbụ onye zụrụ azụ dị ka onye ọka iwu, ọ bụ akụkụ nke kọmitii onye isi nke Pro Bono Spain Foundation kemgbe 2021, ụlọ ọrụ na-ejikọta ọnụ ụlọ ọrụ iwu bụ isi ma na-ahụ maka ịkwado ohere ịnweta Iwu na ikpe ziri ezi maka ndị NGO. Nwanne Amaya nwere nwa nwoke nwere CHD dị mgbagwoju anya.
Bistra Zhelev
Bistra bu onye osote onye isi oche nke Global Strategy and Advocacy na Children's HeartLink. Ọ bụ ọkachamara mmepe mba ụwa nke nwere ihe ruru afọ 20 na mmemme mmemme na nkwado maka nnweta nnweta nlekọta maka ụmụaka chọrọ ọrụ gbasara ụmụaka. Ọ na-eduzi mgbalị ndị a na-emekọ ihe n'ọtụtụ ntọala ụwa na ọdịbendị na ìgwè dị iche iche nke ndị nwere mmasị ma nwee ihe ọmụma miri emi n'akụkụ niile nke njikwa NGO na usoro ahụike. Kemgbe afọ 2003, ahụmịhe ya na Children's HeartLink akpọrọla ya gaa n'ọtụtụ mba gburugburu ụwa na-eme ya onye nkwado siri ike maka mkpa ụmụaka nwere ọrịa obi.
Dọkịnta Vikas Desai
Dr. Desai bụ onye dọkịta na-arụ ọrụ ahụike ọha na eze ruo afọ 45. Ugbu a ọ bụ onye isi ọrụ teknụzụ, Ahụike Urban na Climate Resilience Center nke Ọkachamara na Sura City, Gujarat State, India. Ọ bụ onye isi oche nke ntụkwasị obi e debara aha "National Institute For Woman and Child Development (NIWCD)" yana site na atụmatụ ya NIWCD malitere "Child Heart Care Project (CHCP)" na 2002. Ọ bụ onye nhazi teknụzụ nke ọrụ nke CHCP. Na 2005 na usoro nkwado nke CHCP nke ọgwụgwọ n'efu nke CHD nke ụmụaka si n'okpuru ịda ogbenye ka gọọmentị steeti bidoro nke bụzi ọrụ gbanwere n'okpuru Rashtriy Balsuraksha Karyakram (Mmemme Nchedo Nwatakịrị Mba).
Nahimeh Jaffar nwere rụrụ ọrụ dị ka onye njikwa ọrụ ikike (PMP) na mpaghara dị iche iche, gụnyere Ahụike Ọha, Biotech, na Pharmaceuticals, na-arụ ọrụ n'ime ntọala ụlọ ọgwụ dị ka ụlọ ọgwụ na ụlọ ọgwụ. Na mgbakwunye, ọ na-arụ ọrụ na obodo zuru ụwa ọnụ na Africa, Caribbean, na Middle East, na-akwado ọrụ dị iche iche metụtara mmekọrịta mmadụ na ibe ya. Nwada Jaffar etinyela aka na atụmatụ ahụike mgbochi mgbochi yana mmekorita ya na Center for Disease Control (CDC, USA) na Center for Medicare and Medicaid Services (CMS, USA).
Nwada Jaffar jide MBA na Business Development si Switzerland Institute of Higher Management, Vevey, Switzerland, na nzere bachelọ na Consumer Affairs si California State University, Northridge, USA.
