Together, we aim to reach 500,000 lives annually and position childhood-onset heart disease
at the forefront of global health discussions by 2030.
Childhood-onset heart disease is one of the world’s hidden health crises. It leads to preventable deaths, disabilities, and lifelong challenges for countless babies, children, adults, and families. At Global ARCH, we are committed to changing this narrative. Together, we are working to ensure that everyone impacted by childhood-onset heart disease—no matter where they live—has access to the care, support, and opportunities they need to thrive.
Through Invisible Hearts, Collective Action, we are turning vision into action. By equipping patient and family organizations with the knowledge, tools, connections, and resources they need to advocate and lead, and by aligning our efforts with key Sustainable Development Goals (SDGs), we are building a global movement for lasting change. This initiative invites healthcare providers, policymakers, funders, and other stakeholders to join us in creating a world where every person impacted by childhood-onset heart disease lives a life unlimited by their condition.
Our Current Impact
Our dashboard will be launching soon, offering a closer look at the collective impact we’re making together. Stay tuned for updates!
How We Plan to Achieve Our Vision
Expand Global Reach and Access
Collectively support 500,000 lives annually through 150 patient- and family-led organizations across 75 countries and equipping them with resources, services, and support.
Mobilize Advocacy & Drive Policy Change
Empower 500 advocates to drive meaningful change, initiate 50 awareness campaigns, and engage policy-makers to elevate childhood-onset heart disease on the global health agenda.
Foster Meaningful Partnerships for Impact
Forge 30 meaningful partnerships with key organizations to amplify impact through shared goals and policy improvements.
Empower and Train Local Leaders
Deliver 50 training sessions to build a strong network of skilled leaders, fostering collaboration among patients, families, clinicians, industry leaders, donors, and other stakeholders to drive sustainable change.
Heart Voices: Stories That Unite Us
Through the stories of patients, families, and the medical community, we bring to light the challenges and triumphs of childhood-onset heart disease. These voices amplify resilience, fostering collective action that drives change and inspires us all in our mission.
Our Commitment to Equity: Every Heart Deserves a Chance
Health equity isn’t just a goal—it’s at the core of everything we do. By partnering with local organizations and advocating for global policy change, we are closing healthcare access gaps for those who need it most.
Our programs ensure that no child or adult living with childhood-onset heart disease, including CHD and RHD, is denied the care they deserve because of where they live, their socioeconomic status, or other barriers.
We focus on:
- Lifting up voices that matter most: Patients and families are at the center of the conversations and decisions shaping their care.
- Reaching underserved communities: From remote villages to overlooked urban centers, we work with partners to bring vital support and services closer to home.
- Driving meaningful, lasting change: Through advocacy for equity-focused policies, we help transform healthcare systems so that quality care is accessible to everyone.
This work is about more than closing gaps—it’s about creating opportunities, delivering hope, and building a future where every person with childhood-onset heart disease can thrive.
