Global Arch unites and empowers CHD & RHD organizations around the world

Our Declaration

We believe that every person affected by childhood-onset heart disease has the right to receive all needed services to reach their full potential. We are asking our members and the CHD/RHD community to please sign our Declaration.

About Us

Our alliance brings together organizations from around the world to learn, collaborate, and speak out together about the unmet needs of those living with heart conditions that begin in childhood.

Learn More

Learn more about CHD and RHD and how it affects people worldwide, and watch our Global ARCH LIVE webinars on a wide variety of topics. As well, you will find educational material and useful links – and we’re always adding more.

Recent Posts

Global ARCH

Spain’s Menudos Corazones Foundation “Day of Visibility”

On May 21, Menudos Corazones Foundation organized the “Day for the Visibility” to recognize the rights of people with congenital heart disease and their families, at the Congress of Deputies in Madrid, Spain. At the event they launched “Menudos Corazones – Decalogue for patients with congenital heart disease and their families”, with the following 10 goals

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Global ARCH

Why a Global Coalition Matters: One Mother’s Story

Tendai Moyo, founder of Brave Little Hearts Zimbabwe, is an active member the Global ARCH Board of Directors. She joined to help raise awareness about congenital heart disease (CHD) and the devastating impact it can have on families struggling to find lifesaving medical care for their babies with CHD. A race against time to save

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Global ARCH

“CHD is real and so are we”: Brave Little Hearts South Africa

Brave Little Hearts South Africa (BLHSA) is a support and advocacy group for parents of children with congenital heart disease (CHD). BLHSA strives to raise awareness of CHD by facilitating and implementing support programmes for families with CHD, and advocacy by creating platforms in the medical field for engagement concerning critical CHD matters. BLHSA also

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Global ARCH

Ollie Hinkle Heart Foundation – Coming Together to Transform Lives

What is the main goal of the Ollie Hinkle Heart Foundation? OHHF’s central goal focuses on the Take Heart Initiative to cultivate an equitable standard of care that centers the voices of every person and family affected by childhood onset heart disease in collaboration with clinicians and health systems by empowering and educating caregivers, building

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Global ARCH

Honoring Noemi’s Legacy to Global ARCH

One year ago, Global ARCH lost a guiding light. Noemi de Stoutz was a trailblazer and dedicated champion of CHD advocacy and support. Born in Switzerland with complex CHD, Noemi survived far beyond expectations. Despite her limitations, she spent her life helping others as a palliative oncology physician. She was forced to retire early due

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News

Global ARCH attends PEN-Plus regional strategy to address severe NCDs in Africa

In April, Global ARCH Executive Director Kate Doherty-Schmeck and Board member Ruth Ngwaro attended the inaugural international conference on the PEN-Plus regional strategy in Dar es Salaam, Tanzania to address severe and chronic non-communicable diseases (NCDs). Health experts, survivors, and leaders advanced discussions on ending NCDs. They gathered with health ministries, African country leaders and health ministry

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World Birth Defects Day webinar: Working together to build a common voice

In a landmark show of solidarity, five patient organizations representing people with congenital anomalies joined the World Health Organization and U.S. Centers for Disease Control and Prevention for a webinar in celebration of World Birth Defects Day. Addressing Birth Defects Inequities – Prevention, Lifesaving, and Lifelong Care, presented on March 4, aimed to raise awareness

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Heart Month & CHD Awareness Day 2024

Heart Month and CHD Awareness Week were a buzz of activity, and we shared as much as we could on our social media channels! Here are just a handful, as well as a short video we created. Thank you to all of our member organizations for sending, and showing off, your amazing campaigns.

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Donate Now

Together we can help organizations worldwide make a difference in the lives of children and adults with CHD and RHD, and their families. Please donate today.

ADANEC
Mexico
CHD Malaysia
Malaysia
Camp Odayin
United States
Conquering CHD
United States
Cuore Matto
Switzerland
Grupar BR
Brazil
Heart Children
Ireland {Republic}
Herznetz.Ch
Switzerland
Hole in the Heart
United States
JEMAH e.V.
Germany
Let It Echo Inc.
Philippines
Mending Kids
United States
Sisters by Heart
United States
Siut
Pakistan
Surgeons of Hope
United States
Team Heart, Inc.
United States
The Heart Chamber
United States
Zipper Sisters
United States

Join Us

Join our global network of CHD and RHD organizations so we can all work together to improve the lives of children and adults with heart disease that begins in childhood.

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Nahimeh Jaffar 

Nahimeh Jaffar has worked as a certified Project Manager (PMP) in various fields, including Public Health, Biotech, and Pharmaceuticals, working within clinical settings such as hospitals and clinics. In addition, she worked with global communities in Africa, the Caribbean, and the Middle East, supporting various social impact projects. Ms. Jaffar has been involved in preventive health initiatives in collaboration with the Center for Disease Control (CDC, USA) and the Center for Medicare and Medicaid Services (CMS, USA).

 

Ms. Jaffar holds an MBA in Business Development from the Swiss Institute of Higher Management, Vevey, Switzerland, and a bachelor’s degree in Consumer Affairs from California State University, Northridge, USA.

Amy Verstappen, President

Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world.  Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.