Introducing Global ARCH’s Executive Board: Leading the Charge into 2025
We are thrilled to introduce Global ARCH’s newly elected Executive Board—a team of inspiring leaders guiding us into 2025 in partnership with our Executive Director:
• Chair: Amaya Sáez – General Manager of Menudos Corazones Foundation and co-founder of CardioAlianza, Amaya is a tireless advocate inspired by her nephew’s journey with CHD.
• Vice Chair: Anu Gomanju – A passionate advocate from Nepal living with RHD, Anu champions healthcare access and empowers those with chronic illnesses.
• Treasurer: Blanca del Valle – A leader in health and philanthropy, Blanca has transformed CHD care in Mexico and drives impactful global change.
• Secretary: Bistra Zheleva – Vice President of Global Strategy at Children’s HeartLink, Bistra has spent two decades improving pediatric cardiac care worldwide.
A Message from Our New Chair- Amaya Saez
“It is a privilege to serve as Board Chair during such an important time for Global ARCH. While the challenges ahead are significant, they also present incredible opportunities. Together, we will empower patient and family organizations, strengthen partnerships, and make childhood-onset heart disease a global priority. With collaboration and shared determination, I am confident we can achieve meaningful change and build a brighter future for all.”
Under this dynamic leadership, Global ARCH is thrilled about our new initiative, Invisible Hearts, Collective Action—a bold and transformative step toward a brighter future for those impacted by childhood-onset heart disease. Together, we’re addressing key challenges in 2025:
• Advocating for childhood-onset heart disease on global health agendas to ensure no one is ever overlooked
• Engaging patient and family groups meaningfully, amplifying their voices to create lasting, real change
• Strengthening our global network and community to harness the true power of collective action
Invisible Hearts, Collective Action is not just an initiative—it’s a global movement. It unites patients, families, advocates, and leaders worldwide to break barriers, build lasting partnerships, and ensure every person affected by childhood-onset heart disease has access to the care they need.
We are energized by this new chapter and inspired by the strength, resilience, and passion of our global community. Let’s work together to turn this vision into reality and create a legacy of change for generations to come.
