Siyakholelwa ekubeni wonke umntu ochaphazeleka sisifo sentliziyo esivela ebuntwaneni unelungelo lokufumana zonke iinkonzo eziyimfuneko ukufikelela kumandla abo apheleleyo. Sicela amalungu ethu kunye noluntu lwe-CHD / RHD ukuba basayine iSibhengezo.
Umanyano lwethu luzisa imibutho evela kwihlabathi liphela ukuze ifunde, isebenzisane, kwaye ithethe kunye ngeemfuno ezingafezekiswanga zabo baphila ngeemeko zentliziyo eziqala ebuntwaneni.
Funda ngakumbi malunga ne-CHD kunye ne-RHD kunye nendlela echaphazela ngayo abantu kwihlabathi liphela, kwaye ubukele eyethu Global ARCH HLOLA ii-webinars kwizihloko ezahlukeneyo. Kananjalo, uya kufumana izinto zokufunda kunye namakhonkco aluncedo- kwaye sihlala sisongeza ngakumbi.
1. Ungacebisa ntoni kubazali babantwana be-CHD xa kuziwa ekwakhiweni kokuqina ukuze imiba yempilo yengqondo iqwalaselwe kwangethuba? Ndingathanda ukuqala nditsho ukuba ndinentlonipho enkulu kubazali kunye nabanonopheli babantwana abane-CHD - ndiyaqaphela indlela amava abo anoxinzelelo ngayo.
Ekuqaleni kukaJuni iBrave Little Hearts Zimbabwe ithathe inxaxheba kuMboniso wethu weSizwe woShishino loLutsha, njengoko sijonge ekusekeni iiprojekthi ezizinzileyo zokunceda uluntu lwethu lufumane inkululeko yezemali. Oku kubaluleke kakhulu kuba abaxhasi kunzima ukufumana, kwaye umthwalo wemali woluntu lwentliziyo mkhulu kakhulu. Injongo yethu kuku
NdinguBelen Blanton, uMongameli we-Estrellita de Belen Foundation. Ndazalwa ndinengxaki yokuzalwa yentliziyo ebizwa ngokuba yi-tricuspid atresia ebangela ukuba ndiphathwe yi-Eisenmenger Syndrome. Ngoku ndinikezela ngobomi bam ukuze ndilwele abantwana abaneziphene zentliziyo endazalelwa kuzo kwilizwe lam laseVenezuela. Imeko kwilizwe lam ingaphezu kwama-4,000
Ukuthelekiswa nemeko xa kuvuthuza umoya kwaye sifumana iingcinga ezingahleliwe, ngokufanayo iimvakalelo zomntu zenziwa zizinto zangaphandle. Amabala oluntu ngandlel 'ithile ayasiphazamisa; ukusihambisa kude neendlela zethu ezicwangcisiweyo. Nangona ubomi buzele kukungaqiniseki, sikholelwa ekubeni sihamba phambili ekwenzeni izigqibo. Ukungahoyi inyani yokuba
Le Veki yokuZalwa kwentliziyo yoKuzalwa (ngoFebruwari 7-14) "Ndibhiyozela" ebhedini yam kwisibhedlele esikufutshane nedolophu yaseToronto. Ndilapha amaxesha amaninzi kwiinyanga ezili-11 ezidlulileyo, kuba kanye ngaphambi kokuba sibambe iqhosha le-COVID-19. Isiphene sentliziyo yam, esibizwa ngokuba yi-tetralogy of Fallot, saqala sabangela ukuba intliziyo yam ibethe ngokukhawuleza kangangokuba ingathi ndinayo
Global ARCH uyavuya ukwazisa ukuba udibanise kwaye uvumele iphepha elibalulekileyo lemvumelwano, elipapashwe kwi-European Society of Cardiology's European Heart Journal. Eli nqaku lichaza imiba kunye nezenzo zenguqu kunye nokudluliselwa kwabakwishumi elivisayo abanesifo senhliziyo sokuzalwa. Global ARCH idlale indima ebalulekileyo ekufuneni amaqela nasekufuneni ingxelo rhoqo
Umsunguli we-CHD Malaysia kunye Global ARCH Ilungu lebhodi uGrace Jerald, ngokubambisana ne-Children's HeartLink kunye ne-Malaysian Pediatric Cardiac Society (MPCS), ibambe ii-webinars zokuqala zemfundo ezinezigulana nezosapho. Ukurekhoda ngoku kuyafumaneka kwiYouTube ngokunqakraza APHA.
Sijonge ngokutsha, kunye neempawu ezintsha eziza kwenza ukuba iwebhusayithi yethu isebenze ngakumbi kwaye isebenze kubaphulaphuli behlabathi. Ngoku onke amaphepha anokuguqulelwa kwiilwimi ezahlukeneyo kusetyenziswa isixhobo sokuguqula phezulu ephepheni (kwikhompyuter) okanye ezantsi kusetyenziswa iselfowuni.
Sisonke singanceda imibutho kwihlabathi liphela yenze umahluko kubomi babantwana kunye nabantu abadala abane-CHD kunye ne-RHD, kunye neentsapho zabo. Nceda unikele namhlanje.
Joyina uthungelwano lwehlabathi lwe-CHD kunye nemibutho ye-RHD ukuze sonke sisebenze kunye ukuphucula ubomi babantwana kunye nabantu abadala abanesifo sentliziyo esiqala ebuntwaneni.
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