1. Ungacebisa ntoni kubazali babantwana be-CHD xa kuziwa ekwakhiweni kokuqina ukuze imiba yempilo yengqondo iqwalaselwe kwangethuba?
Ndingathanda kuqala ukuthi ndibahlonipha kakhulu abazali kunye nabanonopheli babantwana abane-CHD - ndiyaqaphela ukuba amava abo anokuba noxinzelelo kangakanani kwaye ndingabakhuthaza ukuba bazifunele inkxaso njengoko kuyimfuneko. Ndincoma ukugcina imizila yonxibelelwano ivulekile, ukwenzela ukuba abantwana bazive bekhululekile ukuza kubantu abadala kunye nazo naziphi na iinkxalabo zengqondo okanye intlalontle enokuthi ivele, zombini ezinxulumene kwaye ezingahambelani nempilo. Kubalulekile ukunqanda ukujongela phantsi izinto ezixhalabisa abantwana okanye ukwenza izithembiso ezingeyonyani (umzekelo, ngokuthetha izinto ezinjengokuthi “ungazikhathazi ngayo” okanye “Ndiyathembisa ukuba yonke into iza kulunga.”)

Kwakhona, kutshanje ndiye ndazi nge INKXASO imigangatho esekelwe kumalungelo kubantwana abaneenkqubo zokhathalelo lwempilo. Kukuqonda kwam ukuba ezi bezijoliswe ikakhulu kubasebenzi bezempilo. Nangona kunjalo, ndicinga ukuba babonelela ngesakhelo esihle kubazali kunye nabanonopheli abanqwenela ukuxhasa impilo yabantwana ngokwasemzimbeni nangokwengqondo kwimeko yezonyango.

2. Zeziphi ezinye zezinto ezinokuthi zibe negalelo kwiingxaki zempilo yengqondo kubantu abane-CHD?
Into yokuqala endinokuyithetha kukuba abantu abane-CHD bajongana nemingeni efanayo ngokwasengqondweni abantu abangenayo i-CHD abajongana nayo - izinto ezifana nobudlelwane, isikolo, ingqesho, uxinzelelo lwezemali, ucalucalulo, njl.

Baphinde bajongane ne-CHD-specific stressors enokuthi ibe yinto engapheliyo kunye / okanye iziganeko ezinkulu zobomi. Uxinzelelo olungapheliyo zezo zenzeka rhoqo okanye rhoqo - njengokukhathala okanye ezinye iimpawu zomzimba eziphazamisa imisebenzi ekhethwayo, ukusela amayeza imihla ngemihla, okanye ukuqeshwa kwezonyango eziphazamisana nezinye izinto eziqhubekayo ebomini bomntu. Iziganeko ezinkulu zobomi zenzeka kancinci, kodwa zinokuba nempembelelo enkulu xa zisenzeka - imizekelo ibandakanya utyando okanye enye inkqubo enkulu yonyango, ukufakelwa kwesixhobo sentliziyo, okanye ukulaliswa esibhedlele. Siyazi ukuba amava angathandekiyo obuntwana kunye namava okufikisa, omabini anxulumene kwaye anganxulumananga nempilo, anokuchaphazela abantu kubo bonke ubomi babo.

3. Inkxaso yempilo yengqondo kunokuba nzima ukuyifumana.Ngaba iqela lokhathalelo lwe-CHD linokunceda kule ndawo, kwaye ngoobani abazali babantwana be-CHD, okanye abantu abadala be-CHD, bathethe naye?
Ngokuqinisekileyo ndincoma ukuthetha neqela le-CHD lomntu kwiingcebiso zokuthunyelwa. Ndithethelela ngamandla ukudityaniswa kweengcali zempilo yengqondo kumaqela e-CHD, nangona ngelishwa ingeyiyo into eqhelekileyo…okwangoku! Nangona kunjalo, amaqela e-CHD anokwazi ngabasebenzi bezempilo yengqondo kuluntu abanamava okusebenza nabantu kunye neentsapho ezichatshazelwe yi-CHD. Iingcali zokhathalelo olusisiseko nazo zihlala ziluncedo kwimithombo yokudlulisela.

Ndiyakholelwa kwakhona kwi-advocacy edibeneyo yamazwi ezigulane kunye neentsapho ezine-CHD. Ndicinga ukuba okukhona izigulane kunye neentsapho zithethelela iimfuno zabo zempilo yengqondo, kokukhona kunokwenzeka ukuba iinkqubo ze-CHD ziya kuphuhlisa iindlela zokhathalelo lwempilo yengqondo. Ndiyabona ukuba icandelo le-CHD lihamba kwicala lokwamkela impilo yengqondo njengenxalenye ebalulekileyo yeziphumo ze-CHD.

Iprojekthi yeNdlela yeNdlela, egxile kwimpilo yengqondo yabantwana, abakwishumi elivisayo, kunye nabantu abadala abaneemeko zempilo ezingapheliyo, inezixhobo ezininzi ezigqwesileyo, kubandakanywa nePDF ekhutshelweyo 'ekukhetheni ugqirha' ekhoyo. APHA.

4. Ngaba kukho izinto ezithile ezinokwenziwa zizigulane ze-CHD ukunciphisa amathuba okuba nengxaki yokuxhalaba kunye/okanye nokudakumba?
Kukho izicwangciso zokuzinyamekela ezinokuba luncedo njengeendlela zokuthintela (oko kukuthi, ukunciphisa amathuba okuba kuvele iingxaki zempilo yengqondo) kunye nezicwangciso xa kuvela iinkxalabo zengqondo. Sibandakanya uluhlu lwemizekelo yezicwangciso zokuzinyamekela kwinqaku lethu kwizigulana kunye neentsapho:

• Yiba nezakhono ezifanelekileyo zokulala kunye nenkqubo yokulala engaguqukiyo
• Yitya ukutya okusempilweni
• Hlala usempilweni (kulungile ukucela iingcebiso kwiqela le-CHD malunga nokwenza umthambo)
• Gcina ucwangciso oluthe rhoqo (umzekelo, isikolo, umsebenzi, izinto ozithandayo, umsebenzi wokuzithandela)
• Sebenzisa iindlela zokuphumla (umzekelo, umthambo wokuphefumla, ukucamngca)
• Yenza isantya ngokwakho (musa ukuyigqithisa 'ngeentsuku ezilungileyo')
• Gxininisa kumandla kunye noko ubani anokukwenza
• Cela umngeni uloyiko ngengxoxo evulekileyo nosapho, abahlobo, kunye neqela lezonyango
• Cwangcisa imisebenzi eyonwabisayo
• Sebenzisa ukuzincokolela okuluncedo (Buza: Ndingathini kumhlobo wokwenene kule meko?)
• Qhagamshelana nosapho oluxhasayo kunye nabahlobo
• Qhagamshelana nabanye abane-CHD ngokusebenzisa isibhedlele okanye amaqela enkxaso kwi-intanethi

5. Xa ukhangela uncedo lwempilo yengqondo, ngaba kukho ukungafani kwiintlobo zeengcali kunye noko banikezelayo? Zeziphi ezona nkalo zibalulekileyo ekufuneka ziqwalaselwe?Kukho iintlobo ezahlukeneyo zeengcali zempilo yengqondo. Olu luluhlu olulungiselelwe ngaphambili iqela lethu lokubhala:

Zeengqondo: oogqirha abangengoogqirha abajongene nempilo yengqondo, bagxininise kwi-psychotherapy kunye / okanye uvavanyo lwe-neurodevelopmental / neurocognitive, kwaye musa ukumisela amayeza.
Ingqondo: oogqirha bezonyango abaziingcali kwimpilo yengqondo kwaye banokumisela kwaye babeke iliso kumayeza.
Oonontlalontle bekliniki: oonontlalontle abanoqeqesho olongezelelweyo kwi-psychotherapy.
Abongikazi bempilo yengqondo kunye nabongikazi abasebenza ngengqondo
Abacebisi abaqeqeshiweyo abanelayisensi
Abatshatileyo kunye nengcali yosapho 

Xa ukhangela unyango lwempilo yengqondo, kubalulekile ukuthathela ingqalelo izinto ozikhethayo – nokuba umntu ukhetha unyango lwengqondo (“unyango lokuthetha”) okanye ukhangela ugqirha oza kumnika amayeza. Into esebenzayo ibandakanya ukufikelela kunye nokufumaneka kweengcali zempilo yengqondo. Kuxhomekeka kwilizwe likabani kunye nobutyebi bomntu bobuqu, ukhathalelo lwempilo yengqondo lunokuba simahla kwinkqubo kawonke-wonke, ubani unokusebenzisa i-inshorensi yezempilo ukufikelela kuyo, okanye usenokuhlawula epokothweni.

Nangona kungenakwenzeka ukusebenzisana neengcali zempilo yengqondo kunye namava e-CHD, ndincoma ukusebenza noogqirha abanamava okusebenza nabantu abaneemeko zempilo ezingapheliyo xa kunokwenzeka.

6. Kukho ulwazi oluninzi malunga nama-antidepressants kunye namayeza okulwa nokukhathazeka. Ngaba ungathetha kancinci malunga nokuba zingamfanela nini umntu one-CHD.

Njengoko ndingengogqirha wengqondo okanye ugqirha wezonyango, andikunikezeli amayeza. Nangona kunjalo, iqela elibhalayo leNgxelo yethu yeNzululwazi laliquka oogqirha abane, ababini kubo ngoogqirha bengqondo. Bahlanganisa itafile eluncedo ngokwenene eshwankathela iiklasi ezahlukeneyo zamayeza e-psychotropic (yesimo sengqondo kunye nokuphazamiseka kokukhathazeka, ukuphazamiseka kwengqondo, okanye iimpawu zengqondo) kunye neengqalelo ezizodwa kubantu abane-CHD. Ukuba bendinesigulana esinomdla malunga nokuthatha elinye lala mayeza, ngenene bendiya kuthatha ikopi yale tafile yephepha elinye kunye nam ukubonisa ugqirha wengqondo / ugqirha!

https://www.ahajournals.org/doi/epub/10.1161/HCQ.0000000000000110

Unokufikelela kwinqaku lokuqala le-American Heart Association APHA.

Inqaku lesigulana / elilungele usapho liyafumaneka APHA.

UMBULELO omkhulu kuGqr. Kovacs ngokwabelana nathi ngobuchule bakhe!