Sikholelwa ukuthi wonke umuntu othintekayo yisifo senhliziyo esiqala ebuntwaneni unelungelo lokuthola zonke izinsizakalo ezidingekayo ukufinyelela ezingeni eliphelele. Sicela amalungu ethu kanye nomphakathi we-CHD / RHD ukuthi basayine iSimemezelo sethu.
Umfelandawonye wethu uhlanganisa izinhlangano ezivela emhlabeni wonke ukuthi zifunde, zisebenzisane, futhi zikhulume ndawonye ngezidingo ezingagcwaliseki zalabo abaphila nezimo zenhliziyo eziqala ebuntwaneni.
Funda kabanzi nge-CHD ne-RHD nokuthi ibathinta kanjani abantu emhlabeni wonke, futhi ubuke eyethu Global ARCH BUKA ama-webinar ngezihloko ezahlukahlukene. Futhi, uzothola okokufunda nezixhumanisi eziwusizo - futhi sihlala sengeza okuningi.
Ngomhla zingama-21 kuNhlaba, iMenudos Corazones Foundation yahlela “Usuku Lokubonakala” ukuze kuqashelwe amalungelo abantu abanesifo senhliziyo abazalwa nabo kanye nemindeni yabo, eNgqungqutheleni Yamasekela eMadrid, eSpain. Emcimbini wethule i- "Menudos Corazones - I-Decalogue yeziguli ezinesifo senhliziyo sokuzalwa kanye nemindeni yazo", nemigomo elandelayo ye-10
Ngatholakala ngine-rheumatic heart disease ngo-2001 lapho ngineminyaka engu-11 ubudala. Ngemva kokuqubuka kwe-tonsillitis, ngaqala ukuba nezimpawu ze-rheumatic fever. Ubuhlungu bomphimbo obubangelwa yi-tonsillitis buphenduke ubuhlungu besifuba, ubuhlungu bamalunga, ukukhathala okungapheli, ukuphelelwa umoya, ukushaya kwenhliziyo okukhuphukayo, nokuvuvukala kwezandla nezinyawo. Ngathuthuka
Global ARCH idlale indima ebalulekile ku-World Health Assembly Side Event e-Geneva, isebenzisana nezinhlangano ezihlangene ukwethula “I-Congenital Anomalies and Universal Health: Singashiyi Umuntu Ngemva”. Bistra Zheleva, Global ARCH ilungu lebhodi, kanye nePhini likaMongameli weGlobal Strategy and Advocacy at Children's HeartLink, bethule umcimbi oseceleni bethi, “Sikhona
Ngo-Ephreli, Global ARCH UMqondisi Omkhulu u-Kate Doherty-Schmeck kanye nelungu leBhodi u-Ruth Ngwaro bathamele umhlangano wokuqala wamazwe ngamazwe wesu lesifunda le-PEN-Plus e-Dar es Salaam, e-Tanzania lokubhekana nezifo ezinzima nezingamahlalakhona ezingathathelaniyo (ama-NCD). Ochwepheshe bezempilo, abasindile, kanye nabaholi baqhubekisele phambili izingxoxo zokuqeda ama-NCD. Bahlangana nezinkonzo zezempilo, abaholi bamazwe ase-Afrika kanye nomnyango wezempilo
Ngokubambisana singasiza izinhlangano emhlabeni wonke ukuthi zenze umehluko ezimpilweni zezingane nabantu abadala abane-CHD ne-RHD, kanye nemindeni yabo. Sicela unikele namhlanje.
Joyina inethiwekhi yethu yomhlaba wonke yezinhlangano ze-CHD ne-RHD ukuze sonke sisebenze ngokubambisana ukwenza ngcono izimpilo zezingane nabantu abadala abanezifo zenhliziyo eziqala ebuntwaneni.
Nahimeh Jaffar ine wasebenza njengoMphathi Wephrojekthi (PMP) oqinisekisiwe emikhakheni eyahlukene, okuhlanganisa Impilo Yomphakathi, i-Biotech, kanye ne-Pharmaceuticals, esebenza ngaphakathi kwezilungiselelo zomtholampilo ezifana nezibhedlela nemitholampilo. Ngaphezu kwalokho, usebenze nemiphakathi yomhlaba wonke e-Afrika, e-Caribbean, naseMpumalanga Ephakathi, esekela amaphrojekthi ahlukene wezenhlalo. UNksz. Jaffar ubambe iqhaza ezinhlelweni zezempilo zokuvikela ngokubambisana neCentre for Disease Control (CDC, USA) kanye neCentre for Medicare and Medicaid Services (CMS, USA).
Ms. Jaffar uneziqu ze-MBA kuBusiness Development azithola e-Swiss Institute of Higher Management, e-Vevey, eSwitzerland, kanye neziqu ze-bachelor ku-Consumer Affairs azithola e-California State University, e-Northridge, e-USA.
U-Amy Verstappen ubengummeli wesiguli nomfundisi wezempilo kusukela ngo-1996, lapho izinselelo zakhe zokuphila nokukhubazeka kwenhliziyo eziyinkimbinkimbi zamholela ku-Adult Congenital Heart Association, lapho akhonza khona njengomongameli kusukela ngo-2001 kuya ku-2013. Usebenze njengomeluleki Izikhungo Zokulawulwa Kwezifo iNational Heart, Lung and Blood Institute; kanye ne-International Society for Adult Congenital Cardiac Disease, futhi wasebenza namaqembu eziguli zenhliziyo ezizelwe kanye nezobuchwepheshe kulo lonke elase-USA nasemhlabeni jikelele. UNksz Verstappen wathola iMasters in Education ngo-1990 neMasters kwi-Global Health ngo-2019.