Inkampani
Mission yethu
Umnqopho we-Global Alliance yeRheumatic and Congenital Hearts (Global ARCH) ukwenza ngcono imiphumela yokuphila emhlabeni wonke ezifweni zenhliziyo eziqala ebuntwaneni ngokunika amandla izinhlangano zeziguli nezomndeni. Ubulungu bukhululekile futhi buvulekele kunoma yiliphi iqembu elikhonza iziguli zenhliziyo ezizelwe kanye / noma ze-rheumatic nemindeni yazo. Umfelandawonye wethu uhlanganisa izinhlangano ezivela emhlabeni wonke ukuze zifunde, zisebenzisane, futhi zikhulume ndawonye ngezidingo ezingagcwaliseki zalabo abaphila nezimo zenhliziyo eziqala ebuntwaneni.
Umbono Wethu
Every person affected by childhood-onset heart problems receives the life-long care they need to live life unlimited by their disease.
Lokho Esikwenzayo
Siyaxhuma futhi siqinise Isifo senhliziyo esizelwe emhlabeni wonke kanye nezinhlangano zesifo senhliziyo esibizwa nge-rheumatic ngokusebenzisa ukuqeqeshwa kontanga, ukuthuthukiswa kobuholi, izinsiza zemfundo, nezingqungquthela zesifunda nezomhlaba jikelele.
Siyakhuluma ngamalungelo esifo senhliziyo azalwe naso kanye neziguli zenhliziyo i-rheumatic ngokusebenzisa i Umkhankaso Wamalungelo nangokukhuthaza nokuxhasa ukwethulwa kweziguli nokuholwa ngumndeni
Siyafundisa iziguli nemindeni yazo, ochwepheshe, nezinhlangano ezisiza abantu ngezidingo zomhlaba wonke zesifo senhliziyo esizalwa naso kanye neziguli ezinesifo senhliziyo esibuhlungu kanye nezindaba ezibaluleke kakhulu emiphakathini yethu.
Siyabambisana nezinhlangano ezinolwazi nezokusiza ukuze zinikeze usizo olungcono kuwo wonke umuntu othintekayo yisifo senhliziyo esiqala ebuntwaneni.
Amaqiniso Asheshayo
- Unyaka nonyaka zingu-1.3 million izingane ezizalwa zinesifo senhliziyo esizalwe naso (CHD). [1]
- Oyedwa kwabane uzofa ngaphandle kokungenelela ngokushesha [2] futhi abaningi abaningi bazodinga ukuhlinzwa ebuntwaneni ukuze bafinyelele eminyakeni engu-18. Kodwa izingane ezingama-90% zomhlaba azikwazi ukufinyelela ekunakekelweni kwenhliziyo. [3]
- Emiphakathini eminingi ebincishwe amathuba, izifo ezingalashwa nazo zingadala isifo senhliziyo i-rheumatic heart (RHD). [3]
- I-RHD yinkinga yenhliziyo yezingane ejwayelekile emazweni amaningi ahola kancane. Emhlabeni jikelele kunabantu abalinganiselwa ezigidini ezingama-33 abaphila ne-RHD. [4]
- Zombili iziguli ze-CHD ne-RHD zidinga ukunakekelwa kwenhliziyo okukhethekile impilo yazo yonke ukugcina izinhliziyo zazo ziphilile. Ngisho namazwe anokunakekelwa kwenhliziyo ebuntwaneni okuhle kakhulu ahlala elwela ukunakekela lezi ziguli njengoba zikhula.
- Sidinga usizo lwakho ukuqinisekisa ukuthi wonke umuntu onesifo senhliziyo esiqala ebuntwaneni uthola ukunakekelwa akudingayo ukuze aphile impilo ende futhi enempilo
Okubhekwayo
- van der Linde, D., Konings, EE, Slager, MA, Witsenburg, M., Helbing, WA, Takkenberg, JJ, & Roos-Hesselink, JW (2011). Ukusabalala kokuzalwa kwesifo senhliziyo esizelwe emhlabeni wonke: ukubuyekezwa okuhlelekile nokuhlaziywa kwemeta. Ijenali yeAmerican College of Cardiology, 58 (21), 2241-2247.
- UMoller JH, uTaubert KA, u-Allen HD, uClark EB, uLauer RM. Impilo yenhliziyo kanye nezifo ezinganeni: isimo samanje. Iqembu Elikhethekile Lokubhala elivela kuTask Force on Children and Youth, i-American Heart Association. Ukusakazwa kuka-1994; 89 (2): 923-930.
- UCarapetis JR, uSteer AC, uMulholland EK, uWeber M. Umthwalo womhlaba wonke wezifo zeqembu A ze-streptococcal. ILancet Infect Dis 2005; 5: 685-694.
- Watkins DA, Johnson CO, Colquhoun, SM, Karthikeyan G, Beaton A, Bukhman G, et al. Umthwalo womhlaba wonke, wesifunda nowesizwe wezifo zenhliziyo i-rheumatic, 1990-2015. N Engl J Med 2017; 377: 713-722.
Umlando wethu
I-Global Alliance Yezinhliziyo Zamathambo Nezelwe (Global ARCH) kwaqala ngeqembu elinombono wezifo zenhliziyo ezizelwe kanye nabaholi besifo senhliziyo i-rheumatic, ngamunye ethinteka ngqo yisifo senhliziyo esiqala ebuntwaneni. Babelane ngombono wokuguqula isifo senhliziyo esizelwe emhlabeni wonke kanye nemiphumela yesiguli senhliziyo yenhliziyo ngokunika amandla izinhlangano eziholwa iziguli nezomndeni.
Ehlobo lika-2017, babiza eyokuqala Ingqungquthela Yamazwe Ngamazwe Yobuholi Benhliziyo (ICHLS), eyahlanganisa abaholi abangu-30 besifo senhliziyo abazalwa nabo kanye nabaholi besifo senhliziyo esibuhlungu abamele amazwe angu-21 emazwekazini ayisithupha. Ukuze kwakhiwe izwi eliqinile egameni lesifo senhliziyo esizalwa naso kanye neziguli nemindeni enesifo senhliziyo, ababambiqhaza bavumelana ngazwi linye ukusungula inhlangano entsha, ezimele engenzi nzuzo ebizwa ngokuthi i-Global Alliance for Rheumatic and Congenital Hearts (Global ARCH). Umbono ohlangene we Global ARCH ukwenza ngcono nokwelula impilo yazo zonke izingane zenhliziyo nabantu abadala - noma ngabe bazalelwaphi.
Yabelana ngaleli khasi
