Global ARCH webinars

Global ARCH / Funda kabanzi / Global ARCH webinars

I-Webinars ezayo

February 2, 2024 at 9 a.m. EST:  Leaders’ Forum 

We will start off with a Global ARCH update and then open it up to hear your questions, concerns, and ideas.  A reminder that our monthly Inkundla yabaholi is a fantastic opportunity to learn from others, to give and get support, and to share ideas. It’s a great way to network too! The sessions are open to all Global ARCH abaholi benhlangano yamalungu, futhi babanjwe NgoLwesihlanu wokuqala wenyanga ngo-9 am EST ku-Zoom. Video and call-in options are available for most countries. Registration is required.

Ama-Webinars adlule

Disemba 1 ngo-9 am EST:  Global ARCH BUKHOMA: Inhliziyo Ecwaswayo kanye Nomphumela Wayo Empilweni Yengqondo Nomzimba

Hlanganyela nathi ukuze ufunde kabanzi mayelana nomthelela wokucwaswa ezigulini ezinesifo senhliziyo esiqala ebuntwaneni. Abantu abaningi abaqapheli ukuthi ukukhubazeka kokuzalwa kungaba nomthelela empilweni yomuntu yonke engokwengqondo nengokwenyama, okuhlanganisa namathuba omsebenzi, umshado nempilo yomndeni, kanye nokufinyelela ezinsizeni zezenhlalakahle. Izazi zethu zephaneli zizoxoxa ngokuhlangenwe nakho kwabo siqu nokucwaswa kanye nalokho kontanga yabo, futhi babelane ngemininingwane yokuthi kungani kwenzeka nokuthi yini engenziwa ngakho. Isethulo sizolandelwa yi-Q&A. Sicela ubhalise ngezansi.

Ama-Panelists: 

UMalin Berghammer, Umhlengikazi we-PhD, Umcwaningi, kanye nommeli wesiguli se-CHD ovela eSweden

UGrace Jerald, ummeli wesiguli se-CHD nomsunguli we-CHD Malaysia

Cecilia Ramirez, ummeli womzali wengane ye-CHD kanye ne-VP ye-Fundación Corazones Luchadores e-Chile

U-Appu K. George, ummeli wesiguli se-CHD ovela eNdiya

Josef Nashilongo, ummeli wesiguli se-RHD waseNamibia

Umongameli: UDkt. Edward Callus, PhD kumqeqeshi we-Clinical Psychology kanye ne-psychotherapy, eNyuvesi yaseMilan.pa

Juni 13 ngo-7 amEST: Global ARCH BUKHOMA: Ukuthuthukisa Ukungalingani Kwembulunga Yonke Ekunakekelweni Kwenhliziyo Kwezingane Nezazalwa nazo

Le webinar igqamisa umthwalo womhlaba wonke wezifo zesifo senhliziyo esizalwa naso kanye nesamathambo kanye nenselelo yokufinyelela ukwelashwa emazweni anemali engenayo ephansi naphakathi. Futhi yethula umkhankaso othi Call to Action, ozokwethulwa ku-8th World Congress of Pediatric Cardiology & Cardiac Surgery (WCPCCS) ngo-August, 2023. Abethuli bewebhu UBistra Zheleva, i-VP ye-Global Strategy and Advocacy, I-HeartLink Yezingane; UDkt. Jeffrey Jacobs, UProfesa Wokuhlinza Nezingane, iNyuvesi yaseFlorida, kanye noSihlalo onguCo-chair we-WCPCCS; UDkt. Kathy Jenkins, I-Senior Associate ku-Cardiology, uMnyango Wezenhliziyo, Umqondisi Omkhulu, Isikhungo Se-Applied Pediatric Quality Analytics, Isibhedlela Sezingane saseBoston, Uprofesa Wezingane, Isikole Sezokwelapha saseBoston. Amaphaneli amenyiwe UMnu Farhan Ahmad, i-CEO ye-Pakistan Children's Heart Foundation; UDkt. Sandra Mattos, Iyunithi Yenhliziyo Yomama-Ingane, Isibhedlela Sangempela AmaPutukezi, eBrazil, kanye Sreehari M. Nair, Umnyango Wezempilo Nenhlalakahle Yomndeni waseNdiya, Uhulumeni wase-Kerla, India. I-webinar ilawulwa ngu Amy Verstappen, UMongameli we Global ARCH.

Ephreli 26 ngo-10 am EST: Global ARCH BUKHOMA: Izidingo Zokunakekelwa Kwempilo Yonke Ze-CHD Elula

Ubuwazi ukuthi ngisho ne-CHD elula ingaba nezinkinga zempilo ezinkulu kamuva ekuphileni? Ucwaningo luye lwabonisa ukuthi lezi ziguli zisengozini enkulu kakhulu yokuhlaselwa yinhliziyo, isifo sohlangothi, ukuhluleka kwenhliziyo, i-arrhythmias, kanye nezinkinga ngesikhathi sokukhulelwa kunomphakathi jikelele. Hlanganyela nathi ukuze ufunde kabanzi mayelana nezidingo zokunakekelwa kwe-CHD impilo yonke kanye namathemba, okulandelwa izethulo ezivela e-India, kanye ne-Q&A. Inganyelwe ngu Global ARCH Umongameli Amy Verstappen. Okufakiwe UDkt. Sasha Opotowsky, Umqondisi, Uhlelo lwe-ACHD, Izingane zaseCincinnati, eBoston; UDkt. Navaneetha Sasikimuar, UProfesa Ohlangene, Isikhungo se-Med Sciences and Research Centre, i-Amrita Institute, eNdiya; UDkt. Francis Flynn-Thompson, Udokotela Ohlinza Inhliziyo Yezingane, Isibhedlela Sezingane saseBoston; UDkt Babar Hasan, USolwazi kanye noSihlalo, iSindh Institute of Urology and Transplantation (SIUT), Pakistan. Kwethulwa ngokubambisana ne I-HeartLink Yezingane, I-Heart University, Kanye I-International Society for Adult Congenital Heart Disease (ISACHD).

 

Novemba 9 ngo-10-11 am EST:  Global ARCH BUKHOMA: Ukukhuthaza inhlalakahle ku-CHD: Umbono womhlaba wonke

Ukuphila nesifo esibucayi sempilo yonke kungaholela ezinseleleni ezinkulu zempilo yengqondo. Funda kabanzi mayelana nalezi zinselele kubahlanganyeli bethu abane - uDkt. Laila Ladak, uprofesa ohlanganyele nomhlengikazi, Inyuvesi yase-Aga Khan ePakistan, kanye noDkt. Adrienne Kovacs, isazi sokusebenza kwengqondo emitholampilo kanye nombhali-ndawonye weSitatimende se-AHA mayelana Nemiphumela Yezempilo Yengqondo Nokungenelela. Kubantu abane-CHD. UDkt. Liza Morton, isazi sokusebenza kwengqondo kanye nesiguli se-CHD uhlanganyela no-Tracy Livecchi, usonhlalakahle kanye nesiguli se-CHD, ukuze baxoxe ngencwadi yabo entsha. Healing Hearts & Minds, enyatheliswa yi-Oxford University Press. Okokugcina, uGrace Jerald, isiguli se-CHD nomsunguli we-CHD Malaysia, wabelana ngombono wakhe wesiguli. Le webinar ibambisene ne-International Society for Adult Congenital Heart Disease (ISACHD). Kuzolandela ingxoxo yesigungu. 

Septhemba 29 ngo-9-10 am EST:  Global ARCH BUKHOMA: Ukhulumela Ngokusuka Enhliziyweni

Ngosuku Lwenhliziyo Lomhlaba (Septhemba 29), iziguli ze-CHD kanye ne-RHD kanye nemindeni emhlabeni wonke bayahlangana ukuze baqwashise ngezidingo zabo ezingafezeki. Kodwa sikusebenzisa kanjani lokho kuqwashisa ukuze sizuze izinguquko ezidingekayo zenqubomgomo?  Le webinar, ngokubambisana ne-NCDI Poverty Network, igxile ekutheni abaholi abanesineke kanye nemindeni bangaqala kanjani futhi balondoloze ukumela kwezempilo okuqondiswa uhulumeni. UMaia Olsen, uMqondisi Wokumela we-NCDI Poverty Network, izonikela isifinyezo semisebenzi ehole kusukela ekwamukelweni kwe-WHO kwesinqumo se-RHD kuya emizamweni yesifunda mayelana nesu le-PEN-Plus. U-Annamarie Saarinan, oyi-CEO ye-Newborn Foundation, izochaza umkhankaso oyimpumelelo wokufeza ukuhlolwa kwe-universal pulse oximetry e-United States. Tendai Moyo, umongameli weBrave Little Hearts Zimbabwe, Futhi U-Anu Gomanju, i-NCDI Poverty Network Advocacy Fellow, bazoxoxa ngemisebenzi yabo eZimbabwe naseNepal. Kuzolandela ingxoxo yesigungu. 

Septhemba 24 ngo-8-9 am EST:  Global ARCH LIVE

I-CHD ne-RHD: Ukuhlelela impilo yesikhathi eside
“Ngabe ingane yami izophila impilo ejwayelekile?” “Ngingaba nengane?” Lena ngeminye yemibuzo leyo isifo senhliziyo sokuzalwa kanye nesifo senhliziyo esibuhlungu abaholi babuzwa iziguli nemindeni. Joyina Global ARCH UMongameli Amy Verstappen njengoba ethula izinsiza ezisemqoka nolwazi, kufaka phakathi ukufinyelela kwimikhombandlela eshicilelwe, ukuze abaholi bakwazi ukusiza amalungu omphakathi wabo ukuhlela impilo yesikhathi eside.

Meyi 8 ngo-7: 30-8: 30 am EST - Ungakwenza kanjani: Sebenzisa Idatha Yokufundwa Kwezifo Yomhlaba Wonke Ukunikeza Amandla Akho Okukhuthaza

Idatha yezempilo ibalulekile ekukhulumeni kwezempilo. Ukuxhumana nabakhi bezinqubomgomo kuqala ngokuchaza “umthwalo wezifo” endaweni yabo, njengokufa nokukhubazeka. Isizindalwazi seGlobal Burden of Disease Study siqukethe kabanzi izwe elithile isifo senhliziyo sokuzalwa kanye nesifo senhliziyo esibuhlungu idatha yezempilo. Le webinar izobonisa indlela yokufinyelela nokusebenzisa le datha ukuze uqinise imizamo yakho yokuqwashisa neyokumela. 

Moderator: Bistra Zheleva, i-VP ye-Global Strategy and Advocacy, i-Children's HeartLink

Iphrezentheshini: UDominique Vervoort, MD, isikole sikaJohn Hopkins Bloomberg sezeMpilo kaHulumeni

Februwari 12 at 8-9 am EST - Advocacy in Action: Advocating for Childhood-Onset Heart Diseases ezingeni likazwelonke
Global ARCH Amalungu ebhodi uBistra Zheleva, i-VP yeGlobal Strategy and Advocacy e-Children's HeartLink noRuth Ngwaro, ongumsunguli weKenya Mended Hearts Patients Association bazoxoxa ngezindaba zabo zakamuva zokuphumelela kobuholi. IMended Hearts Kenya iphumelele ekutholeni uhulumeni ukuthi akhokhele ukuhlinzwa kwe-CHD, kanye ne-Children's HeartLink ekwandiseni ukuhlolwa nokuhlinzwa eKerala, e-India.

Novemba 27 at 8 am EST: Ubuchwepheshe nokuthi ungathola kanjani izaphulelo zenhlangano yakho
UFarhan Ahmad, uMsunguli kanye ne-CEO yamavolontiya ePakistan Children's Heart Foundation, nelungu lebhodi le- Global ARCH, sizoxoxa ngezinketho zesoftware ezithandwayo ezingenzi nzuzo nokuthi ungazithola kanjani ngesaphulelo. Izihloko zifaka:

  • Yiziphi izinkampani zesoftware ezinikela ngezinhlangano zosizo
  • Ingakanani imali inhlangano esiza umphakathi engonga ngayo ngempumelelo isebenzisa isoftware yamahhala
  • Ukuthi ukuhlolwa kwamahhala kungasiza kanjani ukukhulisa uhlelo
  • Izinhlelo zokusebenza ezibalulekile ezingenza imisebenzi ejwayelekile

NgoLwesihlanu, ngoJulayi 17 e-8-9 am EST: Leveraging Social Media for High-Level and Patient Advocacy
UDominique Vervoort, MD, udokotela nodokotela ohlinzayo wenhliziyo onesifiso sokuhlinzwa emhlabeni jikelele, kanye nemithombo yezokuxhumana, uzoxoxa ngokusebenzisa imithombo yezokuxhumana ekushintsheni kwezombusazwe nezotshani.

NgoLwesibili, ngoJuni 23 e-8-9 am EST: I-RHD, i-CHD ne-COVID-19: Isibuyekezo Somhlaba Wonke
Joyina uSolwazi LIesl Zuhlke, uMqondisi Wophiko Lwezingane Lokucwaninga Ngezifo Zenhliziyo e-University of Cape Town, njengoba ekhuluma ngalokho esikwaziyo, esingakwaziyo, futhi sethemba ukuthi sizokwazi maduze ngomthelela we-COVID-19 enhliziyweni yokuzalwa kanye ne-rheumatic heart iziguli umhlaba wonke.

NgoLwesihlanu, ngoMeyi 29 ngo-8-9 ekuseni EST: Isimemezelo Samalungelo, nokubaluleka kokumelwa kweziguli. U-Amy Verstappen, MGH, Global ARCH Mongameli, uzokhuluma ngokuthi kulesi sikhathi sikaCovid-19 abantu bethu basengozini enkulu kangakanani, kanye nesidingo seSimemezelo Samalungelo Abantu Abathintwe Yisifo Senhliziyo Sobuntwana asikaze sibe sikhulu kangako. Sijoyine ukuze ufunde ukuthi ungaletha kanjani igalelo.

NgoLwesihlanu, ngoMeyi 15 ngo-8-9 ekuseni EST: Amasu Okuqongelela Imali Esikhathini Sobhadane: Isiqondiso samaqembu eziguli ezinesifo senhliziyo azalwa naso
U-Bistra Zheleva, Iphini Likamongameli we-Global Strategy and Advocacy e-Children's HeartLink, wethula ngezingqinamba namathuba okuqongelela imali akhona manje, kulandele ithuba lokuxoxisana nokwabelana ngamasu. Ujoyine u-Amy Basken no-Conquering CHD (US), uBlanca del Valle no-Kardias (Mexico), no-Farhan Ahmad ne-Pakistan Children's Heart Foundation - konke lokhu kuyimpumelelo kakhulu.

NgoLwesihlanu, ngoMeyi 1 ngo-8-9 ekuseni EST: I-CHD ne-COVID-19 - Yini Esiyaziyo Kuze Kube Manje?
UDisty Pearson, PA-C eBoston Adult Congenital Heart Center futhi Global ARCH Iphini likaMongameli, lizonikeza ukubuka konke okufingqiwe kolwazi olutholakalayo kuze kube manje, kulandelwe u-Q no-A nengxoxo.

Septhemba 24 ngo-8-9 am EST:  Global ARCH LIVE

I-CHD ne-RHD: Ukuhlelela impilo yesikhathi eside
“Ngabe ingane yami izophila impilo ejwayelekile?” “Ngingaba nengane?” Lena ngeminye yemibuzo leyo isifo senhliziyo sokuzalwa kanye nesifo senhliziyo esibuhlungu abaholi babuzwa iziguli nemindeni. Joyina Global ARCH UMongameli Amy Verstappen njengoba ethula izinsiza ezisemqoka nolwazi, kufaka phakathi ukufinyelela kwimikhombandlela eshicilelwe, ukuze abaholi bakwazi ukusiza amalungu omphakathi wabo ukuhlela impilo yesikhathi eside.

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Nahimeh Jaffar 

Nahimeh Jaffar ine wasebenza njengoMphathi Wephrojekthi (PMP) oqinisekisiwe emikhakheni eyahlukene, okuhlanganisa Impilo Yomphakathi, i-Biotech, kanye ne-Pharmaceuticals, esebenza ngaphakathi kwezilungiselelo zomtholampilo ezifana nezibhedlela nemitholampilo. Ngaphezu kwalokho, usebenze nemiphakathi yomhlaba wonke e-Afrika, e-Caribbean, naseMpumalanga Ephakathi, esekela amaphrojekthi ahlukene wezenhlalo. UNksz. Jaffar ubambe iqhaza ezinhlelweni zezempilo zokuvikela ngokubambisana neCentre for Disease Control (CDC, USA) kanye neCentre for Medicare and Medicaid Services (CMS, USA).

 

Ms. Jaffar uneziqu ze-MBA kuBusiness Development azithola e-Swiss Institute of Higher Management, e-Vevey, eSwitzerland, kanye neziqu ze-bachelor ku-Consumer Affairs azithola e-California State University, e-Northridge, e-USA.

Amy Verstappen, uMongameli

U-Amy Verstappen ubengummeli wesiguli nomfundisi wezempilo kusukela ngo-1996, lapho izinselelo zakhe zokuphila nokukhubazeka kwenhliziyo eziyinkimbinkimbi zamholela ku-Adult Congenital Heart Association, lapho akhonza khona njengomongameli kusukela ngo-2001 kuya ku-2013. Usebenze njengomeluleki Izikhungo Zokulawulwa Kwezifo iNational Heart, Lung and Blood Institute; kanye ne-International Society for Adult Congenital Cardiac Disease, futhi wasebenza namaqembu eziguli zenhliziyo ezizelwe kanye nezobuchwepheshe kulo lonke elase-USA nasemhlabeni jikelele. UNksz Verstappen wathola iMasters in Education ngo-1990 neMasters kwi-Global Health ngo-2019.