Ukuthatha isinyathelo, ukunakekelwa kwempilo yonke, kanye nemilayezo ebalulekile yezempilo yengqondo eMhlanganweni Wezempilo Womhlaba ka-2024
Global ARCH wadlala indima ebalulekile e I-World Health Assembly Side Event e-Geneva, ngokubambisana nezinhlangano ezihlangene ukwethula “I-Congenital Anomalies kanye Nempilo Yomhlaba Wonke: Ukungashiyi Umuntu Ngemva”. UBistra Zheleva, Global ARCH ilungu lebhodi, kanye nePhini likaMongameli weGlobal Strategy and Advocacy at I-HeartLink Yezingane, wethule umcimbi oseceleni ethi, “Silapha eceleni komhlangano obaluleke kakhulu lapho kudingidwa khona izihloko eziningi ezahlukene okuhlanganisa nokubhekelela impilo yonke. Izinkinga zokuzalwa azikho ku-ajenda. Lokhu kubalulekile ngoba kunobufakazi obandayo bokuthi izinkinga zokuzalwa ezizalwa nazo ziba nomthelela omkhulu ekufeni kwezingane. Ngaphandle kokubhekana nalokhu, izinhloso ezibekelwe ukunciphisa ukufa kwezingane cishe ngeke ziphuthelwe.”
“Ngokugxila kakhulu nasekutshaleni imali, singasiza ukunikeza izingane ezizalwe zinesimo esibucayi impilo enempilo, kungakhathaliseki ukuthi zizalelwa kuphi.”
– UDkt. Tedros Adhanom Ghebreyesus, uMqondisi-Jikelele weNhlangano Yezempilo Yomhlaba
Ngesikhathi somcimbi we-WHA Side ngoMeyi 27, 2024, Global ARCH, kanye I-Children's HeartLink, i-Operation Smile, i-MiracleFeet, i-International Federation ye-Spina Bifida ne-Hydrocephalus, i-Jhpiego, kanye ne-Global Alliance for Surgical, Obstetric, Trauma, kanye Nokunakekelwa Kwezinzwa - G4 Alliance, kuxoxwe ngezinsiza ezidingekayo ukuze kusizwe izingane ezizalwe zinezinkinga ezizalwa nazo emhlabeni wonke ezidinga ukunakekelwa impilo yazo yonke, kanye nendlela yokumelana nabakhi bezinqubomgomo ukuze zifakwe ohlelweni oluthinta impilo yonke. Izithameli zazihlanganisa abenzi bezinqubomgomo; abameleli benhlangano yezempilo emhlabeni wonke abaholayo, abaholi bemicabango, nabameli; abaxhasi bakahulumeni nabazimele; kanye nabezindaba.
Inqubomgomo ebalulekile ibuza ukuthi:
• Ukuya qinisekisa ukuthi izidingo zabantu abanokukhubazeka kokuzalwa zifakiwe ezinhlelweni zezempilo zomhlaba wonke
• Ukuya ukuqwashisa ngezidingo, amalungelo, nesithunzi yabantu abanezinkinga zokuzalwa zabo bonke ubudala bahambisana nemigomo ye-UN Convention on the Rights of Persons Disabilities
• Ukuya ukwandisa ukutshalwa kwezimali ekuvimbeleni nasekunakekeleni kubantu abanokukhubazeka kokuzalwa, kuyo yonke iminyaka yokuphila, okuhlanganisa ukushintshela ekubeni umuntu omdala
• Ukubandakanya kanye nokuxoxisana nabantu abanezinkinga zokuzalwa kanye nezinhlangano ezibamele ekwenzeni inqubomgomo ehambisana nempilo yabo, izidingo kanye nokufeza amalungelo abo abantu.
• Ukuya ukusebenzisa izinqubomgomo, izinhlelo kanye nemikhankaso yokuqwashisa ukubhekana nezithiyo abantu abazalwa nazo kanye nemindeni yabo mayelana nokuthola usizo lwezempilo, noma ngabe kungokwesimo sengqondo, ukuxhumana, ngokomzimba, inqubomgomo, uhlelo, ezokuthutha noma umphakathi.
UDkt. Anshu Banerjee, uMqondisi woMnyango Wezempilo Nokuguga komama, abasanda kuzalwa, izingane kanye nentsha eNhlanganweni Yezempilo Yomhlaba (i-WHO), ubonise ukuthi isibalo sabantu abashona ngenxa yokukhubazeka kokuzalwa sisondele ku-30%, kanti u-90% uphakathi nendawo ephansi kuya maphakathi. -amazwe anemali engenayo yalabo abangaphansi kweminyaka engu-5 ubudala. Ugcizelele ukubaluleka kokwenza izinhlelo ezingasetshenziswa yonke indawo ngaphakathi kwamazwe futhi zixhunywe kuzo zonke izinhlelo zokunakekelwa kwezempilo.
Iphaneli yeziguli kanye nabameli benganyelwe ngu Global ARCH Umongameli Amy Verstappen, owakhuluma kafushane ngohambo lwakhe oluyinkimbinkimbi yesifo senhliziyo azalwa naso, ethi "Kubaluleke kakhulu ukuqinisekisa ukuthi wonke umuntu onjengami ufeza lokho i-WHO ekuthembisa ngamunye wethu, okungukuthi sizofinyelela isimo sezempilo esifinyeleleka kakhulu kuyo yonke impilo yethu."
Nokwazi Sithole placeholder image, owazalwa nolwanga oluqhekekile futhi manje useyivolontiya Operation Smile wagcizelela ukubaluleka kokusebenzisa amagama afanele - ukugwema "amaphutha" - kanye nokucabanga ngabantu abanezinkinga zokuzalwa njengokungathi bayingane yakho, lapho ungabafunela okungcono kakhulu. U-Laura uphinde wakhuluma ngokubaluleka kokunakekelwa ngokwengqondo ukuze abantu abazalwa benezihibe bakwazi ukuba nempilo enempilo futhi eyanelisayo enesithunzi, futhi kungani ukuba nohlelo, njengohlelo lweMental Health Action luka-2013, kubaluleke kakhulu.
Joumana Atallah, umsunguli we Isikhwama Senhliziyo Esinesibindi eLebanon wanikeza inkulumo evuthayo, ethi “Sifuna izingane zethu ziphile, ngakho-ke sizokwenza lokho. Kumele sikwenze nje.” Ukhulume ngesidingo sokusebenzisana phakathi komphakathi, ezimele, ama-philanthropists, kanye neziguli, ukuze iziguli zithole ukunakekelwa kwekhwalithi ephezulu.
Iphaneli elilandelayo lalihlanganisa ummeleli ovela ku-International Federation for Spina Bifida and Hydrocephalus (IFSBH), Operation Smile, MiracleFeet, International Federation for Spina Bifida and Hydrocephalus, Jhpiego, kanye neGlobal Alliance for Surgical, Obstetric, Trauma, and Anesthesia Care – G4 Alliance. .
USylvia Roozen, uNobhala Jikelele we I-International Federation for Spina Bifida and Hydrocephalus (IFSBH), yathi umphakathi ungadlala indima “yomthengisi oqotho” phakathi kobambiswano oluzimele, olusesidlangalaleni nolwezakhamuzi ukuze kuhlanganiswe amazwe nemiphakathi ukuze kuqinisekiswe ukuthi izidingo zeziguli nemindeni yazo ziyahlangatshezwa. Ugcizelele ukuthi nakuba ukuthatha indlela yokuvikela kubalulekile, akumele sikhohlwe ngabantu asebephila nokukhubazeka.
Ruben Ayala, Isikhulu Senqubomgomo kanye Nokumela Operation Smile, yabhekana nezinselele zempilo ukuze kusekelwe ukuhlinzwa okuphumelelayo, njengokungondleki kahle, ukwelapha inkulumo, nokusekelwa kwezempilo yengqondo ukuze kusizwe abantu babhekane nenkinga abazalwa nayo. “Ukuqhubeka yikho okunikeza abantu ithuba lokuphila ende nenjabulo.”
Amy Verstappen, Global ARCH UMongameli ugcizelele ukubaluleka kokunakekelwa impilo yonke, ethi amazwe athuthukile enze iphutha elibalulekile elingagwenywa emazweni asathuthuka izindlela zokwelapha izifo ezizalwa nazo: “Okusha kakhulu wukuthi ziningi izingane ezisindile kodwa izindaba ezimbi wukuthi zonke lezi yizifo ezingalapheki. Amazwe anemali eningi awazange akulungiselele nakancane lokhu ngeziguli ezizalwa nesifo senhliziyo, ngakho-ke manje sesidlala ukubamba iqhaza.”
Natalie Shenemen, Umphathi Wokumela, G4 umfelandawonye, umfelandawonye wamalungu angama-70 wokumela iziguli ezihlinzwayo ezinganakiwe, uncome ikhono labo lokuhlanganyela ezinhlelweni zokuqinisa izinhlelo zokunakekelwa kwezempilo. Uthe i-Coalition ingahlanganisa imilayezo, njengesidingo sokunakekelwa kwezempilo yengqondo ukuze kwakhiwe i-ajenda yokuqhubekisela phambili ukunakekelwa kwezempilo.
UDkt. Sreehari M Nair, owayeyisikhulu Sezempilo Sezingane kanye ne-RBSK State Nodal Officer, uMnyango Wezempilo u-Kerala wakhuluma ngohlelo lokuzala lokukhubazeka ukuze kuncishiswe izinga lokufa kwezinsana e-Kerala, e-India. Kusukela ngo-2022, izinga lokufa kwezinsana e-India lehlile uma nje sebegxile esifweni senhliziyo esizalwa nabo, okuyisona sandla esikhulu. Bathuthukise ukuhlolwa kwabo okusanda kuzalwa kanye nezindlela zokudlulisela ukuhlinzwa nokulandelela, okuhlanganisa imiphumela ye-neurodevelopmental kanye nekhwalithi yokuphila. Lolu hlelo luyisibonelo esisodwa sendlela uhulumeni asebenzise ngayo imininingwane ukuze enze izinqumo ezibalulekile, kanye nemibono yabalingani bomphakathi.
Salimah Walani, I-Global Policy & Advocacy Advisor (USA), Izinyawo Zezimanga, nomongameli wephaneli, uvale umcimbi, ethi “Bengingazi ukuthi ngelinye ilanga siyobe sihleli sonke lapha eGeneva, sihlangane sikhulume ngalolu daba olubaluleke kangaka. Ngakho-ke angiqale ngibonge abamele isiguli sethu kuqala. Okuhlangenwe nakho kwakho nezindaba zakho kuyasikhuthaza ukuba senze, silokothe senze okwengeziwe. Futhi sifuna ukwenza isiqiniseko sokuthi azikho izingane ezishiywa ngaphandle kokunakekelwa…Izingane azizona amakhanda, izinyawo, izinhliziyo. Bayizingane, futhi badinga ukunakekelwa.”
