Ngathi
Umnqophiso wethu
Umnqophiso woManyano lweHlabathi lweeRheumatic kunye neentliziyo zentliziyo (Global ARCHKukuphucula iziphumo zobomi behlabathi liphela kwisifo sentliziyo esiqala ebuntwaneni ngokuxhobisa imibutho yezigulana kunye neentsapho. Ubulungu bukhululekile kwaye buvulelekile kulo naliphi na iqela elikhonza izigulana zentliziyo ezizelwe kunye / okanye zamathambo kunye neentsapho zazo. Umanyano lwethu luzisa imibutho evela kwihlabathi liphela ukuze ifunde, isebenzisane, kwaye ithethe kunye ngeemfuno ezingafezekiswanga zabo baphila neemeko zentliziyo eziqala ebuntwaneni.
Umbono wethu
Every person affected by childhood-onset heart problems receives the life-long care they need to live life unlimited by their disease.
Oko sikwenzayo
Sidibanisa kwaye someleze Isifo sentliziyo esibeleken
Sithetha phandle yamalungelo esifo sentliziyo esibelekweni kunye nesifo sentliziyo rheumatic Iphulo lamaLungelo nangokukhuthaza kunye nokuxhasa ubhengezo olukhokelwa sisigulana kunye nosapho
Siyafundisa izigulana kunye neentsapho zabo, iingcali, kunye nemibutho yoncedo kwiimfuno zehlabathi zesifo senhliziyo esizalwa kunye nezigulana zesifo senhliziyo kunye nemibandela ebaluleke kakhulu kuluntu lwethu.
Si dibana kunye nemibutho yobungcali kunye neyokunceda ukukhuthaza iinkonzo ezingcono kumntu wonke ochaphazelekayo sisifo sentliziyo esiqala ebuntwaneni.
Iinkcukacha ezikhawulezayo
- Unyaka ngamnye malunga ne-1.3 yezigidi zabantwana bazalwa benesifo sentliziyo (i-CHD). [1]
- Umntu omnye kwabane uyakufa ngaphandle kongenelelo kwangoko [2] kwaye uninzi luyakudinga utyando lwabantwana ukufikelela kubudala be-18. Kodwa i-90% yabantwana behlabathi abanalo ukufikelela kukhathalelo lwentliziyo. [3]
- Kwiindawo ezininzi ezihlelelekileyo, izifo ezinganyangekiyo zinokubangela isifo sentliziyo (RHD). [3]
- I-RHD yeyona ngxaki ixhaphakileyo yentliziyo yabantwana kumazwe amaninzi anengeniso ephantsi. Ehlabathini lonke baqikelelwa kwizigidi ezingama-33 abantu abaphila ne-RHD. [4]
- Zombini izigulana ze-CHD kunye ne-RHD zifuna ukhathalelo lwentliziyo olukhethekileyo lokuphila ukuze zigcine iintliziyo zazo zisempilweni. Nditsho namazwe aneyona nyameko ibalaseleyo ekukhathaleleni iintliziyo zabantwana ahlala esokola ukukhathalela aba baguli njengokuba bekhula.
- Sifuna uncedo lwakho ukuqinisekisa ukuba wonke umntu onesifo sentliziyo esaqala ebuntwaneni ufumana unonophelo aludingayo ukuze aphile ubomi obude nobusempilweni
Ucaphulo
- van der Linde, D., Konings, EE, Slager, MA, Witsenburg, M., Ukunceda, WA, Takkenberg, JJ, kunye neRoos-Hesselink, JW (2011). Ukuxhaphaka kokuzalwa kwesifo sentliziyo esibelekweni kwihlabathi liphela: uphononongo olucwangcisiweyo kunye nohlalutyo lweemeta. Ijenali yeAmerican College of Cardiology, 58 (21), 2241-2247.
- UMoller JH, uTaubert KA, uAllen HD, uClark EB, uLauer RM. Impilo yentliziyo kunye nezifo ebantwaneni: imeko yangoku. Iqela eliKhethekileyo lokuBhala elivela kwiQela loMsebenzi waBantwana noLutsha, i-American Heart Association. Ukujikeleza kwe1994; 89 (2): 923-930.
- ICarapetis JR, i-Steer AC, i-Mulholland EK, i-Weber M. Umthwalo wehlabathi jikelele wezifo ze-streptococcal. ILancet Infect Dis 2005; 5: 685-694.
- Watkins DA, Johnson CO, Colquhoun, SM, Karthikeyan G, Beaton A, Bukhman G, okqhubekayo. Umthwalo wehlabathi, wengingqi, kunye nowelizwe wesifo sentliziyo, 1990-2015. N Engl J Med 2017; 377: 713-722.
Imbali Yethu
Umanyano lweHlabathi lweeRheumatic kunye neentliziyo zokuzalwa (Global ARCH) yaqala ngeqela elinombono wesifo sentliziyo esibelekweni kunye neenkokheli zesifo sentliziyo, ngasinye sichaphazeleka ngokuthe ngqo sisifo sentliziyo esivela ebuntwaneni. Babelane ngombono wokuguqula isifo sentliziyo esibelekweni kwihlabathi liphela kunye nesifo sentliziyo isifo samathambo ngokuxhobisa imibutho yezigulana kunye nokhokelwa lusapho.
Ehlotyeni lika-2017, babiza eyokuqala Ingqungquthela yobuNkokheli beNtliziyo yeZizwe eziManyeneyo (ICHLS), eyahlanganisa i-30 yesifo senhliziyo esizalwa kunye neenkokeli zesifo senhliziyo esine-rheumatic emele amazwe angama-21 kumazwekazi amathandathu. Ukuze udale ilizwi elinamandla egameni lesifo senhliziyo esizalwa kunye nezigulane ze-rheumatic heart disease kunye neentsapho, abathathi-nxaxheba bavumelana ngamxhelo-mnye ukuba benze intlangano entsha, ezimeleyo engenzi nzuzo ebizwa ngokuba yi-Global Alliance ye-Rheumatic and Congenital Hearts (Global ARCH). Umbono ngokuhlangeneyo Global ARCH Kukuphucula nokwolula ubomi bentliziyo yomntwana kunye nabantu abadala- nokuba bazalelwe phi.
Yabelana ngeli phepha
