U-Amy Verstappen ebengummeli wezigulana kunye nomhlohli wezempilo ukusukela ngo-1996, xa eyakhe imiceli mngeni ephila nesiphene sentliziyo yamkhokelela kwi-Adult Congenital Heart Association, apho wakhonza njengomongameli ukusuka ngo-2001 ukuya ku-2013. Usebenze njengomcebisi Amaziko oLawulo lweZifo iZiko leSizwe leNtliziyo, iMiphunga kunye neGazi; kunye noMbutho waMazwe ngaMazwe weSifo seNtliziyo esiDala sabantu abaDala, kwaye wasebenza nesigulana sentliziyo esibelekweni kunye namaqela eengcali kulo lonke elaseMelika nasehlabathini. UNks Verstappen ufumene iMasters kwiMfundo kwi-1990 kunye neMasters kwi-Global Health kwi-2019.
Disty Pearson, uSekela Mongameli
U-Disty Pearson ngumzali wesigulana esizelwe sisifo sentliziyo kunye nomncedisi kagqirha kwisifo sentliziyo esizelwe ngabantu abadala (CHD), osandula ukuthatha umhlala-phantsi. Usebenze nezigulane ze-CHD kwiminyaka eyi-40 edlulileyo, okokuqala kuqhaqho lwentliziyo kunye ne-20 yokugqibela iminyaka kunye ne-Boston Adult Congenital Heart Service (BACH) kwisibhedlele sabantwana saseBoston kunye ne-Mass General Brigham. Ulilungu elisungula iBhodi ye-ACHA Medical Advisory Board kwaye ulilungu leKholeji yaseMelika yeCardiology. I-Disty yaqaphela kwangethuba ngokubaluleka kwelizwi lesigulane kunye nentsapho kuzo zonke izigqibo ezichaphazela ukunyamekelwa kwezigulane kwaye izinikele ekuphuculeni ubomi balabo bachaphazelekayo ngenxa yesifo senhliziyo ebuntwaneni emhlabeni wonke.
UShelagh Ross, unobhala
UShelagh Ross ngumseki-mbumba kunye nomongameli wangaphambili weCanada Congenital Heart Alliance (CCHA), engenzi nzuzo exhasa kwaye ixhase abantu baseCanada abanesifo sentliziyo (CHD). Isigulana se-CHD esine-tetralogy ye-Fallot, kwaye senziwe utyando kunye nongenelelo. Ungumbhali wezonyango kunye nezempilo / umhleli kunye nomphathi wewebhusayithi, kwaye ukusukela ngo-2004 ebengummeli onomdla kuluntu lwe-CHD.
UDavid La Fontaine, unondyebo
UDavid La Fontaine uthweswe isidanga kwiKholeji yaseHaverford kufutshane neFiladelfiya ngo-1983. Usebenze kuphuhliso lwabantu basezidolophini, kwaye ngoku ukhokela umbutho ongajonganga nzuzo ophuhlisa izindlu ezifikelelekayo kunye neepropathi ezisetyenziselwa izinto ezahlukeneyo ngentsebenziswano nobunkokheli bengingqi yasePhiladelphia. UDavid uzibophelele nakwezolingano kwezempilo kwaye unceda abantu abane-CHD kunye ne-RHD ukuba bafikelele kukhathalelo abaludingayo ukuze baphile ubomi obunempilo.
UFlavia Kamalembo Batureine
UFlavia uhleli nesifo sentliziyo i-rheumatic (RHD) iminyaka eli-9, kwaye ulilungu leqela elixhasa iRheumatic Heart Disease Support eUganda, phantsi kweUganda Heart Institute. Ngeqela lenkxaso, ufikelela kwezinye izigulana, iintsapho okanye abantu ukubonelela ngenkxaso kwezentlalo, ukucebisa, ukuthethelela kunye nophando. Ukwangumongikazi okhathalele kakhulu, esebenza kwicandelo lokhathalelo olunzulu lwentliziyo. Uzinikele ekwaziseni malunga ne-RHD kunye ne-CHD ukuze izigulana zifumane ukhathalelo olufanelekileyo nolufike ngexesha, kunye negalelo kubungqina obusekwe kuphando olusebenzayo ukuphucula ukhathalelo lwabantu abachaphazelekayo yi-CHD kunye ne-RHD. UFlavia wayethathe inxaxheba kwiNgqungquthela yeNtloko yeNtloko yoBuNtloko e-Barcelona ngo-2017, eyakhokelela ekudalweni kwe Global ARCH.
Belen Blanton Altuve
Imvelaphi yaseVenezuela, uBelen Blanton Altuve uhlala e-US iminyaka eyi-30 +. Wazalwa ene-tricuspid atresia, wenza utyando lwakhe lokuqala nolukuphela kwentliziyo e-US Kwiminyaka yakhe yama-30, u-Belen waba ne-Eisenmenger syndrome, kwaye imeko yakhe yaba maxongo kangangokuba wayengakufanelanga uqhaqho-fakelo lwentliziyo/ lwemiphunga. Wajoyina i-Adult Congenital Heart Association apho wafunda ngakumbi malunga nesiphene sakhe, edibanisa nezinye izigulane ze-CHD, kunye nee-ACHD cardiologists kunye nabakhathaleli. U-Belen nomyeni wakhe benze i-Fundacion Estrellita de Belen, i-Fundacion Estrellita de Belen, esebenza kakhulu engenzi nzuzo ebonelela ngokhathalelo lwentliziyo kubantwana abafumana umvuzo ophantsi eVenezuela. UBelen ebesebenza nzima ukunceda aba bantwana ukuba bafumane ithuba lokulwa elifanayo nelokuba nethamsanqa lokuba nalo kwasebutsheni bakhe.
UBlanca del Valle
UBlanca del Valle uchithe iminyaka emininzi esebenza kwiindima zobunkokeli kwicandelo lezemali, kwaye kutsha nje uthathe inxaxheba kwezempilo, inkcubeko, kunye namalinge okuba ngabemi. Kwi-2008, wajoyina uKardias njengoSekela Mongameli oLawulayo, ezinikele ekuphuculeni ukufikelela kunonophelo olusemgangathweni kubantwana abane-CHD eMexico. Ukusukela ngo-2017, uye walawula iimali ezimbini zoncedo olungxamisekileyo zizonke ezingaphezulu kwe-5 yezigidi zeedola. Ngoku ukhokela iFondo de Inversión Social Kaluz equka iCore Ciudades Vivibles y Amables, iFundación Kaluz, kunye neMuseo Kaluz. Ukwangumseki kunye nonondyebo we "Red de Donantes Ensamble", inethiwekhi yawona maziko abalulekileyo abanikeli eMexico. Uhlala kwibhodi yamaziko amaninzi angenzi ngeniso kunye namaziko engeniso eMexico naphesheya, njengeGrupo Financiero Ve por Más, Fundación BBVA México, kunye nebhodi yabacebisi yeCentro Mexicano para la Filantropía kunye neHarvard's David Rockefeller Centre. kwizifundo zaseLatin America.
UAnu Gomanju
U-Anu Gomanju ngummeli wesigulana esingasuleliyo (i-NCD) kunye nomntu ophila nesifo senhliziyo samathambo (RHD) waseNepal. Uthethelela impilo ye-cardiovascular for all kunye nothethathethwano olunokuba luncedo lwabantu abaphila nee-NCDs (PLWNCD). Kunye nokuzibandakanya kwakhe ne Global ARCH njengelungu lebhodi, uzimanya ne-NCDI Poverty Network 'njengeGqwetha loLutsha leKomiti eLawulayo' kunye 'naMazwi e-PEN-Plus'. E-Nepal, u-Anu usebenza njengeGosa lezeMpilo yoLuntu kunye nothungelwano lwesibhedlele sabantwana esingenzi nzuzo esibizwa ngokuba yiKathmandu Institute of Child Health (KIOCH). Ngokwemfundo, uqeqeshelwa ukuba yingcali yezempilo yehlabathi kunye neyoluntu. U-Anu ukwabandakanyeka nabadlali bezempilo behlabathi abafana ne-WHO, i-WHF, kunye nemibutho yezigulane kunye neentsapho ezimele iNepal ne-Asia. Ungu-Voices of NCDI Poverty Advocacy Fellow Alumna (2021-2022) weNCDI Poverty Network, USA. Unqwenela ukuxhobisa abantu abaphila neemeko ezingapheliyo ngokufunda ngempilo, ukubandakanyeka kubhengezo lomgaqo-nkqubo, kunye nophando lokuqinisekisa umgangatho olungileyo kunye nokhathalelo lwempilo olufikelelekayo kubo bonke.
UGrace Jerald
UGrace wayeyisigulana sokuqala sentliziyo esazalelwa eMalaysia ukuba siqhubeke nomsebenzi wotshintsho loTshintsho lweeNtsholongwane eziKhulu. NgeBachelor yoBugcisa (iiHons) kwiDyunivesithi yaseMalaya eMalaysia, uGrace ubambe izikhundla ezininzi kulawulo lwedatha, ucwangciso lwemicimbi, kunye nokuxhobisa nokuqhuba amaqela amavolontiya. Kuwo wonke unyaka we-2020 ebelilungu elixabisekileyo le- Global ARCH ikomiti yonxibelelwano. Ulilungu lobomi labahlobo baka-IJN, iqela lenkxaso yamavolontiya kwiSibhedlele seSizwe seNtliziyo. Ngoku usebenza e-Kingdomcity, umbutho wamaKristu wehlabathi kwiindawo ezininzi kwihlabathi liphela.
Tendai Mayo
UTendai Moyo, owazalelwa waze wakhulela eZimbabwe, waba ligqwetha elibukhali kwizigulana ze-CHD emva kokuphulukana nomntwana wakhe oyintombazana ngenxa yesi sifo. Umbono wakhe wazalwa yintlungu nelahleko. Ngaphandle kwemvelaphi okanye izixhobo zokuthatha inyathelo, wazibandakanya Global ARCH ngenkxaso nenkuthazo. Ukusukela ngoko, uye waseka iBrave Little Heart Zimbabwe, kwaye ngo-2021 waseka ngokusesikweni iwadi yentliziyo kwiMpilo Central Hospital kwaBulawayo. Iyunithi entsha yamiselwa ukuphucula ukufikelela kwiinkonzo zeengcali kunye nokhathalelo lolungiso kubantwana abaneemeko zentliziyo. Uthemba ukuba iiyunithi ziya kuphinda ziphindwe kuwo wonke amaphondo e-10 eZimbabwe, kunye nesifo senhliziyo yabantwana ukuba sibandakanywe kwisicwangciso seMpilo yeSizwe.
Lavinia Ndemutila Ndinangoye
U-Lavinia ngumongikazi, imvumi, kunye nonozakuzaku we-RHD eNamibia. Kwiminyaka eyi-9 wafunyaniswa ukuba unesifo sentliziyo esisifo samathambo kodwa iminyaka emininzi waphulukana nokulandela. Njengomntu onemiceli mngeni kwezempilo, uLavinia wakhulisa uthando olukhulu kunye nomnqweno wokunceda nokunceda abanye, ngakumbi abo banemicimbi enxulumene nezempilo. Njengemvumi, uLavinia urekhode ingoma yokwazisa nge-RHD "BUYISA INKQUBO YAKHO", eyasungulwa ngexesha lephulo le-RHD yalapha. Ngoku uqhuba iprojekthi ebizwa ngokuba 'yi-RHD ASIYIYO UKUKHUBAZEKA' ukudala ulwazi malunga nokukhusela umkhuhlane we-rheumatic fever.
URuth Ngwaro
Imvelaphi yaseKenya kodwa ngoku uhlala e-United States, uRuth ngumdlali onamava, onomdla, kwaye ohlonitshwa kakhulu kwimpilo yoluntu kunye nengcali. Njengesifo senhliziyo esizelwe (CHD), uRuth waseka umbutho ongenzi nzuzo eKenya Mended Hearts Patient's Association (KMHPA). Ngobunkokeli bakhe obuchukumisayo, umbutho uyaqhubeka nokukhuthaza ngempumelelo isifo senhliziyo esizalwa kunye namalungelo e-RHD, utshintsho lomgaqo-nkqubo, kunye nokudala ulwazi kuluntu.
Amaya Sáez
U-Amaya Sáez, waseMadrid, eSpain, nguMphathi Jikelele weMenudos Corazones Foundation, umbutho okhokelayo weCHD eSpain. Kwakhona wayengumququzeleli kunye no-Sekela-Mongameli wokuqala weCardioAlianza, umbutho wokuqala eSpain kubantu abanezifo zentliziyo. Uqeqeshwe njengegqwetha, uye waba yinxalenye yekomiti yesigqeba sePro Bono Spain Foundation ukususela ngo-2021, iqumrhu elidibanisa iifemu eziphambili zomthetho kwaye lijongene nokuququzelela ukufikelela kuMthetho kunye noBulungisa kwii-NGOs. Udadewabo ka-Amaya unonyana one-CHD enzima.
UBistra Zheleva
I-Bistra liSekela-Mongameli weSicwangciso seHlabathi kunye nokuBala kwi-HeartLink yaBantwana. Uyingcali yophuhliso lwamazwe aphesheya anamava eminyaka engama-20 yamava ekuphunyezweni kwenkqubo kunye nokukhuthaza ukufikelela ekuphuculeni ukukhathalela abantwana abadinga iinkonzo zentliziyo yabantwana. Ukhokele kwimizamo yokusebenzisana kwiindawo ezininzi zehlabathi kunye nezenkcubeko namaqela ahlukeneyo abathathi-nxaxheba kwaye unolwazi olunzulu kuyo yonke imiba yolawulo lwe-NGO kunye nokomeleza iinkqubo zempilo. Ukusukela ngo-2003, amava akhe nge-HeartLink yaBantwana amsa kumazwe amaninzi kwihlabathi liphela emenza ukuba abe ngummeli onomdla kwiimfuno zabantwana abanesifo sentliziyo.
UGqr Vikas Desai
Ugqirha Desai ngugqirha ogqibe impilo yoluntu kangangeminyaka engama-45. Okwangoku unguMlawuli wezoBugcisa, iZiko lezeMpilo eDolophini kunye neZiko lokuQinisa iMozulu lokuGqwesa eSurat City, eGujarat State, e-India. Ungusekela-sihlalo we-trust ebhalisiweyo "iZiko lesizwe loPhuhliso lwaBasetyhini nabaNtwana (i-NIWCD)" kunye namanyathelo akhe i-NIWCD ephehlelele "iProjekti yoKhathalelo lweNtliziyo yaBantwana (i-CHCP)" ngo-2002. Ungumququzeleli wezobugcisa kwimisebenzi ye-CHCP. Ngo-2005 ngenkqubo yenkxaso ye-CHCP yonyango lwasimahla lwe-CHD yabantwana abasuka kumgangatho wentlupheko yaqaliswa nguRhulumente waseburhulumenteni ngoku ongumsebenzi oguqulweyo phantsi kweRashtriy Balsuraksha Karyakram (iNkqubo yeSizwe yoKhuseleko loMntwana).
Nahimeh UJaffar Unayo usebenze njengoMphathi weProjekthi oqinisekisiweyo (i-PMP) kwiinkalo ezahlukeneyo, kubandakanywa iMpilo yoLuntu, i-Biotech, kunye ne-Pharmaceuticals, esebenza ngaphakathi kwezicwangciso zeklinikhi ezifana nezibhedlele kunye neekliniki. Ukongeza, usebenze noluntu lwehlabathi eAfrika, kwiCaribbean, nakuMbindi Mpuma, exhasa iiprojekthi ezahlukeneyo zempembelelo yoluntu. Nksk. UJaffar uye wabandakanyeka kumanyathelo okukhusela ezempilo ngokubambisana neZiko loLawulo lweZifo (CDC, USA) kunye neZiko leMedicare kunye neeNkonzo zeMedicaid (CMS, USA).
Nksk. UJaffar ubambe isidanga se-MBA kuPhuhliso lweShishini esuka kwiZiko laseSwitzerland loLawulo oluPhezulu, eVevey, eSwitzerland, kunye nesidanga se-bachelor kwiMicimbi yabaThengi kwiYunivesithi yaseCalifornia State, eNorthridge, eMelika.
