I-1st World Congress kwi-Rheumatic Heart Disease- "intshukumo yehlabathi ngokwenene"
“Masingabulibali ubuso bomntu emva kwezi nkcukacha-manani. I-RHD ngumthwalo owela ngokulinganayo kwabona basengozini. Ezi nkcukacha-manani ayingomanani nje; ubomi buphazamisekile.”
– WHF uMongameli-Nyula Jagat Narula
The INkongolo yeHlabathi yoku-1 kwiSifo seNtliziyo yeRheumatic e Abu Dhabi, isingathwe yi I-World Heart Federation (WHF), yanikela ucwangciso olwaluzaliswe ziintetho ezimenyiweyo kunye namagqabantshintshi avela kumazwe angama-52. Idibanise iingcali ze-rheumatic heart disease (RHD), kubandakanywa abaphandi, oogqirha, izigulane, kunye nabameli, ukuphonononga uphando lwakutsha nje, ukubandakanya iinkokeli zehlabathi, kunye nokuphonononga izisombululo ezisebenzayo nezisebenzayo zokuphelisa i-RHD kube kanye.
UMongameli-onyuliweyo weWHF, Jagat Narula, bamkele abathunywa besithi: "Ngokwenene yintshukumo yehlabathi ngokwenene: Ndichukumisekile yiyantlukwano yabaphulaphuli bethu kunye nezithethi zethu eziphuma kumazwe angaphezu kwama-52 kwihlabathi liphela, zonke zinenjongo enye yokuphelisa i-RHD."
Amy Verstappen, Global ARCH UMongameli, udliwano-ndlebe ngu UKate Doherty-Schmeck (Global ARCH UMlawuli weSigqeba) kuluhlu lokuvula ngokudlula ongenawoo apho baxoxa khona Global ARCH'indima ebalulekileyo ekujonganeni neemfuno zezigulane, ngenjongo yokugqibela yokuphelisa i-RHD kunye nokuphucula ubomi babo baphila nesi sifo. UAmy unike imizekelo ebambekayo yokuba njani Global ARCH amaqela amalungu akhokela indlela ngokusebenzisa amandla elizwi lesigulane ukudala utshintsho. Ubongoze uluntu lweengcali kunye nonyango lwezonyango ukuba lusebenzisane namaqela ezigulane ukuqonda ngcono iimfuno zezigulane zokuphucula ukhathalelo. Intsebenziswano yezigulana kunye noluntu lwezonyango lunokwenza impembelelo enkulu kwi-#EndRHD.
Global ARCH belimelwe kakuhle ngamaLungu eBhodi yeeNgcebiso ngezoNyango UGqr. Liesl Zühlke, UGqr. Krishna Kumar, yaye UGqr. Dominique Vertoort, kunye namaLungu eBhodi yoMlawuli UAnu Gomanju kwaye UFlavia Baturine Kamalembo, zombini izigulane ze-RHD kunye nabameli bezigulane ezisebenzayo. USihlalo weNkomfa UGqr. Zühlke, iDyunivesithi yaseKapa, inikezelwe kumsitho wokuvula isithi, "Sivile iintetho ezininzi namhlanje ngobungqina obungenakuphikiswa malunga nokugula kunye nokufa kwe-RHD echaphazela ngokungafanelekanga ii-LMICs ... Okubalulekileyo kukuba amazwe angamaLungu e-WHO athathe inyathelo." Uye wongeza, “Ungawuhoyi laa mqala uqaqanjelwayo!”
UAnu Gomanju wabelane ngeembono zakhe njengommeli wesigulana kunye namava akhe aphilayo kunye nefuthe lawo ngokufutshane ohambahambayo ongenawoo. U-Anu umele i-NCDI Poverty Network, i-Kathmandu Institute of Child Health, kunye Global ARCH. Uthe, “Le Nkongolo yeRHD iyimpumelelo kwaye iphupha lizaliseka kubantu abaphila neRHD abakuthethelelayo oku, kwanakwabo bangaziyo ngesifo sentliziyo esibuhlungu nendlela ekunzima ngayo ukuphila naso.”
Ngomhla we-2, uAnu wabamba ingqalelo yegumbi lonke xa wathi, Ngale ntsasa, ndibe nentliziyo ebetha ngamandla. Bendicinga ukuba ndivumele iRHD Congress yazi ukuba andinakuba kwiqela lolawulo. Yile nto thina njengezigulana ezine-RHD ekufuneka sijongane nayo.” Ugxininise ukubaluleka kokubandakanya izigulane kunye neentsapho zabo kuphando kunye nokwenza izigqibo.
UGqr. Krishna Kumar, Amrita Institute of Medical Sciences and Research Centre, kunye Global ARCH Ilungu leBhodi yeeNgcebiso zezoNyango, lithethe malunga nokufikelela kunyango olusekwe kwi-catheter ye-RHD, imfuno yobhaliso lwe-catheter kwi-LMIC, kunye nokubeka ingozi yotyando kwizigulane ezine-RHD. "Ukhathalelo olukumgangatho ophantsi lunokuba yingozi kakhulu kunokungakhathalelwa." Ucele ukusekwa kweerejistri ze-catheter ezininzi ze-LMIC, ukuphuculwa komgangatho, kunye nokucwangcisa, esithi, “Sinabemi abahlukeneyo, izifo ezahlukeneyo, izixhobo ezahlukeneyo [vs. HICs]. Waphinda wathi "Ukulungiswa kwevalvu kungcono [kunokutshintshwa], kodwa ayinguye wonke umntu oyifumanayo ngexesha ...
UGqr. Dominique Vervoort, IYunivesithi yaseToronto, kunye neLungu leBhodi yeeNgcebiso zezoNyango (kunye ne-social media whiz!), Yathetha ngokuphucula ukufikelela kuqhaqho lwentliziyo kwiibhiliyoni ezintandathu ngaphandle kokhathalelo. Ugxininise ukunqongophala kofikelelo kukhathalelo lwentliziyo olukhuselekileyo, olufike ngexesha, nolufikelelekayo kubantu abazibhiliyoni ezi-6, kuquka nabantu abazizigidi ezingama-40+ abaphila ne-RHD, esithi “I-RHD sisifo sobuhlwempu esingakhathalelwanga.”
Global ARCH Ilungu leBhodi yabaLawuli kunye nommeli wesigulana se-RHD, UFlavia Baturine Kamalembo, I-Uganda Heart Institute, iboniswe kwiiseshoni ezimbini kwaye yathetha ngempembelelo yamaqela enkxaso yesigulane ekujonganeni nezikhewu kukhathalelo lwe-RHD. Uye wacebisa ukuba kwenziwe inkqubo esesikweni eququzelelweyo yokudibanisa zonke izigulane ezine-RHD amava aphilayo kumaqela akhoyo enkxaso. La maqela, uthe, “Kufuneka baxhaswe – ngemali nangezinye iindlela – ukuze bafezekise iinjongo zabo. Kwakhona bafanele bahlulwe ukuze bahlangabezane nabantu abathile, abafana nabafikisayo abaneRHD, amabhinqa akubudala bokuzala, njl. UFlavia ukwakhuthaze intsebenziswano ngakumbi phakathi kwezigulana nababoneleli-nkonzo ukujongana ngakumbi neengcinga eziphosakeleyo kunye neenkxalabo malunga ne-RHD.
Kumsitho wokuvala UGqr. Liesl Zühlke wathi, “Ndiyazingca kakhulu ngento esiyizuzileyo kwezi ntsuku zintathu zintle nezikhuthazayo. Siye safumana ithuba lokudibana noogxa bethu kunye nabahlobo, abadala nabatsha, ababelana ngokuthanda okufanayo kunye nokuzimisela ukuqinisekisa ukuba isifo sentliziyo esine-rheumatic asisasisoyikiso kwizigidi ezichaphazelekayo namhlanje. "
Global ARCH unebhongo kakhulu kwaye uwongekile ukuba nezi nkokeli zibalaseleyo zithatha inxaxheba kule Nkongolo yeHlabathi iphambili. Siqinisekile ukuba amazwi kunye nezenzo zabo ziya kuba negalelo ekufumaneni izisombululo ezisebenzayo zokujongana neemfuno zezigulane ze-RHD, ngenjongo yokuphelisa i-RHD kanye kunye.
“I-WHF ikholelwa ukuba wonke umntu ufanele ukufikelela kolona khathalelo lwentliziyo lubalaseleyo, kwaye le nkolelo iqhuba izenzo kunye namanyathelo ethu. Ngokujongana ne-RHD, asiqhubeli nje ukuphumeza injongo yethu yokuqinisekisa impilo ye-cardiovascular kumntu wonke, kodwa siyaqonda ukuba i-RHD ngumba wobulungisa bentlalontle, ephumelelayo apho ubuhlwempu kunye nokungalingani kuphezulu.
– WHF uMongameli-Nyula Jagat Narula
