I-webinar yoSuku lweHlabathi lweZiphene zokuZalwa: Ukusebenza kunye ukwakha ilizwi elifanayo
Kumboniso obalulekileyo womanyano, imibutho emihlanu yezigulana emele abantu abanengxaki yokuzalwa yajoyina uMbutho wezeMpilo weHlabathi kunye namaZiko e-US oLawulo lweSifo kunye noThintelo kwiwebhu yokubhiyozela uSuku lweHlabathi lweZiphene zokuZalwa. Ukujongana neZiphene zokuZalwa - ukuThintelwa, ukuPhila, kunye nokuNakekelwa koBomi bonke, oboniswe ngo-Matshi 4, ejolise ekukhuliseni ulwazi malunga nokuzalwa komntwana kwihlabathi jikelele kunye nokubiza abenzi bomgaqo-nkqubo, oorhulumente kunye nemibutho yoluntu ukuba batyale imali ekunakekeleni ubomi obubalulekileyo. Kwakhona yayilithuba lokuphakamisa amabali empumelelo yezigulane kunye nemibutho ukubonisa indlela abaye bakhuthaza ngokufanelekileyo kwaye bakhonza ngayo iimfuno zoluntu lwabo. Oku kulandelayo sisishwankathelo esifutshane.
UGqr. Tedros, uMlawuli Jikelele, uMbutho wezeMpilo weHlabathi Uthe kuqikelelwa ukuba zizigidi ezisi-8 zabantwana abasanda kuzalwa emhlabeni wonke abazalwa bene-anomaly, kwaye malunga nama-240,000 basweleka kwinyanga yabo yokuqala yobomi. Abaninzi bazalelwa kumazwe anengeniso ephantsi kunye nephakathi (LMICs) apho ukufumaneka konyango lokuxilonga kunye neenkonzo zokulawula zilinganiselwe. Abo basindileyo basenokujamelana nobomi bokukhubazeka, ubuhlwempu, nokubekwa ibala. Ngelixa ukusinda kwabantwana kwii-LMICs kuphucuka kwihlabathi jikelele, ungenelelo luyafuneka ukuthintela, ukuthintela, kunye nokunyanga ezi meko. Ngokugxininisa ngakumbi kunye notyalo-mali, i-WHO inokunceda aba bantwana babe nobomi obusempilweni, kungakhathaliseki ukuba bazalelwa phi.
UGqr. Karen Remley, uMlawuli weZiko leSizwe kwiZiphene zokuZalwa kunye noKhubazeko oluPhuhlisayo kwiZiko lase-US loLawulo lweSifo kunye noThintelo (CDC) wachaza ukuba iingxaki ezinzulu zokuzalwa zichaphazela i-3-6% yeentsana kwihlabathi jikelele ngonyaka, iguqulela kwizigidi kwihlabathi jikelele. Eyona nto iphambili kwi-CDC kukuxhasa iintsapho eziselula, kubandakanywa nezo zichatshazelwe kukuphazamiseka kokuzalwa. Ugxininiso lwabo kucupho, izizathu, impembelelo yexesha elide, kunye nokuguqula idatha ibe yisenzo. Ukuqonda izizathu kunokukhokelela kwiingcebiso, imigaqo-nkqubo, kunye neenkonzo zokuthintela. Ukuphucula ukuqaphela kunye nokuxilongwa kunokuqinisekisa ukunakekelwa kwangexesha, kunye nokuthunyelwa kwiinkonzo ezifanelekileyo.
“Ukukhusela impilo ngumdlalo weqela. Akukho arhente enye okanye ilizwe elinokujongana nemiceli mngeni yezempilo lilodwa. ”
UGqr. Anshu Banerjee, uMlawuli, iSebe leMpilo yoMntwana oLutsha kunye noLutsha kunye nokuguga, uMbutho wezeMpilo weHlabathi. uthethe ngeenjongo zophuhliso oluzinzileyo ze-WHO zika-2023 zokunciphisa ukusweleka kwabantwana abasandul' ukuzala. Kwii-LMICs, izinga lokufa kwabo bane-anomalies yokuzalwa kuqikelelwa ukuba lonyuke nge-30%, ngoko kukho imfuneko engxamisekileyo yokuxhasa la mazwe. Imisebenzi ye-WHO iquka ukubamba i-anomalies yokuzalwa evela kwiirejistri kunye nokudala uncwadi oluphononongwe ngontanga kunye nophononongo olucwangcisiweyo lokuqokelela idatha engcono. Ukhankanye uphuhliso lwe-Birth Defects Surveillance Surveillance Digital Adaptation Kit ukunceda abaphathi bezempilo beprogram bachonge ngokuchanekileyo i-anomalies yokuzalwa usebenzisa imifanekiso, ngoko ke ikhowudi efanelekileyo isetyenziswe kwingxelo.
I-webinar ibonise abameli abathathu abagulayo abamangalisayo abathetha ngamava abo obuqu abaphila ne-anomaly yokuzalwa, kunye nomsebenzi abawenzayo kunye nemibutho yabo yokukhuthaza.
UMartha Shiimi, umseki weBrave Little Hearts Zimbabwe, ilizwi elikhokelayo kwi-congenital heart community eZimbabwe, wathi iphupha lakhe kukudala uluntu oluqinileyo lwezigulane, abazali, kunye nababoneleli bezempilo ukuze bancede ukuphucula umgangatho wobomi kubo bonke abantu abanesifo senhliziyo (CHD).
"Sukuncama. Uneentsuku oziva uwedwa, kodwa sebenzisa nje ilizwi lakho kwaye wabelane ngebali lakho. Sebenzisa ilizwi lakho kuba thina abaguli ngabona bachaphazelekayo kulo lonke uluntu. ”
Unike lo myalezo kubasebenzi bezempilo: “Mamela izigulana zakho. Ukuba usebenzisana nathi, uya kuyiqonda imiba esijongene nayo imihla ngemihla, njengabasebenzi bethu. ”
UToby Bunyan, umthetheleli onesigulana weeNyawo eziMangaliso, wazalelwa eMelika kwaye waba nethamsanqa lokufikelela kunyango kwangoko. I-Miracle Feet ngumbutho owandisa ufikelelo kunyango olululo kubantwana abazelwe benonyawo olusisilima kwii-LMICs ngokusebenzisana nababoneleli bezempilo bengingqi. UToby uthe, "Ngonyango olululo, oludityaniswe nengqondo eyomelela, ukuzalwa okungaqhelekanga akufuneki kuchaze ubomi bakho."
“Sidinga izixhobo zokuthethelela injongo yethu, kuluntu lwethu, kodwa nakuthi. Baninzi abantu abasemva kwethu abafuna ukuba sibe nelizwi labo. ”
UJackson Doane, owazalelwa eNew Zealand enesiphene sobuso, usebenza ne-Operation Smile kwiZiko labo lokufunda eliSebenzayo.. I-Operation Smile ibonelela ngonyango lobuchwephesha bokucandeka komlebe kunye nenkalakahla ecandeke kwihlabathi jikelele. UJackson uthi, “Ubhengezo luqala kwitafile yesidlo sangokuhlwa nakwinqanaba labahlali, ukuqinisekisa ukuba abantu basekuhlaleni bayafundiswa malunga nengxaki yakho yokuzalwa. Ukuvuleleka kunye nokunyaniseka malunga nokukhubazeka kwakho kunye nemiceli mngeni, kunye nokuba abantu baphulaphule, ekugqibeleni kuya kuphucula ukhathalelo. "
"Into endicinga ukuba ilungile malunga nokuzalwa ngokwahlukileyo kukuba phantse sinoxanduva lwangaphakathi lokuba sisibane sovelwano."
UGqr. Salimah Walani, uMcebisi woMgaqo-nkqubo weHlabathi kunye neNkxaso, iMiracle Feet, yachaza ukuba ingaphathwanga, unyawo lweklabhu ngomnye wezona zizathu zinkulu zokukhubazeka ngokomzimba kwihlabathi jikelele, kunye neemeko ezintsha ze-200,000 ngonyaka, kunye ne-90% kwi-LMICs. Nangona unyango luyi-$500 kuphela, kwaye lunokwenziwa kwindawo yezigulane ezingalaliswanga, i-85% yabo bachaphazelekayo abafikeleli. Kuba impumelelo yonyango inkulu kwiintsuku zokuqala ezingama-28 zobomi, ukuchongwa kwangoko kunye nokuthunyelwa ngundoqo.
UGqr. Walani ukholelwa ekubeni ukhankaso lonyawo lweklabhu kufuneka lwenzeke kwintshukumo enkulu yokuzalwa engaqhelekanga kunye nakwimigaqo-nkqubo yempilo yomntwana osandul' ukuzalwa kunye nehlabathi jikelele.
U-Bistra Zheleva, uSekela Mongameli weSicwangciso seHlabathi kunye noBugqwetha, i-Children's HeartLink, ingeniso engenzi nzuzo esindisa ubomi babantwana ngokuguqula ukhathalelo lwentliziyo yabantwana kwiindawo ezingagcinwanga kwihlabathi, yachaza ukuba njengoko umthwalo wezifo ezithathelwanayo uyancipha kwihlabathi jikelele, i-CHD ibonakala njengeyona nto ibangela ukufa kweentsana emhlabeni wonke, kunye ne-LMICs echaphazelekayo.
Umsebenzi ophambili weChildren's HeartLink ukwakha amaziko agqwesileyo kukhathalelo lwentliziyo yabantwana, kunye nokuphuhlisa iindlela zokhathalelo lwezigulane, ukuxilongwa ngokufanelekileyo, kunye nokulandelwa kwezi zibhedlele. Bakwasebenzisana nemibutho yobungcali, kuquka Global ARCH, kunye nabo kutshanje baphehlelele i-Call to Action eKujongisweni koMthwalo waBantwana kunye neZifo zeNhliziyo eziZalwayo. Babiza oorhulumente, abaxhasi ngemali, kunye nabameli ukuba benze umahluko ngokunyusa umthamo, ukuphucula uphuhliso lwabasebenzi, kunye nokuvala i-gap yedatha. Ukuza kuthi ga ngoku, sele isayinwe ngamaqela eengcali ezingaphezulu kwe-1,500 kunye neeNGO.
UGqr. Gavrav Deshpande, i-VP yoMdibaniso, uLawulo lweMedi kunye noKhuseleko, i-Operation Smile, yathi abantu abazibhiliyoni ezi-5 ehlabathini lonke abanafikeleli kunyango lotyando olukhuselekileyo, olufikelelekayo, kwaye abazizigidi ezisi-7 baphila nemeko yokucandeka. Wathetha ngemfuneko yemfundo noqeqesho olungakumbi koogqirha, ngoko bayabaphulaphula abaguli babo. Ugxininise ukubaluleka kwemibutho esebenza kunye "kwinqanaba lebala lokudlala emhlabeni jikelele" ukuqinisekisa ukuba izigulane zinokufikelela kukhathalelo oluphezulu.
U-Amy Verstappen ngummeli ophila nesifo sentliziyo sokuzalwa. UnguMongameli weGlobal Alliance for Rheumatic and Congenital Hearts, umbutho ongenzi ngeniso ojolise ekuphuculeni iziphumo zobomi behlabathi jikelele kwisifo sentliziyo ebuntwaneni ngokuxhobisa izigulane kunye nemibutho yosapho.
U-Amy uthethe ngokungabikho kwenkqubela phambili kwihlabathi jikelele kwi-CHD kwi-90% yabantwana abazalelwa kwii-LMICs. Ugxininise ukuba isithako esibalulekileyo nesihlala singahoywa zizigulana zelizwe kunye nemibutho yeentsapho ezikwaziyo ukuchonga iimfuno zezigulane kwaye zithethe ngoluntu lwazo zisebenzisa ilizwi eliqhelekileyo lokusebenzisana ukwenza utshintsho kwinqanaba lomgaqo-nkqubo. Global ARCH ngoku inamalungu eqela angaphezu kwama-80 kumazwe angaphezu kwama-40, ngaphezulu kwesiqingatha kwii-LMICs.
kwi 2023 Global ARCH isebenzisana neChildren's HeartLink ukusungula i Ikhwelo lokuSebenza ngokujongana noMthwalo weHlabathi weZifo zeNtsholongwane yaBantwana kunye neCongenital Heart eWashington, DC ngexesha leNkongolo yeHlabathi yoTyando lwaBantwana kunye noTyando lweCardiac. U-Amy uxoxe ngendlela Eye yasebenza ngayo njengesixhobo sokukhuthaza impembelelo kwaye kwabelwane ngayo kunye neenkokheli eziphambili kwi-Arhente yase-United States yoPhuhliso lwaMazwe ngaMazwe, iBhanki yehlabathi, i-UN General Assembly, njl. Okulandelayo kwakukudala i-Global Coalition for Pediatric & Congenital Hearts. , ngoku equka ngaphezulu kwemibutho engamalungu angama-60, kuquka izigulane ezine-CHD namaqela eentsapho. Injongo kukukhuthaza utyalo-mali lwehlabathi jikelele ekuxilongweni kwe-CHD, unyango, kunye nokulandelwa, ngokukodwa kwi-LMICs, kugxininise kwizinto ezi-4 ezibalulekileyo: ukwandisa amandla okunyamekela abantu abane-CHD; ukwakhiwa kwabantwana kunye nabasebenzi be-CHD; ukuvala umsantsa wedatha; kunye nokuxhasa ngezimali unyango lwabantwana kunye ne-CHD. U-Amy uvale ngokugxininisa ukubaluleka kokusebenza ngokubambisana ukwakha ilizwi elifanayo, ukuze wonke umntwana ozelwe abe nelungelo elilinganayo kwimpilo kunye nokuphila kakuhle.
UGqr. Sylvia Roozen, uNobhala Jikelele, i-International Federation ye-Spina Bifida kunye ne-Hydrocephalus, umbutho omele amazwe angama-95 kwihlabathi jikelele esebenza ekuqinisekiseni ukufikeleleka komntu wonke.
UGqr. Roozen wathetha ngemiqobo, kuquka ukunqongophala kokhathalelo lwezempilo olufumanekayo nolufikelelekayo, ulwazi, izakhono kunye nezibonelelo; ukususwa kumaziko; ibala ekuhlaleni; kunye nocalucalulo kwabo bakhubazekileyo. Ilungelo lempilo lifakwe kwiSiqendu 25 seNgqungquthela yeZizwe eziManyeneyo malunga namaLungelo aBantu abaKhubazekileyo, kwaye kufuneka siququzelele iiplatifomu zokutshintshiselana ngolwazi kunye nentsebenziswano kunye nokubeka zombini izinto eziphambili kwixesha elifutshane kunye nexesha elide kunye. Wenze umzekelo wenkqubo yokuqinisa i-folic acid, eyathatha iminyaka engama-40 yomsebenzi wobugqwetha kwaye yafumana amandla ehlabathi eqhutywa luluntu.
Iphasiwedi yewebhu: .^2pt4N@
