U-Amy Verstappen ubengummeli wesiguli nomfundisi wezempilo kusukela ngo-1996, lapho izinselelo zakhe zokuphila nokukhubazeka kwenhliziyo eziyinkimbinkimbi zamholela ku-Adult Congenital Heart Association, lapho akhonza khona njengomongameli kusukela ngo-2001 kuya ku-2013. Usebenze njengomeluleki Izikhungo Zokulawulwa Kwezifo iNational Heart, Lung and Blood Institute; kanye ne-International Society for Adult Congenital Cardiac Disease, futhi wasebenza namaqembu eziguli zenhliziyo ezizelwe kanye nezobuchwepheshe kulo lonke elase-USA nasemhlabeni jikelele. UNksz Verstappen wathola iMasters in Education ngo-1990 neMasters kwi-Global Health ngo-2019.
Disty Pearson, iPhini likaMongameli
U-Disty Pearson ungumzali wesiguli senhliziyo esizalwa naye kanye nomsizi kadokotela kusifo senhliziyo esizalwa ngabantu abadala (CHD), osanda kuthatha umhlalaphansi. Usebenze neziguli ze-CHD eminyakeni engu-40 edlule, okokuqala ekuhlinzweni kwenhliziyo kanye neminyaka engu-20 edlule neBoston Adult Congenital Heart Service (BACH) eBoston Children's Hospital kanye neMass General Brigham. Uyilungu elisungula i-ACHA Medical Advisory Board futhi uyilungu le-American College of Cardiology. U-Disty ukubone kusenesikhathi ukubaluleka kwezwi lesiguli nomndeni kuzo zonke izinqumo ezithinta ukunakekelwa kweziguli futhi uzinikele ekuthuthukiseni izimpilo zalabo abathintwe isifo senhliziyo esiqala ebuntwaneni emhlabeni wonke.
UShelagh Ross, unobhala
UShelagh Ross ungumsunguli futhi waba ngumongameli wangaphambilini weCanada Congenital Heart Alliance (CCHA), engenzi nzuzo esekela futhi elwela abantu baseCanada abanesifo senhliziyo esizalwe naso (CHD). Uyisiguli se-CHD esine-tetralogy ye-Fallot, futhi usehlinzwe kaningana futhi wangenelelwa. Ungumbhali / umhleli / umhleli wezokwelapha nezempilo kanye nomphathi wewebhusayithi, futhi kusukela ngo-2004 ubengummeli onothando emphakathini we-CHD.
UDavid La Fontaine, uMgcinimafa
UDavid La Fontaine uthweswe iziqu eHaverford College eduzane nasePhiladelphia ngo-1983. Usebenze ekwakhiweni kabusha kwamadolobha, futhi njengamanje uhola inhlangano engenzi nzuzo ethuthukisa izindlu ezingabizi kakhulu nezakhiwo ezixubene ngokubambisana nobuholi bendawo yangakini ePhiladelphia. UDavid futhi uzibophezele ekulinganeni kwezempilo nokusiza abantu abane-CHD ne-RHD ukuthi bathole ukunakekelwa abakudingayo ukuze baphile impilo enempilo.
UFlavia Kamalembo Batureine
UFlavia uphile nesifo senhliziyo i-rheumatic heart (RHD) iminyaka engu-9, futhi uyilungu leqembu leRheumatic Heart Disease Support e-Uganda, ngaphansi kwe-Uganda Heart Institute. Ngeqembu lokusekelwa, ufinyelela kwezinye iziguli, imindeni noma abantu ngabanye ukuze banikeze ukusekelwa komphakathi, ukwelulekwa, ukugqugquzela nokucwaninga. Ungumhlengikazi onakekela kakhulu, usebenza egunjini labagula kakhulu. Uzinikele ekuqwashiseni nge-RHD ne-CHD ukuze iziguli zithole ukunakekelwa okufanele nangesikhathi esifanele, kanye nokunikela ocwaningweni olusekelwe ebufakazini bokuthuthukisa ukunakekelwa kwabantu abathintekayo yi-CHD ne-RHD. UFlavia ubeyingxenye ebambe iqhaza engqungqutheleni ye-International Congenital Heart Leadership Summit eyayiseBarcelona ngo-2017, okwaholela ekusungulweni kwe Global ARCH.
Belen Blanton Altuve
Odabuka eVenezuela, u-Belen Blanton Altuve usehlale e-US iminyaka engama-30+. Wazalwa ene-tricuspid atresia, wahlinzwa inhliziyo yokuqala nokuwukuphela kwayo e-US Eminyakeni yakhe yama-30, u-Belen waba ne-Eisenmenger syndrome, futhi isimo sakhe saba sibi kangangokuthi wayengakufanelekeli ukufakelwa inhliziyo/amaphaphu. Ujoyine i-Adult Congenital Heart Association lapho afunda khona kabanzi mayelana nokukhubazeka kwakhe, ukuxhumana nezinye iziguli ze-CHD, kanye nodokotela benhliziyo nabanakekeli be-ACHD. U-Belen nomyeni wakhe bakhe i-Fundacion Estrellita de Belen, inhlangano engenzi nzuzo ekhuthele kakhulu ehlinzeka ngokunakekelwa kwenhliziyo ezinganeni ezihola kancane e-Venezuela. UBelen ubesebenza kanzima ukuze asize lezi zingane zibe nethuba lokulwa elifanayo nalelo abe nenhlanhla yokuba nalo esemncane.
UBlanca del Valle
UBlanca del Valle uchithe iminyaka eminingi esebenza ezindimeni zobuholi emkhakheni wezezimali, futhi muva nje ubambe iqhaza kwezempilo, amasiko, kanye nezinhlelo zokuba yisakhamuzi. Ngo-2008, wajoyina uKardias njengePhini Likamongameli Ophethe, ezinikela ekwenzeni ngcono ukufinyelela ekunakekelweni okuseqophelweni kwezingane ezine-CHD eMexico. Kusukela ngo-2017, uye waphatha izimali ezimbili zosizo oluphuthumayo ezibiza ngaphezu kwezigidi ezingu-5 zamaRandi. Njengamanje uhola i-Fondo de Inversión Social Kaluz ehlanganisa i-Core Ciudades Vivibles y Amables, i-Fundación Kaluz, ne-Museo Kaluz. Uphinde abe ngumsunguli kanye nomgcinimafa we-“Red de Donantes Ensamble”, inethiwekhi yezikhungo zabanikelayo ezibaluleke kakhulu eMexico. Uhlezi ebhodini lezikhungo ezimbalwa ezingenzi nzuzo nezenza inzuzo eMexico naphesheya, njengeGrupo Financiero Ve por Más, Fundación BBVA México, kanye nebhodi labaluleki leCentro Mexicano para la Filantropía kanye neHarvard's David Rockefeller Center. zeLatin American Studies.
Anu Gomanju
U-Anu Gomanju ungummeli wesiguli sezifo ezingathathelaniyo (NCD) kanye nomuntu onesifo senhliziyo esibuhlungu (RHD) waseNepal. Ukhuthaza impilo yenhliziyo nemithambo yegazi kubo bonke kanye nokuzibandakanya okuphusile kwabantu abaphila nama-NCDs (PLWNCD). Kanye nokuzibandakanya kwakhe ne Global ARCH njengelungu lebhodi, uxhumene ne-NCDI Poverty Network 'njengoMmeli Wentsha Yekomidi Eliqondisayo' kanye 'Nezwi le-PEN-Plus'. E-Nepal, u-Anu usebenza njengeSikhulu Sezempilo Somphakathi nenethiwekhi yesibhedlela sezingane engenzi nzuzo ebizwa ngokuthi i-Kathmandu Institute of Child Health (KIOCH). Ngokwemfundo, uqeqeshelwe ukuba nguchwepheshe wezempilo emhlabeni wonke kanye nomphakathi. U-Anu uphinde azibandakanye nabalingisi bezempilo bomhlaba wonke abafana ne-WHO, i-WHF, nemifelandawonye yezinhlangano zesiguli nemindeni ezimele iNepal ne-Asia. Uyi-Voices of NCDI Poverty Advocacy Fellow Alumna (2021-2022) we-NCDI Poverty Network, e-USA. Ufisa ukunika amandla abantu abaphila nezimo ezingamahlalakhona ngokusebenzisa ukufunda nokubhala ngezempilo, ukuzibandakanya ekukhulumeni kwenqubomgomo, kanye nocwaningo ukuze kuqinisekiswe izinga elihle nokunakekelwa kwezempilo okufinyelelekayo kubo bonke.
UGrace Jerald
UGrace ubeyisiguli sokuqala senhliziyo esizelwe eMalaysia esizohlinzwa sishintshelwe iTransposition of the Great Arteries. NgeBachelor of Arts (Hons) evela e-University of Malaya eMalaysia, uGrace ubambe izikhundla eziningi ekuphathweni kwedatha, ukuhlela imicimbi, nasekufukuleni nasekuqhubeni amaqembu ezisebenzi zokuzithandela. Kuwo wonke unyaka we-2020 ubeyilungu elihlonishwayo le- Global ARCH ikomidi lezokuxhumana. Ubuye futhi abe yilungu lempilo labangane baka-IJN, iqembu lokusekela lamavolontiya esibhedlela iNational Heart Institute Hospital. Njengamanje usebenza eKingdomity, inhlangano yamaKrestu yomhlaba wonke ezindaweni eziningi emhlabeni jikelele.
Tendai Mayo
UTendai Moyo, owazalelwa wakhulela eZimbabwe, waba ngumkhulumeli onolaka weziguli zeCHD ngemuva kokushonelwa yindodakazi yakhe ngenxa yalesi sifo. Umbono wakhe wazalwa ngenxa yosizi nokulahlekelwa. Ngaphandle kwesizinda noma izinsiza zokuthatha isinyathelo, wajoyina Global ARCH ukuze uthole ukwesekwa nogqozi. Kusukela lapho, usesungule iBrave Little Heart Zimbabwe, kwathi ngomnyaka ka2021 wasungula iwadi yenhliziyo esibhedlela seMpilo Central koBulawayo. Lolu phiko olusha lwasungulwa ukuze luthuthukise ukufinyelela ezinsizeni ezikhethekile kanye nokunakekelwa kokulungisa izingane ezinezifo zenhliziyo. Unethemba lokuthi lezi zikhungo zizophinde zenziwe ezifundazweni ezili-10 zaseZimbabwe, kanye nokuthi isifo senhliziyo yezingane sifakwe ohlelweni lwezempilo lukaZwelonke.
Lavinia Ndemutila Ndinangoye
ULavinia ungumhlengikazi, ungumculi futhi uyinxusa le-RHD eNamibia. Lapho eneminyaka engu-9 watholakala enesifo senhliziyo samathambo kodwa kwaphela iminyaka eminingi elahlekile ukulandela. Njengomuntu onezinselelo zezempilo, uLavinia waba nentshisekelo enkulu nesifiso sokusiza nokusebenzela abanye, ikakhulukazi labo abanezinkinga ezihlobene nezempilo. Njengomculi, uLavinia waqopha iculo lokuqwashisa nge-RHD elithi “BUYELA UKUZITHEMBEKA KWAKHO”, elasungulwa ngesikhathi somkhankaso we-RHD wendawo. Njengamanje uqhuba iphrojekthi ebizwa nge-'RHD IS NOT A DISABILITY 'ukwenzaqwashisa ngokuvikela imfiva i-rheumatic fever.
URuth Ngwaro
Ungowokudabuka eKenya kodwa manje osehlala e-United States, uRuth ungummeli wezempilo yomphakathi onamava, oshisekayo, futhi ohlonishwayo futhi oqeqeshiwe. Njengesiguli esizalwa nesifo senhliziyo (CHD), uRuth wasungula inhlangano engenzi nzuzo i-Kenya Mended Hearts Patient's Association (KMHPA). Ngobuholi bakhe obumangalisayo, inhlangano iyaqhubeka nokumela ngempumelelo isifo senhliziyo esizalwa naso kanye namalungelo e-RHD, izinguquko zenqubomgomo, kanye nokuqwashisa umphakathi.
Ama-Amaya Sáez
U-Amaya Sáez, waseMadrid, eSpain, uyiMenenja Jikelele ye-Menudos Corazones Foundation, inhlangano ehamba phambili ye-CHD eSpain. Ubuye waba ngumsunguli kanye nePhini Likamongameli wokuqala weCardioAlianza, inhlangano yokuqala eSpain yabantu abanezifo zenhliziyo nemithambo yegazi. Uqeqeshelwe ukuba ngummeli, ube yingxenye yekomidi eliphezulu le-Pro Bono Spain Foundation kusukela ngo-2021, okuyinhlangano ehlanganisa amafemu amakhulu abameli futhi inomthwalo wemfanelo wokusiza ukufinyelela koMthetho Nobulungiswa kuma-NGO. Udadewabo ka-Amaya unendodana ene-CHD eyinkimbinkimbi.
UBistra Zheleva
UBistra uyiPhini likaMongameli weGlobal Strategy and Advocacy kwaChildLink's Children. Unguchwepheshe wezentuthuko wamazwe omhlaba onolwazi olucishe lube yiminyaka engama-20 ekusetshenzisweni kohlelo kanye nokumela ukufinyelela okuthuthukisiwe kokunakekelwa kwezingane ezidinga usizo lwezenhliziyo yezingane. Uhole imizamo yokusebenzisana ezindaweni eziningi zomhlaba nezamasiko namaqembu ahlukahlukene wababambiqhaza futhi unolwazi olunzulu kuzo zonke izici zokuphathwa kwe-NGO kanye nokuqiniswa kwezinhlelo zezempilo. Kusukela ngo-2003, amava akhe ne-Children's HeartLink amhambise emazweni amaningi emhlabeni wonke amenza waba ngummeli onentshisekelo wezidingo zezingane ezinesifo senhliziyo.
UDkt Vikas Desai
UDkt Desai ungudokotela wezokwelapha obeseneminyaka engu-45 esebenza kakhulu kwezempilo yomphakathi. Njengamanje unguMqondisi Wezobuchwepheshe, i-Urban Health and Climate Resilience Centre of Excellence eSurat City, eGujarat State, eNdiya. UnguSekela Sihlalo we-trust ebhalisiwe "National Institute For Woman and Child Development (NIWCD)" futhi ngezinhlelo zakhe i-NIWCD yethule i- "Child Heart Care Project (CHCP)" ngo-2002. Ungumgqugquzeli wezobuchwepheshe wemisebenzi ye-CHCP. Ku-2005 ngohlelo lokukhuthaza i-CHCP lokwelashwa kwamahhala kwe-CHD ezinganeni ezisuka ngaphansi kobuphofu lwaqalwa nguHulumeni wombuso manje ongumsebenzi oguqulwe ngaphansi kukaRashtriy Balsuraksha Karyakram (Uhlelo Lukazwelonke Lokuvikelwa Kwezingane).
Nahimeh Jaffar ine wasebenza njengoMphathi Wephrojekthi (PMP) oqinisekisiwe emikhakheni eyahlukene, okuhlanganisa Impilo Yomphakathi, i-Biotech, kanye ne-Pharmaceuticals, esebenza ngaphakathi kwezilungiselelo zomtholampilo ezifana nezibhedlela nemitholampilo. Ngaphezu kwalokho, usebenze nemiphakathi yomhlaba wonke e-Afrika, e-Caribbean, naseMpumalanga Ephakathi, esekela amaphrojekthi ahlukene wezenhlalo. UNksz. Jaffar ubambe iqhaza ezinhlelweni zezempilo zokuvikela ngokubambisana neCentre for Disease Control (CDC, USA) kanye neCentre for Medicare and Medicaid Services (CMS, USA).
Ms. Jaffar uneziqu ze-MBA kuBusiness Development azithola e-Swiss Institute of Higher Management, e-Vevey, eSwitzerland, kanye neziqu ze-bachelor ku-Consumer Affairs azithola e-California State University, e-Northridge, e-USA.
