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Ibhodi lethu labaqondisi
Ikomidi eliPhezulu
U-Amy Verstappen - uMongameli
U-Amy Verstappen ubengummeli wesiguli nomfundisi wezempilo kusukela ngo-1996, lapho izinselelo zakhe zokuphila nokukhubazeka kwenhliziyo eziyinkimbinkimbi zamholela ku-Adult Congenital Heart Association, lapho akhonza khona njengomongameli kusukela ngo-2001 kuya ku-2013. Usebenze njengomeluleki Izikhungo Zokulawulwa Kwezifo iNational Heart, Lung and Blood Institute; kanye ne-International Society for Adult Congenital Cardiac Disease, futhi wasebenza namaqembu eziguli zenhliziyo ezizelwe kanye nezobuchwepheshe kulo lonke elase-USA nasemhlabeni jikelele. UNksz Verstappen wathola iMasters in Education ngo-1990 neMasters kwi-Global Health ngo-2019.
UDisty Pearson - Iphini Likamongameli
U-Disty Pearson ungumzali wesiguli esizalwa yisifo senhliziyo kanye nomsizi kadokotela ku-congenital heart disease (CHD). Usebenze neziguli ze-CHD eminyakeni engu-40 edlule, okokuqala ekuhlinzweni kwenhliziyo kanye neminyaka engu-20 edlule neBoston Adult Congenital Heart Service (BACH) eBoston Children's Hospital kanye neMass General Brigham. Uyilungu elisungula i-ACHA Medical Advisory Board futhi uyilungu le-American College of Cardiology. U-Disty wakubona kusenesikhathi ukubaluleka kwezwi lesiguli nomndeni kuzo zonke izinqumo ezithinta ukunakekelwa kweziguli futhi uzinikele ekwenzeni ngcono izimpilo zalabo abathintwa isifo senhliziyo esiqala ebuntwaneni emhlabeni wonke.con
UDavid La Fontaine - UMgcinimafa
UDavid La Fontaine uthweswe iziqu eHaverford College eduzane nasePhiladelphia ngo-1983. Usebenze ekwakhiweni kabusha kwamadolobha, futhi njengamanje uhola inhlangano engenzi nzuzo ethuthukisa izindlu ezingabizi kakhulu nezakhiwo ezixubene ngokubambisana nobuholi bendawo yangakini ePhiladelphia. UDavid futhi uzibophezele ekulinganeni kwezempilo nokusiza abantu abane-CHD ne-RHD ukuthi bathole ukunakekelwa abakudingayo ukuze baphile impilo enempilo.
UShelagh Ross - Unobhala
UShelagh Ross ungumsunguli futhi waba ngumongameli wangaphambilini weCanada Congenital Heart Alliance (CCHA), engenzi nzuzo esekela futhi elwela abantu baseCanada abanesifo senhliziyo esizalwe naso (CHD). Uyisiguli se-CHD esine-tetralogy ye-Fallot, futhi usehlinzwe kaningana futhi wangenelelwa. Ungumbhali / umhleli / umhleli wezokwelapha nezempilo kanye nomphathi wewebhusayithi, futhi kusukela ngo-2004 ubengummeli onothando emphakathini we-CHD.
Amalungu eBhodi
UFlavia Kamalembo Batureine
UFlavia uphile nesifo senhliziyo i-rheumatic heart (RHD) iminyaka engu-9, futhi uyilungu leqembu leRheumatic Heart Disease Support e-Uganda, ngaphansi kwe-Uganda Heart Institute. Ngeqembu lokusekelwa, ufinyelela kwezinye iziguli, imindeni noma abantu ngabanye ukuze banikeze ukusekelwa komphakathi, ukwelulekwa, ukugqugquzela nokucwaninga. Ungumhlengikazi onakekela kakhulu, usebenza egunjini labagula kakhulu. Uzinikele ekuqwashiseni nge-RHD ne-CHD ukuze iziguli zithole ukunakekelwa okufanele nangesikhathi esifanele, kanye nokunikela ocwaningweni olusekelwe ebufakazini bokuthuthukisa ukunakekelwa kwabantu abathintekayo yi-CHD ne-RHD. UFlavia ubeyingxenye ebambe iqhaza engqungqutheleni ye-International Congenital Heart Leadership Summit eyayiseBarcelona ngo-2017, okwaholela ekusungulweni kwe Global ARCH.
Belen Blanton Altuve
Odabuka eVenezuela, u-Belen Blanton Altuve usehlale e-US iminyaka engama-30+. Wazalwa ene-tricuspid atresia, wahlinzwa inhliziyo yokuqala nokuwukuphela kwayo e-US Eminyakeni yakhe yama-30, u-Belen waba ne-Eisenmenger syndrome, futhi isimo sakhe saba sibi kangangokuthi wayengakufanelekeli ukufakelwa inhliziyo/amaphaphu. Ujoyine i-Adult Congenital Heart Association lapho afunda khona kabanzi mayelana nokukhubazeka kwakhe, ukuxhumana nezinye iziguli ze-CHD, kanye nodokotela benhliziyo nabanakekeli be-ACHD. U-Belen nomyeni wakhe bakhe i-Fundacion Estrellita de Belen, inhlangano engenzi nzuzo ekhuthele kakhulu ehlinzeka ngokunakekelwa kwenhliziyo ezinganeni ezihola kancane e-Venezuela. UBelen ubesebenza kanzima ukuze asize lezi zingane zibe nethuba lokulwa elifanayo nalelo abe nenhlanhla yokuba nalo esemncane.
Anu Gomanju
U-Anu wazalelwa futhi wakhulela eNepal. Lapho, unguchwepheshe wezempilo yomphakathi obhalisiwe, une-MA kuSociology evela emanyuvesi aseNepal, futhi njengamanje ungumfundi we-MPH ku-Global Health eThailand. Kwatholakala ukuthi unesifo senhliziyo esibuhlungu (i-RHD) eneminyaka engu-11 ubudala futhi okwamanje udla imithi ngemva kokusinda ekuhlulekeni kwenhliziyo eqinile kanye nokuhlinzwa kwenhliziyo okubili. Njengamanje "Uyi-Voices of NCDI Poverty Advocacy Fellow" ne-NCDI Poverty Network, emele umphakathi we-RHD kulobu budlelwano. Usebenza nenethiwekhi yesibhedlela sezingane eNepal. Ngaphambi kwalokhu, esikhundleni sokuba yi-Program Officer-Health, ubesebenza nezinhlangano ezingezona ezikahulumeni zamazwe ngamazwe kanye nezinhlangano zezenkolo ezindabeni zezempilo yomphakathi ezifana nempilo yentsha ephathelene nezocansi kanye nokuzala kanye namalungelo, ukuhlela umndeni, ezempilo yomphakathi, impilo yengqondo, umama kanye nentsha. impilo yengane kanye nokudla. Ubuye abe nolwazi ngempendulo yokudla okuphuthumayo ezungeze ukuzamazama komhlaba kwe-Nepal ka-2015.
UGrace Jerald
UGrace ubeyisiguli sokuqala senhliziyo esizelwe eMalaysia esizohlinzwa sishintshelwe iTransposition of the Great Arteries. NgeBachelor of Arts (Hons) evela e-University of Malaya eMalaysia, uGrace ubambe izikhundla eziningi ekuphathweni kwedatha, ukuhlela imicimbi, nasekufukuleni nasekuqhubeni amaqembu ezisebenzi zokuzithandela. Kuwo wonke unyaka we-2020 ubeyilungu elihlonishwayo le- Global ARCH ikomidi lezokuxhumana. Ubuye futhi abe yilungu lempilo labangane baka-IJN, iqembu lokusekela lamavolontiya esibhedlela iNational Heart Institute Hospital. Njengamanje usebenza eKingdomity, inhlangano yamaKrestu yomhlaba wonke ezindaweni eziningi emhlabeni jikelele.
Tendai Mayo
UTendai Moyo, owazalelwa wakhulela eZimbabwe, waba ngumkhulumeli onolaka weziguli zeCHD ngemuva kokushonelwa yindodakazi yakhe ngenxa yalesi sifo. Umbono wakhe wazalwa ngenxa yosizi nokulahlekelwa. Ngaphandle kwesizinda noma izinsiza zokuthatha isinyathelo, wajoyina Global ARCH ukuze uthole ukwesekwa nogqozi. Kusukela lapho, usesungule iBrave Little Heart Zimbabwe, kwathi ngomnyaka ka2021 wasungula iwadi yenhliziyo esibhedlela seMpilo Central koBulawayo. Lolu phiko olusha lwasungulwa ukuze luthuthukise ukufinyelela ezinsizeni ezikhethekile kanye nokunakekelwa kokulungisa izingane ezinezifo zenhliziyo. Unethemba lokuthi lezi zikhungo zizophinde zenziwe ezifundazweni ezili-10 zaseZimbabwe, kanye nokuthi isifo senhliziyo yezingane sifakwe ohlelweni lwezempilo lukaZwelonke.
Mehwish Mukhtar
UMehwish ungumsakazi, uthisha, isishoshovu senhlalo, isikhulumi esikhuthazayo, kanye ne-blogger eLahore, ePakistan. Njengomama wendodana enesifo senhliziyo esizalwa nayo (i-CHD), ungumkhulumeli ongakhathali weziguli ezizalwa nazo, esiza eminye imindeni ukuthi ithole ukunakekelwa okufanele kwenhliziyo yezingane zabo ezizalwa nazo. UMehwish uyivolontiya elizinikele futhi umuntu ozoletha amakhono okudala nawokumela Global ARCH iqembu.
Lavinia Ndemutila Ndinangoye
ULavinia ungumhlengikazi, ungumculi futhi uyinxusa le-RHD eNamibia. Lapho eneminyaka engu-9 watholakala enesifo senhliziyo samathambo kodwa kwaphela iminyaka eminingi elahlekile ukulandela. Njengomuntu onezinselelo zezempilo, uLavinia waba nentshisekelo enkulu nesifiso sokusiza nokusebenzela abanye, ikakhulukazi labo abanezinkinga ezihlobene nezempilo. Njengomculi, uLavinia waqopha iculo lokuqwashisa nge-RHD elithi “BUYELA UKUZITHEMBEKA KWAKHO”, elasungulwa ngesikhathi somkhankaso we-RHD wendawo. Njengamanje uqhuba iphrojekthi ebizwa nge-'RHD IS NOT A DISABILITY 'ukwenzaqwashisa ngokuvikela imfiva i-rheumatic fever.
URuth Ngwaro
Ungowokudabuka eKenya kodwa manje osehlala e-United States, uRuth ungummeli wezempilo yomphakathi onamava, oshisekayo, futhi ohlonishwayo futhi oqeqeshiwe. Njengesiguli esizalwa nesifo senhliziyo (CHD), uRuth wasungula inhlangano engenzi nzuzo i-Kenya Mended Hearts Patient's Association (KMHPA). Ngobuholi bakhe obumangalisayo, inhlangano iyaqhubeka nokumela ngempumelelo isifo senhliziyo esizalwa naso kanye namalungelo e-RHD, izinguquko zenqubomgomo, kanye nokuqwashisa umphakathi.
UDominique Vervoort, MD
U-Dominique uthweswe iziqu zobudokotela eBelgium onolwazi olunzulu emkhakheni wokuhlinzwa komhlaba wonke, obhalise ku-Master of Public Health kanye ne-Master of Business Administration e-Johns Hopkins University. Njengodokotela nofisa ukuhlinza inhliziyo yezingane onesizinda sokuhlinzwa emhlabeni wonke, u-Dominique ube ngummeli oshisekayo wokufinyelela ekunakekelweni kwenhliziyo okuphephile, okufika ngesikhathi, nokuthengekayo kwezingane eziphila nesifo senhliziyo esizalwa nazo kanye nesifo senhliziyo esibuhlungu emhlabeni wonke. Wasungula futhi waba ngusihlalo ngokuhlanganyela I-International Student Surgical Network (InciSioN), inethiwekhi enkulu kunazo zonke emhlabeni yabafundi abaqeqeshelwa ukuhlinzwa enabafundi bezokwelapha abangaphezu kuka-5,000, izakhamuzi, nodokotela abasebasha emazweni angaphezu kuka-80. E-Johns Hopkins, ugxile kwezomnotho wezempilo, ukuphathwa kokunakekelwa kwezempilo, kanye nokuxhasa ngezimali ukunakekelwa kwezempilo, ukuze aqonde kangcono futhi abe nomthelela ezingxoxweni zenqubomgomo yasekhaya neyamazwe ngamazwe kanye nokwabiwa kwezinsiza zezinsizakalo zezempilo.
UBistra Zheleva
UBistra uyiPhini likaMongameli weGlobal Strategy and Advocacy kwaChildLink's Children. Unguchwepheshe wezentuthuko wamazwe omhlaba onolwazi olucishe lube yiminyaka engama-20 ekusetshenzisweni kohlelo kanye nokumela ukufinyelela okuthuthukisiwe kokunakekelwa kwezingane ezidinga usizo lwezenhliziyo yezingane. Uhole imizamo yokusebenzisana ezindaweni eziningi zomhlaba nezamasiko namaqembu ahlukahlukene wababambiqhaza futhi unolwazi olunzulu kuzo zonke izici zokuphathwa kwe-NGO kanye nokuqiniswa kwezinhlelo zezempilo. Kusukela ngo-2003, amava akhe ne-Children's HeartLink amhambise emazweni amaningi emhlabeni wonke amenza waba ngummeli onentshisekelo wezidingo zezingane ezinesifo senhliziyo.
Ilungu Lebhodi Eliphumayo
UDkt Vikas Desai
UDkt Desai ungudokotela wezokwelapha obeseneminyaka engu-45 esebenza kakhulu kwezempilo yomphakathi. Njengamanje unguMqondisi Wezobuchwepheshe, i-Urban Health and Climate Resilience Centre of Excellence eSurat City, eGujarat State, eNdiya. UnguSekela Sihlalo we-trust ebhalisiwe "National Institute For Woman and Child Development (NIWCD)" futhi ngezinhlelo zakhe i-NIWCD yethule i- "Child Heart Care Project (CHCP)" ngo-2002. Ungumgqugquzeli wezobuchwepheshe wemisebenzi ye-CHCP. Ku-2005 ngohlelo lokukhuthaza i-CHCP lokwelashwa kwamahhala kwe-CHD ezinganeni ezisuka ngaphansi kobuphofu lwaqalwa nguHulumeni wombuso manje ongumsebenzi oguqulwe ngaphansi kukaRashtriy Balsuraksha Karyakram (Uhlelo Lukazwelonke Lokuvikelwa Kwezingane).
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