I-1st World Congress on Rheumatic Heart Disease - "inhlangano yomhlaba wonke ngempela"
“Akumele sikhohlwe ubuso bomuntu ngemuva kwalezi zibalo. I-RHD ingumthwalo owehla ngokulinganayo kwabasengozini kakhulu. Lezi zibalo azizona nje izinombolo; izimpilo ziphazamisekile.”
- UMongameli we-WHF Okhethiwe u-Jagat Narula
The I-1st World Congress ye-Rheumatic Heart Disease in Abu Dhabi, ibungazwe ngu- I-World Heart Federation (WHF), wanikeza uhlelo olugcwele izinkulumo ezimenyiwe nezingcaphuno ezivela emazweni angu-52. Ihlanganise ndawonye ochwepheshe be-rheumatic heart disease (RHD), okuhlanganisa abacwaningi, odokotela, iziguli, nabameli, ukuze babuyekeze ucwaningo lwakamuva, bahlanganyele nabaholi bomhlaba wonke, futhi bahlole izixazululo ezisebenzayo nezisebenzayo zokuqeda i-RHD unomphela.
UMongameli Okhethiwe we-WHF, Jagat Narula, izithunywa ezamukelekile zithi: "Impela kuwumnyakazo womhlaba wonke ngempela: Ngihlabeke umxhwele ukwehlukahlukana kwezilaleli zethu nezikhulumi zethu ezivela emazweni angaphezu kuka-52 emhlabeni wonke, zonke zinenhloso efanayo yokuqeda i-RHD."
Amy Verstappen, Global ARCH President, kuxoxiswane naye Kate Doherty-Schmeck (Global ARCH Umqondisi Omkhulu) emhlanganweni wokuvula ngokusebenzisa ividiyoo lapho bexoxa khona Global ARCH'indima ebalulekile ekubhekaneni nezidingo zeziguli, ngenhloso yokugcina yokuqeda i-RHD nokwenza ngcono izimpilo zalabo abaphila nalesi sifo. U-Amy unikeze izibonelo ezibambekayo zokuthi kanjani Global ARCH amaqembu amalungu ahola indlela ngokusebenzisa amandla ezwi lesiguli ukuze enze ushintsho. Unxuse umphakathi wochwepheshe nowezempilo ukuthi ubambisane namaqembu eziguli ukuze uqonde kangcono izidingo zeziguli ukuze kuthuthukiswe ukunakekelwa. Ukusebenzisana kweziguli kanye nomphakathi wasemtholampilo kungenza umthelela omkhulu ku-#EndRHD.
Global ARCH ubemelwe kahle Amalungu Ebhodi Lokweluleka Ngezokwelashwa UDkt. Liesl Zühlke, UDkt. Krishna Kumar, Futhi UDkt. Dominique Vertoort, kanye Namalungu Ebhodi Labaqondisi Anu Gomanju futhi Flavia Baturine Kamalembo, kokubili iziguli ze-RHD nabameli besiguli abakhuthele. USihlalo Wenkomfa UDkt. Zühlke, University of Cape Town, wethulwe emcimbini wokuvula ethi, "Sizwile izinkulumo eziningi namuhla ngobufakazi obungephikiswe ngokugula nokufa kwe-RHD okuthinta ngokungafanele ama-LMIC...Okubalulekile ukuthi Amazwe Angamalungu e-WHO athathe isinyathelo." Wengeze, “Ungawuzibi lowo mphimbo obuhlungu!”
Anu Gomanju wabelane ngemininingwane yakhe njengommeli onesineke kanye nolwazi lwakhe oluphilayo kanye nomthelela wako ngesifinyezo esisheshayo ividiyoo. U-Anu umele i-NCDI Poverty Network, i-Kathmandu Institute of Child Health, kanye Global ARCH. Uthe, “Le RHD Congress iyimpumelelo futhi iyiphupho kubantu abaphila ne-RHD abakumelayo lokhu, kanye nalabo abangazi ngesifo senhliziyo esibuhlungu nokuthi kunzima kanjani ukuphila naso.”
Ngosuku lwesi-2, u-Anu wabamba ukunaka kwegumbi lonke lapho ethi, “Namuhla ekuseni, ngibe nokushaya kwenhliziyo. Bengicabanga ukuthi kufanele yini ngitshele i-RHD Congress ukuthi ngeke ngikwazi ukuba sephaneli. Yilokhu okufanele sibhekane nakho njengeziguli ezine-RHD.” Ugcizelele ukubaluleka kokufakwa kweziguli nemindeni yazo ocwaningweni nasekuthatheni izinqumo.
UDkt. Krishna Kumar, i-Amrita Institute of Medical Sciences and Research Centre, kanye Global ARCH Ilungu Lebhodi Lokweluleka Ngezokwelapha, likhulume ngokufinyelela ekwelapheni okusekelwe kwi-catheter ye-RHD, isidingo sokubhaliswa kwe-catheter ku-LMIC, kanye nokuhlukaniswa kwengozi yokuhlinzwa kweziguli ezine-RHD. "Ukunakekelwa kwekhwalithi ephansi kungaba yingozi kakhulu kunokunganakekelwa." Ucele ukuthi kusungulwe ama-LMIC okubhaliswa kwama-catheter amaningi, ukuthuthukiswa kwekhwalithi, nokuhlela, wathi, “Sinabantu abahlukene, izifo ezihlukene, izinsiza ezahlukene [vs. HICs]." Uphinde waveza ukuthi “Ukulungiswa kwevalvu kungcono [kunokushintshanisa], kodwa akubona bonke abakuthola ngesikhathi...
UDkt. Dominique Vervoort, University of Toronto, kanye neMedical Advisory Board Member (kanye ne-social media whiz!), bakhulume ngokwenza ngcono ukufinyelela ekuhlinzweni kwenhliziyo ezigidigidini eziyisithupha ngaphandle kokunakekelwa. Ugcizelele ukuntuleka kokufinyelela ekuhlinzweni kwenhliziyo okuphephile, okufika ngesikhathi, nokuthengekayo kubantu abayizigidi eziyizinkulungwane eziyisithupha, okuhlanganisa nabantu abayizigidi ezingama-6+ abaphila ne-RHD, wathi “I-RHD iyisifo sobumpofu esinganakwa.”
Global ARCH Ilungu Lebhodi Labaqondisi kanye nommeli wesiguli se-RHD, Flavia Baturine Kamalembo, I-Uganda Heart Institute, eyethulwe ezimisweni ezimbili futhi yakhuluma ngomthelela wamaqembu asekela isiguli ekubhekaneni nezikhala ekunakekelweni kwe-RHD. Uncome ukuthi kwakhiwe inqubo ehlelekile yokuxhumanisa zonke iziguli ezine-RHD ephilayo namaqembu okusekela atholakalayo. Lawa maqembu uthe, “Badinga ukwesekwa - ngokwezimali nangezinye izindlela - ukuze bakwazi ukufeza izinhloso zabo. Kufanele futhi zihlukaniswe ukuze zibhekelele abantu abathile, njengentsha ene-RHD, abesifazane abaseminyakeni yokuzala, njll. ngoba izidingo zihlukile kukho konke ukuphila.” UFlavia uphinde wakhuthaza ukusebenzisana okwengeziwe phakathi kweziguli nabahlinzeki ukuze kubhekwane ikakhulukazi nemibono eyiphutha nokukhathazeka nge-RHD.
Emcimbini wokuvala UDkt. Liesl Zühlke wathi, “Ngiyaziqhenya kakhulu ngesikuzuzile kulezi zinsuku ezintathu ezinhle nezikhuthazayo. Sibe nethuba lokuhlangana nozakwethu nabangane, abadala nabasha, abanentshiseko efanayo nokuzimisela ukuqinisekisa ukuthi isifo senhliziyo esibuhlungu asiselona usongo ezigidini ezithintekile namuhla.”
Global ARCH kuyaziqhenya futhi kuyahlonishwa ngokuba nalaba baholi abahloniphekile ababambe iqhaza kule Ngqungquthela Yomhlaba. Siyaqiniseka ukuthi amazwi nezenzo zabo kuzoba nomthelela ekutholeni izixazululo ezisebenzayo zokubhekana nezidingo zeziguli ze-RHD, ngenhloso yokuqeda i-RHD unomphela.
“I-WHF ikholelwa ukuthi wonke umuntu ufanelwe ukufinyelela ekunakekelweni kwenhliziyo okungcono kakhulu, futhi le nkolelo iqhuba izenzo nezinhlelo zethu. Ngokubhekana ne-RHD, asiphishekeli nje umgomo wethu wokuqinisekisa impilo yenhliziyo nemithambo yegazi yawo wonke umuntu, kodwa futhi siyaqaphela ukuthi i-RHD iwudaba lobulungiswa bezenhlalo, oluchumayo lapho ubumpofu nokungalingani kuphezulu kakhulu.”
- UMongameli we-WHF Okhethiwe u-Jagat Narula
