I-webinar yoSuku Lomhlaba Lokukhubazeka Kokuzalwa: Ukusebenza ndawonye ukwakha izwi elifanayo
Embukisweni oyingqopha-mlando wobumbano, izinhlangano ezinhlanu zeziguli ezimele abantu abanezinkinga zokuzalwa zajoyina i-World Health Organization kanye ne-US Centers for Disease Control and Prevention engxoxweni yewebhu yokugubha uSuku Lomhlaba Lokukhubazeka Kokuzalwa. Ukubhekana Nokungalingani Kwezinkinga Zokuzalwa - Ukuvimbela, Ukusindisa Ukuphila, kanye Nokunakekelwa Kwempilo Yonke, eyethulwa ngoMashi 4, okuhloswe ngayo ukuqwashisa abantu mayelana nezinkinga zokuzalwa emhlabeni wonke kanye nokucela abenzi bezinqubomgomo, ohulumeni, kanye nemiphakathi yomphakathi ukuthi batshale imali ekunakekelweni okubalulekile impilo yonke. Kuphinde kube yithuba lokuphakamisa izindaba zempumelelo yeziguli nezinhlangano ukukhombisa ukuthi zikhulumele futhi zasiza kanjani izidingo zemiphakathi yazo. Okulandelayo ukuphindaphinda kafushane.
UDkt. Tedros, uMqondisi Jikelele, Inhlangano Yezempilo Yomhlaba Uthe zilinganiselwa ezigidini ezingu-8 izingane ezisanda kuzalwa emhlabeni wonke ezizalwa zinenkinga yokuzalwa, futhi cishe zingu-240,000 ezishona enyangeni yazo yokuqala yokuphila. Abaningi bazalelwa emazweni anemali engenayo ephansi naphakathi (ama-LMIC) lapho ukutholakala kokwelashwa kokuxilonga kanye nezinsizakalo zokuphatha kukhawulelwe. Abasindile bangase babhekane nempilo yonke yokukhubazeka, ubumpofu, nokucwaswa. Ngenkathi ukusinda kwezingane kuma-LMIC kuyathuthuka emhlabeni jikelele, kudingeka ukungenelela ukuze kuvinjelwe, kunqandwe, futhi kuphathwe lezi zimo. Ngokugxila okukhulu kanye nokutshalwa kwezimali, i-WHO ingasiza lezi zingane zibe nempilo enempilo, kungakhathaliseki ukuthi zizalelwa kuphi.
UDkt. Karen Remley, Umqondisi Wesikhungo Sikazwelonke Sokukhubazeka Nokukhubazeka Okuthuthukayo e-US Center for Disease Control and Prevention (CDC) wachaza ukuthi izifo ezingathi sína zokuzalwa zithinta u-3-6% wezingane emhlabeni wonke ngonyaka, okuhumushela ezigidini emhlabeni jikelele. Okuhamba phambili kwe-CDC ukuxhasa imindeni emincane, okuhlanganisa naleyo ethinteke ngenxa yokuphazamiseka kokuzalwa. Ukugxila kwabo kusekugadweni, izimbangela, umthelela wesikhathi eside, kanye nokwenza idatha ibe isenzo. Ukuqonda izimbangela kungaholela ezincomweni, izinqubomgomo, nezinsizakalo zokuvimbela. Ukuthuthukisa ukuqashelwa nokuxilongwa kungaqinisekisa ukunakekelwa okufika ngesikhathi, nokudluliselwa kumasevisi afanelekile.
“Ukuvikela impilo wumdlalo weqembu. Ayikho i-ejensi eyodwa noma izwe elingabhekana nezinselele zezempilo emhlabeni lilodwa.”
UDkt. Anshu Banerjee, Umqondisi, Umnyango Wezempilo Nezingane Ezisanda kuzalwa Nezintsha kanye Nokuguga, Inhlangano Yezempilo Yomhlaba. ukhulume ngezinjongo ze-WHO zokuthuthuka okusimeme zowezi-2023 zokunciphisa ukushona kwezingane ezisanda kuzalwa. Kuma-LMIC, izinga lokufa kwalabo abanokukhubazeka kokuzalwa lilinganiselwa ukuthi likhuphuke ngo-30%, ngakho kunesidingo esiphuthumayo sokweseka la mazwe. Imisebenzi ye-WHO ihlanganisa ukuthwebula okudidayo kokuzalwa okuvela ezibhalisiwe nokudala izincwadi ezibuyekezwe kontanga kanye nokubuyekezwa okuhlelekile ukuze kuqoqwe idatha engcono. Ubalule ukuthuthukiswa kwe-Birth Defects Surveillance Digital Adaptation Kit ukuze isize abaphathi bezinhlelo zezempilo bahlonze kahle izinkinga abazalwa nazo besebenzisa izithombe, ngakho kusetshenziswa ikhodi efanele ekubikeni.
I-webinar ibonise abameli abathathu besiguli abamangalisayo abakhulume ngokuhlangenwe nakho kwabo siqu abaphila nenkinga yokuzalwa, kanye nomsebenzi abawenzayo nezinhlangano zabo zokumela.
UMartha Shiimi, umsunguli weBrave Little Hearts Zimbabwe, umholi wemiphakathi yenhliziyo ezalwa eZimbabwe, uthe iphupho lakhe ngeyokwakha umphakathi oqinile weziguli, abazali, kanye nabezempilo ukuze kuthuthukiswe izinga lempilo yabo bonke abantu abanesifo senhliziyo (CHD).
“Ungalilahli ithemba. Unezinsuku lapho uzizwa uwedwa, kodwa vele usebenzise izwi lakho futhi wabelane ngendaba yakho. Sebenzisa izwi lakho ngoba thina ziguli singabambiqhaza ababaluleke kakhulu kulo mphakathi wonkana.”
Unikeze lo mlayezo kubasebenzi bezempilo: “Lalela iziguli zakho. Uma usebenzisana nathi, uzoziqonda izinkinga esibhekana nazo nsuku zonke, njengamandla ethu okusebenza.”
UToby Bunyan, ummeli onesineke weMiracle Feet, wazalelwa e-United States futhi waba nenhlanhla yokuthola ukwelashwa kusenesikhathi. I-Miracle Feet yinhlangano ekhulisa ukufinyelela ekwelashweni okufanele kwezingane ezizalwe zinonyawo oluvulekile kuma-LMICs ngokusebenzisana nabahlinzeki bezempilo bendawo. UToby uthe, "Ngokwelashwa okufanele, kuhlanganiswe nengqondo eqinile, ukuphazamiseka kokuzalwa akudingeki kuchaze impilo yakho."
“Sidinga amathuluzi okumela injongo yethu, umphakathi wethu, kodwa nathi. Baningi kakhulu abantu abasemuva kwethu abadinga ukuthi sibe yizwi labo.”
UJackson Doane, owazalelwa eNew Zealand onokukhubazeka ebusweni, usebenza ne-Operation Smile esikhungweni sabo sokufunda esisebenzisanayo.. I-Operation Smile ihlinzeka ngokwelashwa okungochwepheshe kokuqhekeka kwezindebe nolwanga oluqhekekile emhlabeni jikelele. UJackson uthi, “Ukumela kuqala etafuleni lesidlo sakusihlwa kanye nezinga lomphakathi, ukuze kuqinisekiswe ukuthi amalungu omphakathi afundiswa ngokungahambi kahle kwakho. Ukuphumela obala nokwethembeka ngokukhubazeka nezinselelo zakho, nokuba abantu bakulalele, ekugcineni kuzothuthukisa ukunakekelwa.”
“Engicabanga ukuthi kuhle ngempela ngokuzalwa ngendlela ehlukile ukuthi cishe sinomthwalo wemfanelo esizalwa nawo wokuba isibani sozwela.”
UDkt. Salimah Walani, Umeluleki Wenqubomgomo Yomhlaba Wonke Nokumela, Izinyawo Eziyisimangaliso, yachaza ukuthi uma ingalashwa, i-club foot ingenye yezimbangela ezinkulu zokukhubazeka ngokomzimba emhlabeni jikelele, ngamacala amasha angu-200,000 unyaka ngamunye, kanye nama-90% kuma-LMIC. Nakuba ukwelashwa kungu-$500 kuphela, futhi kungenziwa endaweni yesiguli esingalalisiwe, ama-85% alabo abathintekile abanakho ukufinyelela. Njengoba impumelelo yokwelashwa inkulu ezinsukwini zokuqala ezingama-28 zokuphila, ukuhlonzwa kusenesikhathi nokudluliselwa kubalulekile.
UDkt. Walani ukholelwa ukuthi ukumela kwezinyawo zekilabhu kufanele kwenzeke phakathi kwenhlangano enkulu yokumela izifo ezizalwa nazo nasezinqubweni zezempilo ezisanda kuzalwa kanye nezezingane emhlabeni wonke.
U-Bistra Zheleva, iPhini likaMongameli we-Global Strategy and Advocacy, i-Children's HeartLink, inhlangano engenzi nzuzo esindisa izimpilo zezingane ngokuguqula ukunakekelwa kwenhliziyo yezingane ezindaweni ezinganakiwe emhlabeni, yachaza ukuthi njengoba umthwalo wezifo ezithathelwanayo uncipha emhlabeni wonke, i-CHD ivela njengembangela ehamba phambili yokufa kwezinsana emhlabeni wonke, nama-LMIC asebenza kakhulu.
Umsebenzi oyinhloko we-Children's HeartLink ukwakha izikhungo ezisebenza kahle ekunakekelweni kwenhliziyo yezingane, kanye nokuthuthukisa izindlela zokunakekela isiguli, ukuxilonga okufanele, nokulandelela kulezi zibhedlela. Baphinde babambisane nemiphakathi yobungcweti, okuhlanganisa Global ARCH, abasanda kwethula nabo i-Call to Action in Addressing the Burden of Pediatric and Congenital Heart Diseases. Bacela ohulumeni, abaxhasi bezimali, kanye nabameli ukuthi benze umehluko ngokwandisa umthamo, ukuthuthukisa ukuthuthukiswa kwabasebenzi, kanye nokuvala igebe ledatha. Kuze kube manje, isisayinwe imiphakathi yochwepheshe engaphezu kwe-1,500 kanye nama-NGO.
UDkt. Gavrav Deshpande, Iphini Likamongameli, Ukwengamela Okuphakathi Nokuphepha, I-Operation Smile, yathi abantu abayizigidi eziyizinkulungwane ezingu-5 emhlabeni wonke abakwazi ukufinyelela ukunakekelwa okuphephile, okuthengekayo, futhi abayizigidi ezingu-7 baphila nesimo sokuqhekeka. Wakhuluma ngesidingo semfundo nokuqeqeshwa okwengeziwe kodokotela, ngakho bayalalela iziguli zabo. Ugcizelele ukubaluleka kwezinhlangano ezisebenzisanayo ukuze “zilinganise inkundla emhlabeni wonke” ukuze kuqinisekiswe ukuthi iziguli zithola ukunakekelwa okuseqophelweni eliphezulu.
U-Amy Verstappen ungummeli ophila nesifo senhliziyo azalwa naso. UnguMongameli weGlobal Alliance for Rheumatic and Congenital Hearts, inhlangano engenzi nzuzo ehlose ukuthuthukisa imiphumela yempilo yonke emhlabeni wonke esifweni senhliziyo esiqala ebuntwaneni ngokunikeza amandla izinhlangano zesiguli nemindeni.
U-Amy ukhulume ngokuntuleka kwenqubekelaphambili emhlabeni jikelele ku-CHD ku-90% wezingane ezizalwa kuma-LMIC. Ugcizelele ukuthi isithako esibalulekile nesivame ukunganakwa iziguli zakuleli kanye nezinhlangano zemindeni ezikwazi ukuhlonza izidingo zesiguli futhi zikhulumele imiphakathi yazo zisebenzisa izwi elivamile lokusebenzisana ukwenza izinguquko ezingeni lenqubomgomo. Global ARCH njengamanje inamalungu eqembu angaphezu kwama-80 emazweni angaphezu kwama-40, ngaphezu kwesigamu kuma-LMIC.
In 2023 Global ARCH ihlanganyele neChildren's HeartLink ukwethula Isimemo Esenziwe Ekubhekaneni Nomthwalo Womhlaba Wonke Wezifo Zenhliziyo Zezingane Nezazalwa Nazo eWashington, DC ngesikhathi seWorld Congress of Pediatric Surgery and Cardiac Surgery. U-Amy uxoxe ngokuthi Isebenze kanjani njengethuluzi lokumela elinomthelela futhi yabelwe abaholi ababalulekile e-United States Agency for International Development, IBhange Lomhlaba, I-UN General Assembly, njll. Okulandelayo kwaba ukwakhiwa kwe-Global Coalition for Pediatric & Congenital Hearts. , manje esihlanganisa izinhlangano ezingamalungu angaphezu kuka-60, okuhlanganisa isiguli se-CHD namaqembu omndeni. Umgomo uwukukhuthaza ukutshalwa kwezimali emhlabeni wonke ekuxilongweni kwe-CHD, ukwelashwa, kanye nokulandelela, ngokuyinhloko kuma-LMIC, okugxile ezingxenyeni ezi-4 ezibalulekile: ukukhulisa amandla okunakekela abantu abane-CHD; ukwakha abasebenzi bezingane kanye ne-CHD; ukuvala igebe ledatha; kanye nokuxhasa ngezimali ukunakekelwa kwezempilo kwezingane kanye ne-CHD. U-Amy uvale ngokugcizelela ukubaluleka kokusebenza ngokubambisana ukuze kwakhiwe izwi elifanayo, ukuze yonke ingane ezalwa ibe nelungelo elilinganayo lempilo nokuphila kahle.
UDkt. Sylvia Roozen, uNobhala Jikelele, i-International Federation for Spina Bifida kanye ne-Hydrocephalus, inhlangano emele amazwe angama-95 emhlabeni wonke esebenzela ukuthola ukufinyeleleka kwawo wonke umuntu.
UDkt. Roozen wakhuluma ngezithiyo, okuhlanganisa nokushoda kokunakekelwa kwezempilo okutholakalayo nokuthengekayo, ukuqwashisa, amakhono, nezinsiza; ukususwa kwezikhungo; ukucwaswa emphakathini; kanye nokubandlululwa kwalabo abakhubazekile. Ilungelo lezempilo liqukethwe ku-Article 25 yeNgqungquthela Yezizwe Ezihlangene Yamalungelo Abantu Abakhubazekile, futhi sidinga ukwenza lula izinkundla zokucobelelana ngolwazi nobudlelwano futhi sihlele ndawonye izinto ezibalulekile zesikhathi esifushane nezesikhathi eside. Wenze isibonelo sohlelo lokuqinisa i-folic acid, olwathatha iminyaka engu-40 yomsebenzi wokumela futhi lwazuza umfutho emhlabeni wonke oluqhutshwa umphakathi.
Iphasiwedi yewebhu: .^2pt4N@
