Global ARCH member CHD Malaysia recently held their first of four patient and families education webinars in partnership with Children’s HeartLink, MPCS and Malaysian leader, Grace Jerald from CHD Malaysia. The recording is now available HERE. ...
Global ARCH is excited to announce that it has co-authored and endorsed an important consensus paper, published in the European Society of Cardiology's European Heart Journal. The article describes issues and practices of transition and transfer of adolescents with congenital heart disease. Global ARCH played an important role in recruiting groups and soliciting regular feedback...
CHD Malaysia's founder and Global ARCH board member Grace Jerald, in partnership with Children's HeartLink and The Malaysian Paediatric Cardiac Society (MPCS), held the first of four patient and family education webinars. The recording is now available on YouTube by clicking HERE. ...
We have a new look, as well as new features that will make our website more versatile and functional for our global audience. Now all pages can be translated into a wide variety of languages using the translate tool at the top of the page (on a computer) or at the footer using a mobile...
Global ARCH welcomes five new and one returning board member: Ruth Ngwaro, Grace Jerald, Lavinia Ndinangoye, Mehwish Mukhtar, David La Fontaine, and Bistra Zheleva. Ruth Ngwaro is originally from Kenya but is now living in the United States. As a congenital heart disease (CHD) patient, Ruth founded the non-profit organization Kenya Mended Hearts Patient’s Association (KMHPA). Through her impressive...
RHD Action is pleased to launch the first round of our Small Grants Programme for 2019 with this request for proposal. To date, 13 projects in a dozen countries from across the globe have been funded & supported through our RHD Action Small Grants Programme which was launched in 2017. Read more at RHDAction.org ...
On March 16, 2019, the Children’s Heart Disease Research Unit, in partnership with Brave Little Hearts SA and Heart of Hope, hosted our 2nd patient-focused workshop – ‘Listen to my Heart’ – at the Red Cross War Memorial Children’s Hospital. ...
“The greater presence of young people and patients is an encouraging sign that the agenda is shifting”, says Bistra Zheleva. “The young people becoming engaged in programmes to counter NCDs are remarkable and inspiring. There is a whole new cadre of young medical and public health professionals who care and want to see a change, and...
“When Maven was born in 2011, he was diagnosed with a congenital heart defect. This involved a number of conditions, some of which doctors expected would resolve on their own. But one of those — a pulmonary stenosis — would require surgery when he was older, at an estimated cost of $20,000. That is a...
Global ARCH has been selected to present at the Cochrane Colloquium, being held in Edinburgh, Scotland September 16th – 18th. Entitled Beyond the RCT: How Global Patient Organizations Build Research Capacity and Impact , the presentation will highlight the ways congenital heart disease and rheumatic heart disease advocacy groups in low and middle-income countries support the development of...
Nahimeh Jaffar has worked as a certified Project Manager (PMP) in various fields, including Public Health, Biotech, and Pharmaceuticals, working within clinical settings such as hospitals and clinics. In addition, she worked with global communities in Africa, the Caribbean, and the Middle East, supporting various social impact projects. Ms. Jaffar has been involved in preventive health initiatives in collaboration with the Center for Disease Control (CDC, USA) and the Center for Medicare and Medicaid Services (CMS, USA).
Ms. Jaffar holds an MBA in Business Development from the Swiss Institute of Higher Management, Vevey, Switzerland, and a bachelor’s degree in Consumer Affairs from California State University, Northridge, USA.
Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world. Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.
