Global ARCH co-authors consensus paper on transition to adult congenital heart disease care

Global ARCH / Global ARCH co-authors consensus paper on transition to adult congenital heart disease care

Global ARCH co-authors consensus paper on transition to adult congenital heart disease care

Global ARCH is excited to announce that it has co-authored and endorsed an important consensus paper, published in the European Society of Cardiology’s European Heart Journal. The article describes issues and practices of transition and transfer of adolescents with congenital heart disease. Global ARCH played an important role in recruiting groups and soliciting regular feedback from centres in high-, middle-, and low-income countries. It is a collaboration between Global ARCH, ESC Association of Cardiovascular Nursing Allied Professions (ACNAP), ESC Working Group on Adult Congenital Heart Disease (WG ACHD), Association for European Paediatric and Congenital Cardiology (AEPC), Pan-African Society of Cardiology (PASCAR), Asia-Pacific Pediatric Cardiac Society (APPCS), Inter-American Society of Cardiology (IASC), Cardiac Society of Australia and New Zealand (CSANZ), International Society for Adult Congenital Heart Disease (ISACHD), World Heart Federation (WHF), and European Congenital Heart Disease Organisation (ECHDO).

https://global-arch.org/wp-content/uploads/2021/11/Transition_paper2021.pdf


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Shelagh Ross

Shelagh Ross is the co-founder and past-president of the Canadian Congenital Heart Alliance (CCHA), a non-profit that supports and advocates for Canadians with congenital heart disease (CHD). In 2017 she helped to start Global ARCH, and serves on the Board. She is a CHD patient with tetralogy of Fallot, and has undergone several surgeries and interventions. Since 2004 she has been a passionate advocate in the CHD community.