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Global ARCH co-authors consensus paper on transition to adult congenital heart disease care

Global ARCH / Global ARCH co-authors consensus paper on transition to adult congenital heart disease care

Global ARCH co-authors consensus paper on transition to adult congenital heart disease care

by
November 8, 2021

Global ARCH is excited to announce that it has co-authored and endorsed an important consensus paper, published in the European Society of Cardiology’s European Heart Journal. The article describes issues and practices of transition and transfer of adolescents with congenital heart disease. Global ARCH played an important role in recruiting groups and soliciting regular feedback from centres in high-, middle-, and low-income countries. It is a collaboration between Global ARCH, ESC Association of Cardiovascular Nursing Allied Professions (ACNAP), ESC Working Group on Adult Congenital Heart Disease (WG ACHD), Association for European Paediatric and Congenital Cardiology (AEPC), Pan-African Society of Cardiology (PASCAR), Asia-Pacific Pediatric Cardiac Society (APPCS), Inter-American Society of Cardiology (IASC), Cardiac Society of Australia and New Zealand (CSANZ), International Society for Adult Congenital Heart Disease (ISACHD), World Heart Federation (WHF), and European Congenital Heart Disease Organisation (ECHDO).

https://global-arch.org/wp-content/uploads/2021/11/Transition_paper2021.pdf


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Shelagh Ross

Nahimeh Jaffar 

Nahimeh Jaffar has worked as a certified Project Manager (PMP) in various fields, including Public Health, Biotech, and Pharmaceuticals, working within clinical settings such as hospitals and clinics. In addition, she worked with global communities in Africa, the Caribbean, and the Middle East, supporting various social impact projects. Ms. Jaffar has been involved in preventive health initiatives in collaboration with the Center for Disease Control (CDC, USA) and the Center for Medicare and Medicaid Services (CMS, USA).

 

Ms. Jaffar holds an MBA in Business Development from the Swiss Institute of Higher Management, Vevey, Switzerland, and a bachelor’s degree in Consumer Affairs from California State University, Northridge, USA.

Amy Verstappen, President

Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world.  Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.