Our alliance brings together organizations from around the world to learn, collaborate, and speak out together about the unmet needs of those living with heart conditions that begin in childhood.
Learn more about CHD and RHD and how it affects people worldwide, and watch our Global ARCH LIVE webinars on a wide variety of topics. As well, you will find educational material and useful links – and we’re always adding more.
I’m Belen Blanton, President of Estrellita de Belen Foundation. I was born with a congenital heart defect called tricuspid atresia causing me to now suffer from Eisenmenger Syndrome. I now dedicate my life to fight for children with congenital heart defects in my country of Venezuela. The situation in my country has more than 4,000
Comparable to the condition when wind blows and we get random thoughts, alike human emotions are effected by outer elements. The stigmas of society some way disturb us; moving us away from our own planned paths. Though life is full of uncertainties, we still believe we are best in making decisions. Ignoring the fact that
This Congenital Heart Awareness Week (February 7-14) I’m “celebrating” from my bed in a downtown Toronto hospital. I’ve been here too many times in the past 11 months, since just before we had the first COVID-19 lockdown. My heart defect, called tetralogy of Fallot, started causing my heart to beat so fast that it feels like I have
Global ARCH is excited to announce that it has co-authored and endorsed an important consensus paper, published in the European Society of Cardiology’s European Heart Journal. The article describes issues and practices of transition and transfer of adolescents with congenital heart disease. Global ARCH played an important role in recruiting groups and soliciting regular feedback
CHD Malaysia’s founder and Global ARCH board member Grace Jerald, in partnership with Children’s HeartLink and The Malaysian Paediatric Cardiac Society (MPCS), held the first of four patient and family education webinars. The recording is now available on YouTube by clicking HERE.
We have a new look, as well as new features that will make our website more versatile and functional for our global audience. Now all pages can be translated into a wide variety of languages using the translate tool at the top of the page (on a computer) or at the footer using a mobile
Together we can help organizations worldwide make a difference in the lives of children and adults with CHD and RHD, and their families. Please donate today.
We believe that every person affected by childhood-onset heart disease has the right to receive all needed services to reach their full potential. We are asking our members and the CHD/RHD community to please sign our Declaration.
Join our global network of CHD and RHD organizations so we can all work together to improve the lives of children and adults with heart disease that begins in childhood.
Meet Belen Blanton and the @BelenFundacion. They are doing wonderful work in Venezuela providing resources to help families with #CHD children. Their vision is to live in a world where every child has a mighty heart. Pls read our latest blog post. https://bit.ly/33InyDZ
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