Our Declaration

We believe that every person affected by childhood-onset heart disease has the right to receive all needed services to reach their full potential. We are asking our members and the CHD/RHD community to please sign our Declaration.

About Us

Our alliance brings together organizations from around the world to learn, collaborate, and speak out together about the unmet needs of those living with heart conditions that begin in childhood.

Learn More

Learn more about CHD and RHD and how it affects people worldwide, and watch our Global ARCH LIVE webinars on a wide variety of topics. As well, you will find educational material and useful links – and we’re always adding more.

Recent Posts

Frida Arnardóttir

Neistinn‘s Children’s Heart Foundation in Iceland

I’m a mother of two, my daughter who is about to turn 15 has a complex congenital heart defect and has had several heart operations throughout her life at Children’s hospital in Boston. When I was pregnant with her and found out that she had CHD, I immediately started to look if there was a

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Jeffrey Estrella

A Focus on Rheumatic Heart Disease Philippines

Rheumatic Heart Disease Philippines was founded in 2017 because of my wife who has RHD. At first we didn’t know anything about RHD, but my search on social media connected us to a community of other RHD patients and their families. Together we exchange knowledge, and share experiences about the hardships and sacrifices we have

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News

Global ARCH co-authors consensus paper on transition to adult congenital heart disease care

Global ARCH is excited to announce that it has co-authored and endorsed an important consensus paper, published in the European Society of Cardiology’s European Heart Journal. The article describes issues and practices of transition and transfer of adolescents with congenital heart disease. Global ARCH played an important role in recruiting groups and soliciting regular feedback

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CHD Malaysia and partners host COVID-19 webinar

CHD Malaysia’s founder and Global ARCH board member Grace Jerald, in partnership with Children’s HeartLink and The Malaysian Paediatric Cardiac Society (MPCS), held the first of four patient and family education webinars. The recording is now available on YouTube by clicking HERE.

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Donate Now

Together we can help organizations worldwide make a difference in the lives of children and adults with CHD and RHD, and their families. Please donate today.

ADANEC
Mexico
CHD Malaysia
Malaysia
Camp Odayin
United States
Conquering CHD
United States
Cuore Matto
Switzerland
Herznetz.Ch
Switzerland
JEMAH e.V.
Germany
Let it Echo
Philippines
Mending Kids
United States
Sisters by Heart
United States
Siut
Pakistan
Surgeons of Hope
United States
Team Heart, Inc.
United States
The Heart Chamber
United States
Zipper Sisters
United States

Join Us

Join our global network of CHD and RHD organizations so we can all work together to improve the lives of children and adults with heart disease that begins in childhood.