Global ARCH is an alliance of CHD & RHD groups from around the world LEARN MORE » Declaration of Rights for People with CHD & RHD SIGN NOW » I have the right to early diagnosis
I have the right to education
I have the right to affordable treatment
I have the right to LIVE
COVID-19 & Congenital Heart Defects LEARN MORE » What you need to know Global ARCH JOIN OUR WEBINARS » Global ARCH Leader's Forum LIVE Advocacy Toolkit DOWNLOAD THE PDF » A resource to help individuals and
organizations advocate to improve
the health and well-being of congenital
and rheumatic heart disease patients

Our Declaration

We believe that every person affected by childhood-onset heart disease has the right to receive all needed services to reach their full potential. We are asking our members and the CHD/RHD community to please sign our Declaration.

About Us

Our alliance brings together organizations from around the world to learn, collaborate, and speak out together about the unmet needs of those living with heart conditions that begin in childhood.

Learn More

Learn more about CHD and RHD and how it affects people worldwide, and watch our Global ARCH LIVE webinars on a wide variety of topics. As well, you will find educational material and useful links – and we’re always adding more.

Recent Posts

Shelagh Ross

Teaming up to bring awareness about congenital heart disease

CHD Awareness Day recap Every February 7-14 patient and family advocates around the world participate in Congenital Heart Disease (CHD) Awareness Week. It is a time to raise awareness of CHD in their local communities. Global ARCH and Children’s HeartLink are two leading childhood-onset heart disease advocacy organizations that work to improve lifelong outcomes worldwide. What

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Shelagh Ross

Talking about Congenital Heart Disease and Mental Health

1. What would you suggest to parents of CHD children when it comes to building resiliency so that mental health issues can be addressed early? I’d like to first say that I have a great deal of respect for parents and caregivers of children with CHD – I recognize how stressful their own experiences can

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Belen Blanton

Our vision is to live in a world where every child has a mighty heart

I’m Belen Blanton, President of Estrellita de Belen Foundation. I was born with a congenital heart defect called tricuspid atresia causing me to now suffer from Eisenmenger Syndrome.  I now dedicate my life to fight for children with congenital heart defects in my country of Venezuela. The situation in my country has more than 4,000

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Tendai Moyo

Be the change you want to see in your community

It was through the journey and loss of my Brave Little Girl, Rudo, in 2018, that birthed Brave Little Hearts Zimbabwe. It began by me seeking justice on the treatment we encountered at the hospital that resulted in the negligent loss of my child’s life, and to honour the good fight that our Brave Little

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Mehwish Mukhtar

Stigma: choosing words wisely can make life easier

Comparable to the condition when wind blows and we get random thoughts, alike human emotions are effected by outer elements.  The stigmas of society some way disturb us; moving us away from our own planned paths. Though life is full of uncertainties, we still believe we are best in making decisions. Ignoring the fact that

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Global ARCH co-authors consensus paper on transition to adult congenital heart disease care

Global ARCH is excited to announce that it has co-authored and endorsed an important consensus paper, published in the European Society of Cardiology’s European Heart Journal. The article describes issues and practices of transition and transfer of adolescents with congenital heart disease. Global ARCH played an important role in recruiting groups and soliciting regular feedback

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CHD Malaysia and partners host COVID-19 webinar

CHD Malaysia’s founder and Global ARCH board member Grace Jerald, in partnership with Children’s HeartLink and The Malaysian Paediatric Cardiac Society (MPCS), held the first of four patient and family education webinars. The recording is now available on YouTube by clicking HERE.

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We have a new website!

We have a new look, as well as new features that will make our website more versatile and functional for our global audience. Now all pages can be translated into a wide variety of languages using the translate tool at the top of the page (on a computer) or at the footer using a mobile

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Donate Now

Together we can help organizations worldwide make a difference in the lives of children and adults with CHD and RHD, and their families. Please donate today.

CHD Malaysia
Camp Odayin
United States
Conquering CHD
United States
Cuore Matto
Let it Echo
Surgeons of Hope
United States
Team Heart, Inc.
United States

Join Us

Join our global network of CHD and RHD organizations so we can all work together to improve the lives of children and adults with heart disease that begins in childhood.

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