Global ARCH is a global alliance of organizations dedicated to improving the lives of those impacted by childhood-onset heart diseases, including congenital and rheumatic heart disease. With patient and family groups at the heart of our efforts, we work together to empower local community leaders, foster global collaboration, and unite our voices, ensuring that every individual has access to the essential care, support, and services they deserve to live a life unlimited by their disease.
A Life Turned Upside Down After spending two years in the USA as a postdoctoral researcher, I returned to my hometown, Kolkata, eager to live with my family and build my career here. Shortly after, I conceived and decided to wait until my baby was born before resuming work. I thoroughly enjoyed my pregnancy. Apart
At Global ARCH, we’re always looking for ways to grow stronger and do more for the global community we serve. That’s why we’re thrilled to announce the launch of our Member Relations Council and the new chapter of our Medical Advisory Council. These dynamic councils bring together passionate leaders and world-class experts, driving our mission
We are thrilled to introduce Global ARCH’s newly elected Executive Board—a team of inspiring leaders guiding us into 2025 in partnership with our Executive Director: • Chair: Amaya Sáez – General Manager of Menudos Corazones Foundation and co-founder of CardioAlianza, Amaya is a tireless advocate inspired by her nephew’s journey with CHD. • Vice Chair: Anu Gomanju – A passionate advocate from
Together we can help organizations worldwide make a difference in the lives of children and adults with childhood-onset heart disease, and their families. Please donate today.
Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world. Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.