We believe that every person affected by childhood-onset heart disease has the right to receive all needed services to reach their full potential. We are asking our members and the CHD/RHD community to please sign our Declaration.
Our alliance brings together organizations from around the world to learn, collaborate, and speak out together about the unmet needs of those living with heart conditions that begin in childhood.
Learn more about CHD and RHD and how it affects people worldwide, and watch our Global ARCH LIVE webinars on a wide variety of topics. As well, you will find educational material and useful links – and we’re always adding more.
CHD Awareness Day recap Every February 7-14 patient and family advocates around the world participate in Congenital Heart Disease (CHD) Awareness Week. It is a time to raise awareness of CHD in their local communities. Global ARCH and Children’s HeartLink are two leading childhood-onset heart disease advocacy organizations that work to improve lifelong outcomes worldwide. What
1. What would you suggest to parents of CHD children when it comes to building resiliency so that mental health issues can be addressed early? I’d like to first say that I have a great deal of respect for parents and caregivers of children with CHD – I recognize how stressful their own experiences can
In early June Brave Little Hearts Zimbabwe participated in our National Youth Business Expo, as we are looking at establishing sustainable projects to help empower our communities to attain financial freedom. This is so important because donors are hard to come by, and the financial burden of heart communities is so huge. Our target is
I’m Belen Blanton, President of Estrellita de Belen Foundation. I was born with a congenital heart defect called tricuspid atresia causing me to now suffer from Eisenmenger Syndrome. I now dedicate my life to fight for children with congenital heart defects in my country of Venezuela. The situation in my country has more than 4,000
It was through the journey and loss of my Brave Little Girl, Rudo, in 2018, that birthed Brave Little Hearts Zimbabwe. It began by me seeking justice on the treatment we encountered at the hospital that resulted in the negligent loss of my child’s life, and to honour the good fight that our Brave Little
Comparable to the condition when wind blows and we get random thoughts, alike human emotions are effected by outer elements. The stigmas of society some way disturb us; moving us away from our own planned paths. Though life is full of uncertainties, we still believe we are best in making decisions. Ignoring the fact that
Global ARCH is excited to announce that it has co-authored and endorsed an important consensus paper, published in the European Society of Cardiology’s European Heart Journal. The article describes issues and practices of transition and transfer of adolescents with congenital heart disease. Global ARCH played an important role in recruiting groups and soliciting regular feedback
CHD Malaysia’s founder and Global ARCH board member Grace Jerald, in partnership with Children’s HeartLink and The Malaysian Paediatric Cardiac Society (MPCS), held the first of four patient and family education webinars. The recording is now available on YouTube by clicking HERE.
We have a new look, as well as new features that will make our website more versatile and functional for our global audience. Now all pages can be translated into a wide variety of languages using the translate tool at the top of the page (on a computer) or at the footer using a mobile
Together we can help organizations worldwide make a difference in the lives of children and adults with CHD and RHD, and their families. Please donate today.
Join our global network of CHD and RHD organizations so we can all work together to improve the lives of children and adults with heart disease that begins in childhood.
