
We connect, empower, and advocate to improve lifelong outcomes by putting patients and families at the center
We are the largest and only global alliance dedicated to childhood-onset heart disease patients and families. Together, we are building a world where every heart child and adult has access to the care and services they deserve.


Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world. Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.