This month
Monthly Leaders' Forum
First Tuesday of every month · 10:00 am ET
Connect with patient and family leaders from every region, learn from each other and share what works. Register once and Zoom will send you the link for every Forum.
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Global Alliance for Rheumatic and Congenital Hearts
We connect, empower and advocate to improve lifelong outcomes, by putting patients and families at the center.
Stronger together
Together, we are building a world where every child and adult living with congenital or rheumatic heart disease has access to the care and services they deserve.
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Partner organizations
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Global Coalition
A joint initiative of Children's HeartLink and Global ARCH, uniting organizations around the world to make childhood-onset heart disease a global health priority, starting with a World Health Assembly resolution.
Every month on Zoom
For member organizations
Our most important space to connect. Register once and receive every monthly invitation.
The patient and family voice
Every Global ARCH member organization was started by people who live with heart disease or care for someone who does. Together, they make sure lived experience shapes every ask to governments and global health leaders.
Our roots
Explore
Join a worldwide community of patient and family organizations. Membership is free.
Just published
A year of growth, advocacy and patient voices from around the world. See what our community achieved together.
Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world. Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.