Our Declaration

We believe that every person affected by childhood-onset heart disease has the right to receive all needed services to reach their full potential. We are asking our members and the CHD/RHD community to please sign our Declaration.

About Us

Our alliance brings together organizations from around the world to learn, collaborate, and speak out together about the unmet needs of those living with heart conditions that begin in childhood.

Learn More

Learn more about CHD and RHD and how it affects people worldwide, and watch our Global ARCH LIVE webinars on a wide variety of topics. As well, you will find educational material and useful links – and we’re always adding more.

Recent Posts

Global ARCH

Ollie Hinkle Heart Foundation – Coming Together to Transform Lives

What is the main goal of the Ollie Hinkle Heart Foundation? OHHF’s central goal focuses on the Take Heart Initiative to cultivate an equitable standard of care that centers the voices of every person and family affected by childhood onset heart disease in collaboration with clinicians and health systems by empowering and educating caregivers, building

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Shelagh Ross

Honoring Noemi’s Legacy to Global ARCH

One year ago, Global ARCH lost a guiding light. Noemi de Stoutz was a trailblazer and dedicated champion of CHD advocacy and support. Born in Switzerland with complex CHD, Noemi survived far beyond expectations. Despite her limitations, she spent her life helping others as a palliative oncology physician. She was forced to retire early due

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1st World Congress on Rheumatic Heart Disease – “a truly global movement”

“We must not forget the human faces behind these statistics. RHD is a burden that falls disproportionately on the most vulnerable. These statistics are not just numbers; they are lives interrupted.”– WHF President-Elect Jagat Narula The 1st World Congress on Rheumatic Heart Disease in Abu Dhabi, hosted by the World Heart Federation (WHF), offered up an agenda packed

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Donate Now

Together we can help organizations worldwide make a difference in the lives of children and adults with CHD and RHD, and their families. Please donate today.

Join Us

Join our global network of CHD and RHD organizations so we can all work together to improve the lives of children and adults with heart disease that begins in childhood.

Amy Verstappen, President

Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world.  Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.