Our alliance brings together organizations from around the world to learn, collaborate, and speak out together about the unmet needs of those living with heart conditions that begin in childhood.
Learn more about CHD and RHD and how it affects people worldwide, and watch our Global ARCH LIVE webinars on a wide variety of topics. As well, you will find educational material and useful links – and we’re always adding more.
Comparable to the condition when wind blows and we get random thoughts, alike human emotions are effected by outer elements. The stigmas of society some way disturb us; moving us away from our own planned paths. Though life is full of uncertainties, we still believe we are best in making decisions. Ignoring the fact that
This Congenital Heart Awareness Week (February 7-14) I’m “celebrating” from my bed in a downtown Toronto hospital. I’ve been here too many times in the past 11 months, since just before we had the first COVID-19 lockdown. My heart defect, called tetralogy of Fallot, started causing my heart to beat so fast that it feels like I have
CHD Malaysia’s founder and Global ARCH board member Grace Jerald, in partnership with Children’s HeartLink and The Malaysian Paediatric Cardiac Society (MPCS), held the first of four patient and family education webinars. The recording is now available on YouTube by clicking HERE.
We have a new look, as well as new features that will make our website more versatile and functional for our global audience. Now all pages can be translated into a wide variety of languages using the translate tool at the top of the page (on a computer) or at the footer using a mobile
Global ARCH welcomes five new and one returning board member: Ruth Ngwaro, Grace Jerald, Lavinia Ndinangoye, Mehwish Mukhtar, David La Fontaine, and Bistra Zheleva.
Together we can help organizations worldwide make a difference in the lives of children and adults with CHD and RHD, and their families. Please donate today.
We believe that every person affected by childhood-onset heart disease has the right to receive all needed services to reach their full potential. We are asking our members and the CHD/RHD community to please sign our Declaration.
Join our global network of CHD and RHD organizations so we can all work together to improve the lives of children and adults with heart disease that begins in childhood.
Do you want to learn more about rheumatic heart disease? This video features #RHD patients & their families, created by RHD Support Group Uganda. Check out their Facebook page too! https://bit.ly/3eIpWxf #HeartofStigma #heartdisease
"Patient engagement is not a fad or a trend. It brings unique perspectives to hc. It promotes collaboration, communication and ethical practice, and it anchors practice firmly in stories of lived experience that are rich in learnings." @CMAJ editorial https://www.cmaj.ca/content/193/27/E1046
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