Archive

The first-of-its-kind workshop on the meaningful engagement of people living with non-communicable diseases (NCDs), “Nothing for Us, Without Us: Meaningful Engagement of People Living with NCDs,” was recently held in Kathmandu, Nepal. It was initiated by Global ARCH Board Member Anu Gomanju, an active RHD advocate. The workshop took a year to plan and became...

The conference was chaired by Prof. Afksendiyos Kalangos, President and Founder of the Global Forum, who presented the Welcome Address. Conference organizers included Global ARCH Medical Advisory Board member Dr. Kathy Jenkins and Board Member Bistra Zheleva. The aim of the Congress was to continue to address critical issues facing developing countries, including the shortage of...

“We must not forget the human faces behind these statistics. RHD is a burden that falls disproportionately on the most vulnerable. These statistics are not just numbers; they are lives interrupted.”– WHF President-Elect Jagat Narula The 1st World Congress on Rheumatic Heart Disease in Abu Dhabi, hosted by the World Heart Federation (WHF), offered up an agenda packed with...

On August 31, representatives from Global ARCH, Children's HeartLink, and the 8th World Congress for Pediatric Cardiology & Cardiac Surgery, met with the maternal and child health and nutrition team at the United States Agency for International Development (USAID) in Washington, DC. Later in the day, the group met with officials from the World Bank. This small group of...

Global ARCH joined Operation Smile, Miracle Feet, and Children’s HeartLink at the UN General Assembly meeting on September 21 to speak up for the needs of children born with birth defects around the globe in need of surgical correction or other treatment, and how to advocate with policymakers for their inclusion in the universal health coverage agenda. This high-level meeting, sponsored by...

Global ARCH loves to celebrate World Heart Day! This year we’ve created personalized posters for many of our members to use to help raise awareness of CHD and RHD, with links to our Declaration of Rights. We also asked our members to send us photos in support of the Declaration of Rights in their communities. Here...

Global ARCH member CHD Malaysia recently held their first of four patient and families education webinars in partnership with Children’s HeartLink, MPCS and Malaysian leader, Grace Jerald from CHD Malaysia. The recording is now available HERE. ...

Global ARCH is excited to announce that it has co-authored and endorsed an important consensus paper, published in the European Society of Cardiology's European Heart Journal. The article describes issues and practices of transition and transfer of adolescents with congenital heart disease. Global ARCH played an important role in recruiting groups and soliciting regular feedback...

Nahimeh Jaffar 

Nahimeh Jaffar has worked as a certified Project Manager (PMP) in various fields, including Public Health, Biotech, and Pharmaceuticals, working within clinical settings such as hospitals and clinics. In addition, she worked with global communities in Africa, the Caribbean, and the Middle East, supporting various social impact projects. Ms. Jaffar has been involved in preventive health initiatives in collaboration with the Center for Disease Control (CDC, USA) and the Center for Medicare and Medicaid Services (CMS, USA).

 

Ms. Jaffar holds an MBA in Business Development from the Swiss Institute of Higher Management, Vevey, Switzerland, and a bachelor’s degree in Consumer Affairs from California State University, Northridge, USA.

Amy Verstappen, President

Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world.  Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.