News

Global ARCH is excited to announce that it has co-authored and endorsed an important consensus paper, published in the European Society of Cardiology’s European Heart Journal. The article describes issues and practices of transition and transfer of adolescents with congenital heart disease. Global ARCH played an important role in recruiting groups and soliciting regular feedback

CHD Malaysia’s founder and Global ARCH board member Grace Jerald, in partnership with Children’s HeartLink and The Malaysian Paediatric Cardiac Society (MPCS), held the first of four patient and family education webinars. The recording is now available on YouTube by clicking HERE.

We have a new look, as well as new features that will make our website more versatile and functional for our global audience. Now all pages can be translated into a wide variety of languages using the translate tool at the top of the page (on a computer) or at the footer using a mobile

Global ARCH welcomes five new and one returning board member: Ruth Ngwaro, Grace Jerald, Lavinia Ndinangoye, Mehwish Mukhtar, David La Fontaine, and Bistra Zheleva. Ruth Ngwaro is originally from Kenya but is now living in the United States. As a congenital heart disease (CHD) patient, Ruth founded the non-profit organization Kenya Mended Hearts Patient’s Association (KMHPA). Through her

RHD Action is pleased to launch the first round of our Small Grants Programme for 2019 with this request for proposal. To date, 13 projects in a dozen countries from across the globe have been funded & supported through our RHD Action Small Grants Programme which was launched in 2017. Read more at RHDAction.org

On March 16, 2019, the Children’s Heart Disease Research Unit, in partnership with Brave Little Hearts SA and Heart of Hope, hosted our 2nd patient-focused workshop – ‘Listen to my Heart’ – at the Red Cross War Memorial Children’s Hospital.

“The greater presence of young people and patients is an encouraging sign that the agenda is shifting”, says Bistra Zheleva. “The young people becoming engaged in programmes to counter NCDs are remarkable and inspiring. There is a whole new cadre of young medical and public health professionals who care and want to see a change,

“When Maven was born in 2011, he was diagnosed with a congenital heart defect. This involved a number of conditions, some of which doctors expected would resolve on their own. But one of those — a pulmonary stenosis — would require surgery when he was older, at an estimated cost of $20,000. That is a

Global ARCH has been selected to present at the Cochrane Colloquium, being held in Edinburgh, Scotland September 16th – 18th. Entitled Beyond the RCT: How Global Patient Organizations Build Research Capacity and Impact , the presentation will highlight the ways congenital heart disease and rheumatic heart disease advocacy groups in low and middle-income countries support the development of

On July 5th, 2018, Global ARCH attended the Interactive Hearing in preparation for the third High-level Meeting of the UN General Assembly on the Prevention and Control of Non-Communicable Diseases (NCDs) as part of the Children’s HeartLink delegation. Global ARCH President Amy Verstappen advocated for the recognition of rheumatic and congenital heart disease as a major cause of NCD