Global ARCH board member Hannah Amora speaks at UN meeting on NCD’s – patient and caregiver’s views finally being heard

Global ARCH / Global ARCH board member Hannah Amora speaks at UN meeting on NCD’s – patient and caregiver’s views finally being heard

Global ARCH board member Hannah Amora speaks at UN meeting on NCD’s – patient and caregiver’s views finally being heard

“When Maven was born in 2011, he was diagnosed with a congenital heart defect. This involved a number of conditions, some of which doctors expected would resolve on their own. But one of those — a pulmonary stenosis — would require surgery when he was older, at an estimated cost of $20,000. That is a significant price tag just about anywhere in the world but a particularly high one for a young, working-class family living in Cebu City, Philippines.

Read the full article

Global ARCH

Nahimeh Jaffar 

Nahimeh Jaffar has worked as a certified Project Manager (PMP) in various fields, including Public Health, Biotech, and Pharmaceuticals, working within clinical settings such as hospitals and clinics. In addition, she worked with global communities in Africa, the Caribbean, and the Middle East, supporting various social impact projects. Ms. Jaffar has been involved in preventive health initiatives in collaboration with the Center for Disease Control (CDC, USA) and the Center for Medicare and Medicaid Services (CMS, USA).

 

Ms. Jaffar holds an MBA in Business Development from the Swiss Institute of Higher Management, Vevey, Switzerland, and a bachelor’s degree in Consumer Affairs from California State University, Northridge, USA.

Amy Verstappen, President

Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world.  Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.