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Advocacy
Declaration of Rights for Individuals with Childhood-Onset Heart Disease
Video photo credit: Brave Heart Lebanon.
Translations:
Italian
Malaysian - Bahasa
Español
Organizations that have signed the Declaration of Rights
- AACIC
- Action for Disadvantaged People
- ACIDPE
- Adult Congenital Heart Association (ACHA)
- American Heart Organization
- Amigos de Corazón
- Asociación Todo Corazón de Murcia
- Associazione Italiana dei Cardiopatici Congeniti Bambini e Adulti (AICCA)
- Associacio de Cardiopaties Congenites (AACIC)
- Association of Cardiovascular and Thoracic Surgeons of Nigeria
- Autismnomore
- Blissorg
- Brave Heart Fund
- Brave Heart Fund
- Brave Little Hearts South Africa
- Brave Little Hearts Zimbabwe
- Brave Heart (Lebanon)
- Brave Heart Namibia
- Bundesverband Jemah e.V.
- Canadian Congenital Heart Alliance
- CHD & RHD Namibia
- Child Help Uganda
- Child Watch Foundation
- Children’s Heart Disease Research Unit, S. Africa
- Children’s HeartLink
- Congenital Heart Disease India
- Congenital Heart Defect Protective Mission
- Cuore Matto
- Dr. KM Cherian Heart Foundation
- Easterseals Blake Foundation
- Estrellita de Belen Foundation
- Ethiopian Society of Cardiac Professionals
- European Congenital Heart Disease Organisation (ECHDO)
- Fundacion CorAvant
- Fundacion Estrellita de Belen Corp.
- Global Alliance for Rheumatic and Congenital Hearts (Global ARCH)
- Global Cardiac Surgery
- Haiti Cardiac Alliance
- Healing Little Hearts Global Foundation
- Heart Care International
- Heart Kids South Africa
- Heart of Hope
- Heart Hope Heroes
- Hearts Unite the Globe
- herznetz.ch
- Hjärtebarnsfonden
- International American Society of Cardiology
- International Society for Adult Congenital Heart Disease
- International Society for Social Pediatrics and Child Health
- International Quality Improvement Collaborative for Congenital Heart Disease (IQIC)
- JHACH
- Justice for Heart Warriors
- Kardias
- Kenya Mended Hearts
- KMPHA
- Let It Echo
- Little Children
- Malaysian Congenital Heart Foundation
- Menudos Corazones
- Novick Cardiac Alliance
- OAUTHC
- Pakistan Children’s Heart Foundation
- Program in Global NCDs and Social Change, Harvard Medical School
- Rare Care World
- Reach
- Rheumatic Heart Disease Support Uganda
- RI MUCH
- Rotary Club of Kampala
- Rowan’s Down Syndrome Awareness Center
- Saloni Heart Foundation
- Stroke Association of Kenya
- Sudanese Children’s Heart Society
- Surgeons of Hope
- T21 Families Support Organization
- Team Heart, Inc.
- Team Zakki
- The Mended Hearts, Inc.
- UDUTH
- Vereneniging -encostochondritis patiënten
- William Novick Global Cardiac Alliance
Global ARCH LIVE webinar presentation
CHD/RHD Needs are Human Rights: What Do we Need? How Do We Get There?
by Global ARCH President Amy Verstappen
Global ARCH Webinars
We are running a series of webinars on a wide range of topics to help the CHD/RHD community stay current with with a variety of topics, including Covid-19 and What We Know So Far, Fundraising Strategies in the Time of Pandemic, and Leveraging Social Media for High-Level and Patient Advocacy. We will also be hosting Peer Sharing sessions to give everyone an opportunity to share and learn from each other.
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