We are working hard at representing our member organizations and individuals through advocacy efforts. Our Declaration of Rights of Individuals with Childhood-Onset Heart Disease was launched in 2020. We believe that every person affected by childhood-onset heart disease has the right to receive all needed services to reach their full potential. We are asking our members and the congenital heart disease/rheumatic heart disease community to please sign our Declaration.
Global ARCH LIVE webinar presentation
This user-friendly document explains what the Declaration of Rights is and how you can use it in your organization. It includes a summary, fact sheet, and social media toolkit to help you reach your target audiences. We hope you find it useful!
We are running a series of webinars on a wide range of topics to help the CHD/RHD community stay current with with a variety of topics, including Covid-19 and What We Know So Far, Fundraising Strategies in the Time of Pandemic, and Leveraging Social Media for High-Level and Patient Advocacy. We will also be hosting Peer Sharing sessions to give everyone an opportunity to share and learn from each other.
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