Advocacy

Global ARCH / Advocacy

Declaration of Rights for Individuals with Childhood-Onset Heart Disease

Video photo credit: Brave Heart Lebanon. 

Translations:

Organizations that have signed the Declaration of Rights

  • AACIC
  • 
Action for Disadvantaged People

  • ACIDPE
  • Adult Congenital Heart Association (ACHA)

  • American Heart Organization
  • 
Amigos de Corazón

  • Asociación Todo Corazón de Murcia
  • Associazione Italiana dei Cardiopatici Congeniti Bambini e Adulti (AICCA)

  • Associacio de Cardiopaties Congenites (AACIC)

  • Association of Cardiovascular and Thoracic Surgeons of Nigeria
  • Autismnomore
  • Blissorg
  • Brave Heart Fund

  • Brave Heart Fund
  • Brave Little Hearts South Africa

  • Brave Little Hearts Zimbabwe
  • Brave Heart (Lebanon)

  • Brave Heart Namibia
  • Bundesverband Jemah e.V.

  • Canadian Congenital Heart Alliance
  • CHD & RHD Namibia
  • Child Help Uganda
  • Child Watch Foundation
  • Children’s Heart Disease Research Unit, S. Africa
  • Children’s HeartLink

  • Congenital Heart Disease India
  • Congenital Heart Defect Protective Mission
  • Cuore Matto
  • 
Dr. KM Cherian Heart Foundation

  • Easterseals Blake Foundation
  • Estrellita de Belen Foundation
  • Ethiopian Society of Cardiac Professionals

  • European Congenital Heart Disease Organisation (ECHDO)

  • Fundacion CorAvant
  • Fundacion Estrellita de Belen Corp.
  • Global Alliance for Rheumatic and Congenital Hearts (Global ARCH)
  • 
Global Cardiac Surgery

  • Haiti Cardiac Alliance

  • Healing Little Hearts Global Foundation
  • Heart Care International
  • Heart Kids South Africa
  •  Heart of Hope
  • Heart Hope Heroes
  • 
Hearts Unite the Globe

  • herznetz.ch
  • Hjärtebarnsfonden
  • International American Society of Cardiology
  • International Society for Adult Congenital Heart Disease
  • 
International Society for Social Pediatrics and Child Health
  • 
International Quality Improvement Collaborative for Congenital Heart Disease (IQIC)

  • JHACH
  • Justice for Heart Warriors
  • Kardias
  • Kenya Mended Hearts
  • KMPHA
  • Let It Echo
  • Little Children
  • Malaysian Congenital Heart Foundation
  • Menudos Corazones
  • 
Novick Cardiac Alliance
  • OAUTHC
  • 
Pakistan Children’s Heart Foundation
  • 
Program in Global NCDs and Social Change, Harvard Medical School
  • 
Rare Care World
  • Reach
  • Rheumatic Heart Disease Support Uganda
  • RI MUCH
  • Rotary Club of Kampala
  • Rowan’s Down Syndrome Awareness Center
  • 
Saloni Heart Foundation

  • Stroke Association of Kenya
  • Sudanese Children’s Heart Society

  • Surgeons of Hope
  • T21 Families Support Organization
  • 
Team Heart, Inc.
  • 
Team Zakki

  • The Mended Hearts, Inc.
  • UDUTH
  • Vereneniging -encostochondritis patiënten
  • William Novick Global Cardiac Alliance

Global ARCH LIVE webinar presentation

CHD/RHD Needs are Human Rights: What Do we Need? How Do We Get There?

by Global ARCH President Amy Verstappen

Global ARCH Webinars

We are running a series of webinars on a wide range of topics to help the CHD/RHD community stay current with with a variety of topics, including Covid-19 and What We Know So FarFundraising Strategies in the Time of Pandemic, and Leveraging Social Media for High-Level and Patient Advocacy. We will also be hosting Peer Sharing sessions to give everyone an opportunity to share and learn from each other.

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