Global ARCH / Advocacy

Declaration of Rights of Individuals with Childhood-Onset Heart Disease

We are working hard at representing our member organizations and individuals through advocacy efforts. Our Declaration of Rights of Individuals with Childhood-Onset Heart Disease was launched in 2020. We believe that every person affected by childhood-onset heart disease has the right to receive all needed services to reach their full potential. We are asking our members and the congenital heart disease/rheumatic heart disease community to please sign our Declaration.

Read the Declaration
View a summary of the Declaration

Global ARCH LIVE webinar presentation

CHD/RHD Needs are Human Rights: What Do we Need? How Do We Get There?

by Global ARCH President Amy Verstappen

Declaration Information and Action Toolkit

This user-friendly document explains what the Declaration of Rights is and how you can use it in your organization. It includes a summary, fact sheet, and social media toolkit to help you reach your target audiences. We hope you find it useful!

Read the Declaration Information and Action Toolkit


Global ARCH LIVE Webinars

We are running a series of webinars on a wide range of topics to help the CHD/RHD community stay current with with a variety of topics, including Covid-19 and What We Know So FarFundraising Strategies in the Time of Pandemic, and Leveraging Social Media for High-Level and Patient Advocacy. We will also be hosting Peer Sharing sessions to give everyone an opportunity to share and learn from each other.

Learn More

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