“Patient organizations refuse to remain invisible. Across Africa, families and advocates are bringing childhood-onset heart disease into NCD strategies, universal healthcare discussions, and lifecourse approaches to care – calling for integration rather than fragmentation.”
-Tendai Moyo, Founder, Brave Little Hearts Zimbabwe
Global ARCH had a strong and influential presence at the 9th World Congress of Pediatric Cardiology & Cardiac Surgery (WCPCCS), held December 7–12, 2025, in Hong Kong. The Congress brought together thousands of clinicians, researchers, policymakers, and advocates from around the world to advance care for children and adults living with congenital and childhood-onset heart disease.
February 14, International Congenital Heart Disease Day #LaterMeansMoreRisk: 65% of children with congenital heart disease are not referred for Early Intervention Menudos Corazones, a leading national organization supporting patients with congenital heart disease and their families, has launched the #LaterMeansMoreRisk campaign to raise awareness about the neurological development challenges associated with this condition and to
We are proud to announce a new partnership! Global ARCH is joining Jhpiego, Operation Smile, MiracleFeet, Children’s HeartLink, and The G4 Alliance to form the Global Action for Congenital Conditions (GACC). This new coalition will work alongside the WHO to transform how health systems and communities provide treatment and lifelong care for individuals affected by
At Global ARCH, we’re always looking for ways to grow stronger and do more for the global community we serve. That’s why we’re thrilled to announce the launch of our Member Relations Council and the new chapter of our Medical Advisory Council. These dynamic councils bring together passionate leaders and world-class experts, driving our mission
We are thrilled to introduce Global ARCH’s newly elected Executive Board—a team of inspiring leaders guiding us into 2025 in partnership with our Executive Director: • Chair: Amaya Sáez – General Manager of Menudos Corazones Foundation and co-founder of CardioAlianza, Amaya is a tireless advocate inspired by her nephew’s journey with CHD. • Vice Chair: Anu Gomanju – A passionate advocate from
Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world. Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.