Over 1,500 advocates and organizations from over 90 countries issued a collective call for urgent action to address the global burden of pediatric and congenital heart diseases in the lead up to the 8th World Congress of Pediatric Cardiology and Cardiac Surgery in August, 2023.
Since then, the Call to Action has already served as an impactful advocacy tool and has been shared with key leaders at the United States Agency for International Development (USAID), the World Bank, the United Nations General Assembly, various Ambassadors and high-ranking government officials, and leaders in the pediatric & congenital cardiac community. And we’re just getting started!
As follow-up to the Call to Action, Global ARCH and Children’s HeartLink officially launched a Global Coalition during the Continuing Action on the Global Burden of Pediatric & Congenital Heart Diseases webinar on January 9th. The Coalition aims to contribute to reducing inequities in access to quality pediatric cardiac care in low- and middle-income countries through collaborative global advocacy efforts. If you missed the webinar you can watch it below.
We urge you to get involved by:
1. Signing the Call to Action (if you haven’t already)
2. Joining the Global Coalition
3. Share with your friends, family, and colleagues
We believe that our collective voice will make a bigger impact in reducing the global inequities in access to quality lifelong pediatric and congenital cardiac care.
Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world. Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.