Sign the Call to Action

Global ARCH / Sign the Call to Action

Global Coalition for Pediatric & Congenital Hearts:

Call to Action on Addressing the Global Burden of Pediatric and Congenital Heart Diseases

Background


Over 1,500 advocates and organizations from over 90 countries issued a collective call for urgent action to address the global burden of pediatric and congenital heart diseases in the lead up to the 8th World Congress of Pediatric Cardiology and Cardiac Surgery in August, 2023.

 

Next Steps

As follow-up to the Call to Action, Global ARCH and Children’s HeartLink officially launched a Global Coalition during the Continuing Action on the Global Burden of Pediatric & Congenital Heart Diseases webinar on January 9th. The Coalition aims to contribute to reducing inequities in access to quality pediatric cardiac care in low- and middle-income countries through collaborative global advocacy efforts. If you missed the webinar you can watch it below.

Nahimeh Jaffar 

Nahimeh Jaffar has worked as a certified Project Manager (PMP) in various fields, including Public Health, Biotech, and Pharmaceuticals, working within clinical settings such as hospitals and clinics. In addition, she worked with global communities in Africa, the Caribbean, and the Middle East, supporting various social impact projects. Ms. Jaffar has been involved in preventive health initiatives in collaboration with the Center for Disease Control (CDC, USA) and the Center for Medicare and Medicaid Services (CMS, USA).

 

Ms. Jaffar holds an MBA in Business Development from the Swiss Institute of Higher Management, Vevey, Switzerland, and a bachelor’s degree in Consumer Affairs from California State University, Northridge, USA.

Amy Verstappen, President

Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world.  Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.