Learn More

Global ARCH / Learn More

Global ARCH is an alliance of congenital (CHD) and rheumatic (RHD) heart disease patient 

and family organizations and stakeholders from around the world.

Our Mission

To improve worldwide life-long outcomes in childhood-onset heart disease through empowering patient and family organizations. 

Our Vision

Every person affected by childhood-onset heart problems receives the life-long care they need to live life unlimited by their disease

What We Do

  • We connect and strengthen CHD and RHD organizations globally through peer mentorship, leadership development, educational resources, and regional and global conferences.
  • We speak out for the rights of CHD and RHD patients through our Rights Campaign and by promoting and supporting patient and family-led advocacy.
  • We educate patients, professionals, and humanitarian organizations on the global needs of CHD and RHD patients and the issues that matter most to our communities.
  • We collaborate with professional and humanitarian organizations to advocate for better services for every person affected by childhood-onset heart disease.

Nahimeh Jaffar 

Nahimeh Jaffar has worked as a certified Project Manager (PMP) in various fields, including Public Health, Biotech, and Pharmaceuticals, working within clinical settings such as hospitals and clinics. In addition, she worked with global communities in Africa, the Caribbean, and the Middle East, supporting various social impact projects. Ms. Jaffar has been involved in preventive health initiatives in collaboration with the Center for Disease Control (CDC, USA) and the Center for Medicare and Medicaid Services (CMS, USA).


Ms. Jaffar holds an MBA in Business Development from the Swiss Institute of Higher Management, Vevey, Switzerland, and a bachelor’s degree in Consumer Affairs from California State University, Northridge, USA.

Amy Verstappen, President

Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world.  Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.