Resources
- Talking to Dr. Adrienne Kovacs about CHD and Mental Health
- American Heart Association: Scientific Statement CHD and Mental Health
- Psychological Aspects of Living with Congenital Heart Disease: Information for Patients and Families
- Childhood-Onset Heart Disease Fact Sheet
- Declaration of Rights for People with Childhood-Onset Heart Disease.pdf
- Advocacy Toolkit
- Declaration of Rights Summary
- A Voice for the Invisible Child: Childhood Heart Disease and the Global Health Agenda (Children’s HeartLink)
- What is Rheumatic Fever and Rheumatic Heart Disease? (Reach)
- American Heart Association Scientific Statement: Contemporary Diagnosis and Management of Rheumatic Heart Disease: Implications for Closing the Gap
- A Case for the Invisible Child: Childhood Heart Disease and the Global Health Agenda
- Finding the Invisible Child: Childhood Heart Disease and the Global Health Agenda
- Treating the Invisible Child: Childhood Heart Disease and the Global Health Agenda
- A Voice for the Invisible Child: Childhood Heart Disease and the Global Health Agenda
- Life Beyond Surgery: Addressing the neglected issue of providing long-term congenital heart care in middle-income countries
Healing Hearts and Minds. A Holistic Approach to Coping Well With Congenital Heart Disease, published by Oxford University Press. This is a Global ARCH favourite, written by counselling psychologist Dr. Liza Morton and clinical social worker Tracy Livecchi. The book, available at Amazon, is full of evidence-based, easy to understand information about congenital heart disease, and offers strategies for learning to thrive despite living with this condition. But most importantly, written by two women who live with CHD, it offers hope and connection.
HeartChoir: A fascinating study demonstrating that choir singing improves respiratory muscle strength and quality of life in patients with structural heart disease. Published by Swiss Medical Weekly at University of Basel in Switzerland.
A congenital heart disease resource with outstanding visuals of 50 congenital heart surgeries. A great resource for parents and patients.
