Leaders’ Forum (members only)

NEXT LEADERS FORUM: January 7, 2026, at 10:00 a.m. ET 

Introducing the 2026 

Global ARCH Leaders Forum Series

In 2026, our Leaders Forum will continue to grow as a dedicated space for connection, learning, and collaboration across our global community. Each month, we will host focused discussions based on the topics you voted for—ensuring that the conversations truly reflect the priorities, concerns, and lived experiences of our member organizations.

Throughout the year, participants will also have the opportunity to meet and interact with regional members in small-group sessions. These conversations help strengthen relationships, highlight regional priorities, and build the foundation for a more unified global voice.

The Leaders Forum is a space to be heard, to listen, to learn, and to contribute to a greater community. Whether you are leading a patient organization, building advocacy efforts, or supporting families in your region, your voice matters here.

We look forward to another year of shared knowledge, meaningful dialogue, and collective impact.

Together, we are shaping stronger pathways for lifelong care.

Registration is required, and you may now pre-register for future sessions. If you would like to give a short presentation (5–10 minutes) about your organization, please email [email protected]