June 4 at 8-9 a.m. EST: Global ARCH Leaders Forum
This is an opportunity for all of us to share our experiences, learn from each other, and get and receive much needed support. These meetings will be held the first Friday of each month at 8-9 a.m (unless posted).
May 8 at 7:30-8:30 a.m. EST – How to: Use Global Burden of Disease Study Data to Empower Your Advocacy
Health data is essential for health advocacy. Communicating with policy makers starts with describing the “burden of disease” in their area, such as death and disability. The Global Burden of Disease Study database contains extensive country-specific CHD and RHD health data. This webinar will demonstrate how to access and use this data to strengthen your awareness and advocacy efforts.
Moderator: Bistra Zheleva, VP of Global Strategy and Advocacy, Children’s HeartLink
Presenter: Dominique Vervoort, MD, John’s Hopkins Bloomberg School of Public Health
February 12 at 8-9 a.m. EST – Advocacy in Action: Advocating for Childhood-Onset Heart Diseases at the National Level
Global ARCH board members Bistra Zheleva, VP of Global Strategy and Advocacy at Children’s HeartLink and Ruth Ngwaro, co-founder of Kenya Mended Hearts Patients Association will discuss their recent advocacy success stories. Mended Hearts Kenya has been successful in getting the government to pay for CHD surgery, and Children’s HeartLink in the expansion of screening and surgery in Kerala, India.
November 27 at 8 a.m. EST: Technology and how you can get discounts for your organization
Farhan Ahmad, Founder and volunteer CEO of Pakistan Children’s Heart Foundation, and board member of Global ARCH, will discuss popular software options for non-profits and how you can get them at a discount. Topics include:
Friday, July 17 at 8-9 am EST: Leveraging Social Media for High-Level and Patient Advocacy
Dominique Vervoort, MD, physician and aspiring pediatric cardiac surgeon with global surgery background, as well as social media whiz, will discuss using social media for both political and grass-roots change.
Tuesday, June 23 at 8-9 a.m. EST: RHD, CHD and COVID-19: A Global Update
Join Professor LIesl Zuhlke, Director of the Children’s Heart Disease Research Unit at the University of Cape Town, as she talks about what we know, don’t know, and hope to know soon about the impact of COVID-19 on congenital and rheumatic heart patients world-wide.
Friday, May 29 at 8-9 a.m. EST: The Declaration of Rights, and the importance of patient advocacy. Amy Verstappen, MGH, Global ARCH President, will speak about how in this time of Covid-19 our population is even more vulnerable, and the need for a Declaration of Rights of Individuals Affected by Childhood-Onset Heart Disease has never been greater. Join us to learn how you can make an impact.
Friday, May 15 at 8-9 am EST: Fundraising Strategies in the Time of Pandemic: Guidance for congenital heart disease patient groups
Bistra Zheleva, Vice President of Global Strategy and Advocacy at Children’s HeartLink, presents on current fundraising challenges and opportunities, followed by an opportunity for discussion and strategy-sharing. She is joined by Amy Basken with Conquering CHD (US), Blanca del Valle with Kardias (Mexico), and Farhan Ahmad with Pakistan Children’s Heart Foundation – all very successful charities.
Friday, May 1st at 8-9 am EST: CHD and COVID-19 – What Do We Know So Far?
Disty Pearson, PA-C at the Boston Adult Congenital Heart Center and Global ARCH Vice-President, will offer a brief overview of the information available thus far, followed by Q and A and discussion.
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