Spain’s Menudos Corazones Foundation “Day of Visibility”
On May 21, Menudos Corazones Foundation organized the “Day for the Visibility” to recognize the rights of people with congenital heart disease and their families, at the Congress of Deputies in Madrid, Spain. At the event they launched “Menudos Corazones – Decalogue for patients with congenital heart disease and their families”, with the following 10 goals for advancing the full recognition of rights and the improvement of the quality of life of patients with CHD:
1 – Ensure adequate healthcare, as well as equitable access to treatments, and rapid and effective referral to specialized centers.
2 – Guarantee children with congenital heart disease access to early intervention from birth.
3 – Adequately recognize the consequences of congenital heart diseases and their impact on day-to-day life in the disability evaluation process.
4 – Guarantee adolescents with congenital heart disease an adequate transition to the adult congenital heart disease units.
5 – Ensure the equal opportunity employment policies for people with congenital heart diseases and reinforce the development of active conciliation policies.
6 – Strengthen and improve free and universal access to mental health protection resources.
7 – Guarantee the correct prenatal and postnatal diagnosis of congenital heart diseases.
8 – Promote and finance basic and applied research into congenital heart diseases.
9 – Create a public registry of congenital heart diseases that is at the service of clinical practice.
10 – Promote and support social awareness campaigns.
Bravo Menudos Corazones Foundation for your amazing work!
