Global ARCH / Member Spotlight  / Spain’s Menudos Corazones Foundation “Day of Visibility”

Spain’s Menudos Corazones Foundation “Day of Visibility”

On May 21, Menudos Corazones Foundation organized the “Day for the Visibility” to recognize the rights of people with congenital heart disease and their families, at the Congress of Deputies in Madrid, Spain. At the event they launched “Menudos Corazones – Decalogue for patients with congenital heart disease and their families”, with the following 10 goals for advancing the full recognition of rights and the improvement of the quality of life of patients with CHD:

1 – Ensure adequate healthcare, as well as equitable access to treatments, and rapid and effective referral to specialized centers.

2 – Guarantee children with congenital heart disease access to early intervention from birth.

3 – Adequately recognize the consequences of congenital heart diseases and their impact on day-to-day life in the disability evaluation process.

4 – Guarantee adolescents with congenital heart disease an adequate transition to the adult congenital heart disease units.

5 – Ensure the equal opportunity employment policies for people with congenital heart diseases and reinforce the development of active conciliation policies.

6 – Strengthen and improve free and universal access to mental health protection resources.

7 – Guarantee the correct prenatal and postnatal diagnosis of congenital heart diseases.

8 – Promote and finance basic and applied research into congenital heart diseases.

9 – Create a public registry of congenital heart diseases that is at the service of clinical practice.

10 – Promote and support social awareness campaigns.

Bravo Menudos Corazones Foundation for your amazing work!

Global ARCH

Nahimeh Jaffar 

Nahimeh Jaffar has worked as a certified Project Manager (PMP) in various fields, including Public Health, Biotech, and Pharmaceuticals, working within clinical settings such as hospitals and clinics. In addition, she worked with global communities in Africa, the Caribbean, and the Middle East, supporting various social impact projects. Ms. Jaffar has been involved in preventive health initiatives in collaboration with the Center for Disease Control (CDC, USA) and the Center for Medicare and Medicaid Services (CMS, USA).


Ms. Jaffar holds an MBA in Business Development from the Swiss Institute of Higher Management, Vevey, Switzerland, and a bachelor’s degree in Consumer Affairs from California State University, Northridge, USA.

Amy Verstappen, President

Amy Verstappen has been a patient advocate and health educator since 1996, when her own challenges living with a complex heart defect led her to the Adult Congenital Heart Association, where she served as president from 2001 to 2013. She has served as an advisor to the Centers for Disease Control the National Heart, Lung and Blood Institute; and the International Society for Adult Congenital Cardiac Disease, and worked with congenital heart patient and professional groups throughout the USA and the world.  Ms. Verstappen received a Masters in Education in 1990 and a Masters in Global Health in 2019.